Lisa Marie - oh dear how kind of your OH to share his bug with you, hope you are feeling better today though. I think 1st T does seem to be worse than 2nd so far, but as I am only only day 4 I could be jinxing it, I think I know what to expect this time round. So far no bambi legs or aches, I am having the injections too this time round so it could kick in shortly as only had 2 so far. Embollorry said she is taking paracetomal before her jabs this time round and the pains have only been minimal? I have a slightly slimy mouth again but am taking Fluxonole or something like that to help keep thrush away and swishing with salt water every time I eat to try to keep on top of it, taste is a bit missing too! I think the news about that lovely lady passing has hit us all, regardless of our diagnosis, I had a tough day too but we must remember that its only the sad stories that make the press usually and those success ones are still out there and in great numbers too! I should think with all the upcoming appointments you have you are bound to be worrying, I’m dreading my next appt on 19th Sept with surgeon to see what/where/how many nodes are being removed next. I know I’ve had surgery already and managed ok and have no problems but its still something else to think about isn’t it. I’ll be keeping my fingers and toes crossed for you.
Sally - that sounds awful that you have to deal with the issues surrounding your treatment, you can do without anything else to think about at this time can’t you, but don’t let them get away with it!
Hope everyone else is ok today, no toilet issues happening or sickness! I’ve just realised today that I have hardly any eyebrows left now… .how strange that the hair on my head (and toes!!!) is really growing and now eyebrows are falling out… thank goodness LGFB course showed me how to do eyebrows, although they don’t really match… but as the lady said “Eye Brows are siblings not twins!” hee hee.
Thanks for the tips re taste buds and bone pains… I’ll take them on board… anything worth a try.
So sorry to hear the problems you are having with liver tests and next chemo, having delays must be such a nightmare and you sound like you have so many things organised to fit around the appointments too. I’ll cross my fingers for you that everything gets sorted, our poor bodies have to take on so many drugs and things its no wonder our livers complain once in a while. Hopefully the MRI results will show better results from the chemo than you can feel, try to remain positive, I know thats hard and people saying it all the time can be frustrating… you’ll soon be back on chemo and wishing the SEs away!
Lisa Marie- thanks for the website, not in my area but made me smile at the thought of being a model!!
I still have head hair and eyelashes but no eyebrows. Want much there to start with as I had a monobrow going on when I was young so started plucking when I was 12 ( when thinbrows were in ) and stopped when I was about 20. They have needed er growntree back
Hi CDC The Picc line takes less than an hour to fit including the X-ray to check it is in place. Also T takes less time than FEC as it is one infusion instead of multiple syringes. I was in for only about an hour with my first T. Felt a bit woozy due to the Piriton but fine afterwards. Definitely no nausea ?. Good luck with it all. Hope T treats you better than the first lot. Kxx
Not got a picc line, mine has just been cannula into a vein in hand and didn’t have piriton or anti histamine with it either just the T. Had no sickness on the T only had swollen throat but that of course could be due to my darling other half. I can’t really compare my first T se to the Fec se because of the virus but I do know mouth is dryer and skin is dryer. Eyelashes are thinning and what little white fluff I have on head is falling out, got barely there eyebrows already so they just gone patchy now. It the not being able to swallow and not tasting that doing me on the T. I’m hungry and Ryan keeps making me lovely meals but I just can’t eat them ? as the consistency makes me gag, to gluey and sticks to mouth or no taste. What everyone else eating on the T? Xx
As you can see, not looking my greatest with no make up and hair and eyelashes situation. I keep joking that I look like kryten from red dwarf but my OH keeps frowning at that. Love that show but must stop saying it because it obviously annoys him xx
You look beautiful Lisa x. I found that I needed to add a lot of salt to food to be able to taste anything. Still felt hungry though. My daughter froze some cubes of watermelon which was very pleasant. Look after yourself and don’t lose your sense of humour!!! Kxx
Hi Lisa, you look beautiful and are beautiful Amazing blue eyes ?? I drove my hubby nuts saying do I look like a turtle head, I must have asked a zillion times a day at one point, so if you look ken yourself to krytrn then that’s up to you, you don’t by the way, you look more like Hattie And I love a bit of red dwarf too, classic Have you tried a bit of frozen pineapple or frozen ginger for your mouth too and some rubbed and custard sugar free sweets from m&s can work quite well too ??hope that helps lovely ???Shi xx
Aww shucks thank you ladies. Got one blue and one green Shi, the green one changes with the weather and my mood much to the amusement of my step daughter. She is always looking and telling me what color it is that day. It’s a bit of a fade to one side blue to green mainly. Thinking of shaving the fluff off but only 2 more sessions to go so not sure. Actually ate and enjoyed dinner tonight and could taste it! Heinz chicken noodle soup ? with prawn crackers dipped in. They literally melted in my mouth. Easy to eat and got some nutrients so I’m happy ?. Hated feeling hungry and not enjoying anything. Think it’s just trial and error for us all and personal taste buds xx
Hi Lisa Marie, sorry to hear you are suffering with the mouth too. I have to say so far my mouth isn’t as bad as on first T but not sure if that will last, I am using salt mouth wash and have some Fluxonole stuff to take to stop getting thrush again but it is still feeling slimy and tasteless. I too can eat soup and also, weirdly, quiche! Sucking mints helps too oh and something the Oncologist told me was to get the Vit C tablets which are supposed to be disolved in water (they come in a long tube quite cheaply Tesco etc) and instead of disolving one in water just sit it on your tongue and let it fizz, it does help cut through the slimyness for a whilte. Lots of things have a horrible feel though, like coated in lard, I can’t taste potatoes at all and for me salty things don’t taste of much either, had dry roasted peanuts last night which didn’t taste of much at all, but still ate them as starving! I made a lovely shepherds pie too but I couldn’t taste it, mashed potatoe is vile at moment!! I think you still look lovely, I really miss cheese, my all time favourite food and that tastes of wall paper paste at present… although the mini marmite ones are passable. Chocolate is vile too… boo hoo, I should be losing weight, but still seem to be putting it on!!
