My mouth is faring well, sweet things taste a little off but other than that all ok. I’ve been hit with achy legs though and my word they hurt! Consequently I didn’t get much sleep so I’m not the happiest. Alternating paracetamol and ibuprofen with the occasional co-codamol. Miserable.
LJ
Thankfully I’ve had no mouth problems whatsoever.
All I’ve had is the clots which they said is more usual with a picc line which I don’t have. The arm is very lumpy and bumpy. If I twist it to the side it looks like I have a 6 pack there and you can feel a hard vein all the way down my inner arm from elbow to near the wrist. Doesn’t hurt anymore though.
Oh dear nasth mouths seem to be the norm dont they. linda I am on day 14 and still nn taste… althiugh, dare j say, i think it may be alowly returning. I h aventried pineapple and ii have some, might give it a go, i find i can.tolerate soup but mism things taste and feel like soap. If any of you do get ulcers i found Iglu helps a bit .it creates a barrier over them for a while. Salt water with bicarbonate of soda in as a mouthwash helps too,o, Difflam is good too.
Morning! Yayyy ulcers gone… Slimy tongue still here but feeling slightly less slimy… Taste buds 50/50 so at least some improvement. This has been a long cycle or so it feels.
Cdc how are you feeling, less sick i hope?
Ktk hope the nasty mouth isnt getting worse .Have you had bone pain?
It was so miserable weather here yesterday like first day of Autumn but OH says September supposed to be hot?? We are havjng a woodburner fitted tomorrow… ive always wanted one and after this diagnosis we thought why not?? Im very excited although have no idea how to light a fire?, .
Hopefully gettjng a walk today as yesterday got rained off. Back to work tomorrow and then Onc appt on Wednesday pre next chemo, wondering whether they wilk lower the next dose as had neutropenia? Or maybe I’ll get the injections? Lots of questions to ask, also need to decide kn having nodes removed or not? Lots to think about.
Have a good day … Kip xx
Ps .hair lookjng fluffy on top but pure White eek.
Well I’ve spent the night courtesy of the NHS. On an assessment ward. On a trolley. I phoned because the leg pain was unbearable and temp was 37.7 so they invited me in. Bloods were fine, but wanted to monitor me in case injections were masking sign of infection. Had a chest x-ray, three lots of antibiotics and now glugging water to try and get a sample out. Fingers crossed once I’ve done that they’ll send me home. Just desperate to sleep.
LJ
@kip
Glad to hear your mouth is much better My Oncologist offered me a dosage reduction iof either 5 or 10% plus injections because of neutropenia. I took the 10% and had no problems. Let’s hope yours can tweak your dosage to improve things for you.
@LJ sorry to hear you’ve been in hospital overnight, it’s exhausting isn’t it? Hope you are home and resting soon. Best wishes to all
Jacq x
Thanks Jaqb i hope thry ofer me a reduction, i dont want a hospital stay again.
LJ hope things ok and you gethome doin. Xx
Sorry to hear of your visit LJ. Hopefully you have escaped by now!
After s good start I have been completely wiped out! We went out for lunch today but I had to force myself and have come straight back to bed! I am dozing on and off. Taking codeine if I feel achy and am severely constipated which doesn’t help. I am taking 4 Macrogol at a time!! Hopefully something will happen soon!
I have my LGFB session tomorrow. Hope I am well enough to enjoy it!
Love to all Kxx
They finally let me out about 2.30pm - three hours waiting for pharmacy nearly killed me! Legs are much easier today, though the hospital concentrated on high temp and haven’t given me anything stronger for pain relief. I have got co-codamol left from op so I’ll be taking that. Have seven days of ABs along with injections to contend with now. Have stocked up on prunes, prune juice and senna tabs as I don’t want to get caught out.
Will be having a convo with Onco about pain relief and minimising symptoms for next time, I can’t cope with that level of pain for that length of time again.
Have borrowed a foot spa and one of those electric impulse machines that Ian Botham advertises from our neighbours. She suffers from fibromyalgia so has a number of tips for leg pain. She’s also given me some Biofreeze which is a topical cold first warm second spray, which should come in useful.
Fingers crossed tomorrow brings better days for us all
LJ
Hi all,
Been awake since 4, well awake at midnight, then 1.30 then 4! Ah bloody steroids!
CDC, sending hugs, it’s so hard having children and going through this isn’t it? This time will pass and just take each moment as it comes. Sorry you couldn’t eat with your OH - that must have been hard for both of you!
LJ sorry to here about your hospitalisation. But glad you’re out now, take it easy and be kind to yourself!
