Just been told still at 0.1 grrrrr
Hi Kip and everyone…
i just popped on here as I find it helpful to see how people are doing further on in their journeys. I have been following yours Kip, as I am on FEC T plus Herceptin, but no hormones involved. Had 2nd FEC today.
My advice from being in hospital for any of you is: get some good earplugs, they are a life saver! Or in their absence, put your own relaxing music on your phone or tablet, and put your ear phones in to shut out the noise. I was put next to the nursing station in isolation, so it was incredibly noisy all day and night.
I pray that your neutrophils score shoots up very soon, and that you will escape colditz!
No one knows until being in hospital how scarey and lonely it can feel, and it can seem like a prison. Bless you.
Big hugs ?
Georgie Gee 
Kip ??sorry you are sheet testing in casa nhs darling. It does send you ???being in but knowing you are in the safest place while neutrophils are over in Florida keeps you ???girls the famous neutrophils ???That the may17 girls all did for each other when casa nhs residents called for so come on get your gal outta there ladies 
You can do it kip you are a ?:female_sign:?:female_sign:?:female_sign:?:female_sign:Kick ass kinda gal ???
Shi xx
Morning all thanks for your good wishes. Manages some sleep lst night but get woken every 4 hrs for obs then for so me reason morning starts at 5.45am… on goes the lights and i get my IV drugs so thata sleep done.
Shi your posts always make me smile… ill ??? round my room !! If you pass my errant neuts whikst on your flight could you ask Captain Costa to send them back p!ease.???
Georgee how long did yoj have to stay jn? I am near the nurses station so noisy here too!!! I have ear plugs now tho. Woke up this morning with worse thrush tongue again… Feel like i will never taste again!
CDC ans ktk how are you doing? My hair is definately fluffy now altho still white… and a!so .ade a major discovery last night (very boring jn here!!) … I now have hairy toes… What??? Why?? Whats happening… not a good look???
Hello kip
The hairy toes made me laugh out loud!! What an odd thing.
Hope you are fixed up and back home soon
Sue xx
Morning Kip,
Glad your feeling a bit more human today, hope you get to go home. Hairy toes is good. It shows you have good circulation to your feet. That’s what I tell myself when I look down at my hobbit toes anyway.
I have T number 4 today and it’s still so far so good with no side effects at all. Where my hair had thinned on top of my head, small patch (despite the cold cap) there is hair regrowth. I’ll have a really long day today. Chemo starts at 9am till whenever, about 1.3ish then I have to hang around for an appointment with the anticoagulant clinic about the clots in my arm which is at 2.50pm and then I’ll probably have to hang around at the hospital pharmacy for about an hour to collect my clexane injections. I’ll be lucky to get home by 5pm. Good job we have a Bank Holiday Monday. I’ll need another day off (even though I had last week off).
Have a good day all.
Sorry you’re entombed Kip - hope those numbers shoot up quickly and you’re back home kicking booty soon xxx
Have a little low level back ache this morning, but as I said to DH nothing worse than having slept awkwardly and I still feel pretty energetic so I’m off for a walk with the dog in a mo - gotta get a cuppa in first! I finished a crochet blanket yesterday so that will go to our caravan sometime over the next week and I’ve picked up another that’s been languishing in the to be finished like for a while. Really enjoying this cooler bright weather.
Hair deffo much thinner, but I had so much anyway I’ve still got a good covering. Not stopping me looking for a hat pattern to knit up as the weather chills a little! No hairy toes here, or other hairy parts if you get what I mean 
Think my eyebrows are thinning, but had deliberately chose glasses with a heavier frame before this started to help disguise! Also have a friend’s daughter lined up to help me draw them back in needs be!
Here’s to good days ladies, chin, chin!
LJ
Hi my eyebrows and lashes have definitely thinned this cycle but still some remaining, ill ilve to transplanr the hairy toes hairs elsewhere! Just had bloods taken… well attempted veins all done in now so waiting to see if the one drop they got was enough… goodness knows if ill have any left for next chemo…
Hi Kip. Sounds like you are feeling brighter! Fingers crossed ? for good blood results.