I have managed to escape any aches and pains so far, but as I’ve only had 3 jabs as yet it may happen tomorrow, sleep still hit and miss too, hot sweats and steroids not great for that are they! Only other SE is my thumb feeling numb and tingly, are you getting that?
I keep saying I look like Dobby out of Harry Potter without my hair or Yoda from Star Wars which makes my family laugh, especially as the eyebrows are virtually gone and the eyelashes too, but the hair on head is coming back. We have to laugh don’t we otherwise what would we do…
Loving the Yoda,Kip.? The force is strong with this one ??. Love Dobby on Harry Potter too! Oh I’m glad I’m not the only one that thinks potatoes taste vile atm. I can’t do salty things, tomato things, potatoes and fruit juices actually feel like they burn my tounge. Been for a cancer care review at doctors this morning but was more of a update him on what is happening and now sat waiting to be picked up later for Doppler scan and oncology appointment. Have had tingles and aches in hands and feet but no numbness, did read that if you have that you need to tell the oncologist as it’s affecting nerves. Will check and get back to you. For me it’s hard because I have ibs lots of things set off my stomach, even more so during chemo. Would love to see if I can eat eggs, but I know I will be sat on the loo. Sleep is hit and miss here to and hot sweats increasing. Roll on a relative side effects free week ??? xx
T x6 over and done. On bus home now, via the shops where I’m going to pick myself up a sweet treat to eat and blame the steroids for my elevated blood sugars
Well done Sally, another ticked off… go enjoy the sweet stuff.
Lisa Marie - thanks for the info, my ONC said to let them know if it gets worse and they may drop the dose of the last T to try to alleviate the finger stuff. Its a strange feeling, nail feels like its been jammed in car door and the pad of my thumb feels like is stung by a stingy nettle. I’ll see how it goes over weekend and may call them on Monday… its just one thing after another. I found tinned macaroni cheese at lunchtime was bearable, didn’t taste of much but slipped down anyway…how I long for something salty and nice! Good luck with the appointments.
Well done Sally, have one for me! Sugar and sweet stuff sounds divine to me, may go hit the cookie dough ice cream myself later ?. Purely medicinal of course for my throat. Doppler showed no deep vein thrombosis how ever I seem to have small veins and he said that I may have flebitis? In superficial veins which is causing the dints and bruises in my arm and oncologist say I have mouth ulcers on tounge so now have flucloxaciline and a new mouth was made of 2 tablets called Caphosol 4 x per day. Referral is being made to radiation department now so appointment should be ready 4-6 after cycle 6 so still looking at finishing around Christmas. Kip this is the page on Macmillan about the nerve tingling, nails feel sore like trapped but nothing on finger pads as yet. macmillan.org.uk/cancerinformation/cancertreatment/treatmenttypes/chemotherapy/combinationregimen/fec-t.aspx Xx
I’ve just had a read of phlebitis and that sounds just like what I have in my chemo arm I the area I had the dvt. Unfortunately everything I read said to take aspirin or ibuprofen. I’m on clexane and it says I must not take aspirin or ibuprofen.
Hi Sally I’m going to have a read later when the step children are in bed. We are currently all curled up under a throw watching Wonder again. Great film if anyone looking for one to watch while recovering. The kids asked for pizza which tasted absolutely atrocious to me, so much so I ended up brushing me teeth and using mouthwash. On the up side though discovered another thing I can taste and eat and it’s delicious, so I need to share it with you ladies. Co-op is doing their own brand ice cream and we found cherry bakewell ice cream ??? it’s gorgeous! Xx