I am due this morning for my second cycle of T, absolutely dreading it but have been fasting to see if it makes a difference to side effects - I will let you know if it does!!!
Enjoy this week Kip - the last week before was the best week for me and I felt almost normal…
Sending love to all,
Em
Xxx
Morning
Funnily enough since chemo Friday I’ve had the best nights sleeps I’ve had in ages, waking up and tossing and turning with hot flushes was the norm for me pre BC. I did mention to my oncologist about going 24 hours without sleep after the last round and asked if he could further reduce the steroids. He was going to ask the head bloke. I have mine as an infusion now before chemo so maybe he did reduce it? I know my blood sugars have definitely been better then they were previously with the steroids. Fingers crossed, still no side effects. I can’t believe my luck on this.
Glad you got home LJ. It’s bad enough to have to deal with all this stuff without extra trips to hospital.
Morning everyone.
cdc sorry tk hear that the sickness is still troubling you, at least on T not many see. To auffer with that, i certainly havent. Such a shame you didnt get tk eat with OH i aas the same yesterday, we were going to have lu ch out but as i cant taste properly it seemed a waste so we didnt bother… makes me feel so sad to keep missing out on things. Its good to hear that your daughter could share her tears with you, thats important. My daughter told me that she cried when she knew j was staying in hospital but didnt tell dad because she didnt want to upset him… bless her… i feel she is hiiding a lot of fears and worries from us. She said ahe didn’t really jnderstund why i was in hospital either, i dknt think OH thought to explain to her.
ktk ,. I had terrible constipation too, i got some lactulose from tesco and that sorted it in a day or so. Sorrh to hear you are feeling exhausted, i am too for the first time really during this but i tujnm it buikds up as uoh go along doesn’t it. I still have slimy tongue and altered taste buds but otherwize thats the only major side efect, no a aches. How are your fingers feeling?
Embolorry, good lluck for cycle 2, hopefully this one may be easier? My Onc said the first is usually the worst. Sending positive vibes xxx
Yeah! Movement !! Hopefully I will have a brighter day!!! Love to all xxx
Hoorah for movement KTK - that’s good news!
I had a good night’s sleep - DH slept in the spare room so I had plenty of room to move around and that definitely helped. Legs seem ok this morning, just feel as if I’m post flu now, slightly spacey and a bit out of sorts. Mouth is still ok, no ulcers and taste buds only slightly affected.
Trying to decide if it’s wise to go away to our caravan tomorrow for a few days. Part of me thinks it would us good. The other is a bit scarred by events of the past two days. It’s my birthday on Friday and I’d love to be on the coast for it.
Have good days ladies.
LJ
Go for it LJ. The change of scenery will do you good and the weather forecast looks good. Go and enjoy your birthday ??? Kx
Good news KTK !!!
LJ go for it… its my birthday on Sunday and also the day I start bloomin’ steroids again… happy birthday to me… go do something nice. Im hoping to have some taste buds back so I can enjoy a birthday meal! I know what you mean about wondering whether you should go, I feel like that too, but also climibing the walls at home. Go enjoy the caravan.
Ladies you need to ‘try’ and enjoy your birthdays, go out, have some fun and don’t let BC ruin everything this year!
Feeling okay after T2, bit of a headache and so going to bed now… I know it’s going to be a long week and I plan to take it easy and not get too worried about injecting, pain side effects etc!!
Night all,
Em
X’
Oh dear. Worst day so far yesterday. I didn’t feel brilliant but went along to the LGFB session as I had been looking forward to it so much. Started getting really bad stomach cramps and then the diarrhoea started! After my second visit to the loo I excused myself and came home. It went on for hours. Eventually I sent OH out for Imodium which helped a bit. Finally ended at about midnight. Feel a bit better today but afraid to eat or drink anything. Hope everyone else is doing better!! Kxx
Morning ladies. Sorry I have not posted a lot this week been enjoying feeling resonable for a few days. Went to the coast to see other half’s parents and enjoyed time by the sea with them, then Monday enjoyed the other half’s birthday ? ay the Robin Hood festival with family, the kids had a blast. Back to reality and treatment with a bump today though, first session of the T this morning at 11.30am. Just had a bacon sandwich and enjoying a cup of tea while I can. Can honestly say I am nervous about this one, as don’t know what the side effects will be, if it will effect my ibs and if I’m going to have an allergic reaction or not. Fingers crossed ?? it will be better than the FEC xx
Good luck today Lisa. Felt fine for the first day or two, so make the most of the good days. Kx