My hair is also lightly fluffy and I had to do a bit of a leg defuzz the other day. No hobbit toes though!!
I felt so good yesterday and slept quite well but I’m quite flushed now. I’ll up the fluids. Temp 37.3 so I’ll keep an eye on it. Other than that, generally much better than FEC so far! ?
Well that was a marathon day. At hospital for chemo at 9 (as uneventful as usual) followed by anticoagulant clinic at 2.50 then an hour wait in hospital pharmacy for injections. Finally home at 5.3pm.
Yessssss! I am home. What a few days! Had atrempted blood test today by jr doc, he couldn’t fin a vein, so got 2 expert ladies to do it… nk provlem full vial of blood! 4 hours lAter he comes back tk zay they didnt have enough… now i know they did but what happened to it i dont know so jr doc and his colleague mrs jr doc havd anothwr go, this time going directly jnto my artery inside of wrist!!! Omg never felt pain like it, both had a couple of goes each whikst i cried and winced … No joy they couldn’t get any blood. So then they got me standing up holding onto the sink whilst they laid on floor attempting to get a vein near my ankle bone!! After 2 attempts finally got some. Neuts have gone up to 0.6 so still not great but no evidence of infections so allowed home. Have ulcers ii.mouth now but told to use salt water difflam and painkillers. Cant wait for my own bed. Thanks for all your support and kind words. Just hope mouth gets back to normal before next T. Hipe uou are all keeping well xx
OMG Kip, your poor dear girl. . . . thank goodness you escaped. Virtual hug xx
Glad you are home Kip. It’s a bloody nightmare when they can’t find a vein. I had some try 7 attempts in A&E when I first started chemo. I was black and blue. A doctor eventually bought a small portable scanner in , scanned my arm and inserted the need by looking in the screen, straight into a vein.if only that had been done earlier.
Hope you get a decent nights sleep (after you have celebrated son’s GCSE results of course.
Great news that you are back home. Fingers crossed your nuets continue to go in the right direction
Sue x
Not a bad sleep considering the steroids yesterday. A good 6 hours straight which for me is good any night. Wide awake now. Son has a new bed coming between 7 and 1 today and he has to take his girlfriend to work so I’m waiting for it, watching Love Island Australia 
Glad you are home Kip. Makes me thankful for the Picc!!
I’ve had a brilliant nights sleep! I was a bit flushed on and off yesterday but my temp kept returning to normal. I was really sleepy so took some codeine as a precaution and have slept through to 6.30am. It must be the best sleep I’ve had since this started!! I have a very achy throat, so will keep the fluids up and keep an eye on my temp.
Have a good day everyone xxx
Kip glad your home CDC ???great news it’s gall stones and not the other, hope you had a little joy jig ??? ??Shi xx
Hello, geat news CDC one less thing to worry about! kTK glad you are atill feeling ok, lets hope T keeps being kind. I still have sljmy mouth and no taste really altho the ulcers seem to be getting slowly better. Cant believe i only have 7 days until next T, i really hope i get some good days before then. 28 days hntil last chemo so trying to be positive and focus on that. If it wasnt for the mouth issues i havent actually had many other SEs, slight aches and fingernails hurt a bit but the mouth OMG!! I did just read the leaflet with my antibiotics s and one of the side effects is .a reduction in white blood cells… Great hey!
Enjoy your day ladies, I’m joojng to get a little walk as going stir crazy! ?
I’ve been very lazy the last couple of days. No energy but plenty of dozing which is good. My mouth feels grim but no ulcers yet. No incentive to go out in the rain! Watching crap tv ?? Kx
Kip my mouth is awful too.chewing gum helps and tried frozen grapes yresterday which were cold to swallow.i have tinned pineapple chunks too which are supposed to be good. I cant taste anything. Ive tried sprays gel mouthwash toothpaste but just riding it out. 10 days til last chemo.seeing surgeon on Tuesday but think surgery is 6 to 8 weeks after last chemo. Hopefully find out more on Tuesday!?