Oh I’ve had the cherry bakewell ice cream. It’s lush as are their other flavours.
Your arm looks the same as mine. The photo doesnt show it but their is cording and a hard vein up the inside from elbow to wrist. I’ve just been told to massage it which I do with cream a couple of times a say.
Can’t really see it on those photos but I have a anchor shape bruise and a a few don’t just below my elbow all of which is quite tender to the touch xx
Dints *
Just below my elbow is where I had the main clot but was told there were quite a few small ones. Haven’t really got a rash bit there is a patch of redness which comes and goes.
Ladies, please speak to your teams about your veins, they will get you scanned for any blood clots, you will then have to do daily injections for that if you have one, quiet a few of us ended up on these daily injections because of blood clots, they see it all the time, so please keep safe and just get it checked by your teams for piece of mind. If you are ok and no clots, then one of those microwaveable bean heat pads help and also ibuprofen gel rubbed on, again check with your team before using ibuprofen, hope that helps ???
Shi xx
Shi,
I’m already on the clexane (for 2 months now) cos I did have one large and several small clots. I knew as soon as I got them and spent a nice 7 hours in A&E one night.
Shi, I had my Doppler scan yesterday, no clots but think I have phlebitis in superficial veins. No injections just heat and ibrufen gel for pain. Side effect from chemo so just got to grin and bare it for next 2 cycles and hope it improves afterward. Urge anyone to get themselves check though if they even the slightest bit concerned over any changes, it’s not worth the risk or the worry xx
Hi all, well day 7 of second T cycle and have to say this one not so bad as 1st. Finished injections last night and today was first morning i ached in legs, took paracetamol and thats really helped. Mouth still slimy with not much taste but no ulcers or sore throat yet! Fjnished steroids on Friday and havent experienced such a downer either, did fall out witn kids this morning and shed a few tears but not as bad as some cycles. Other thjng is numb thumb and forefinger, will call onc nurse tomorrow as they wanted to know if it got worse so they can adjust the dose of last T. Bjt worried whether thats ok to do but guesss they are the experts. Dont want permanent numb fingers. Anyone else having that?
Still trying to find food that tastes good, craving a roast dinner but cant be bothered to cook it when it will taste like carpet! Back to soup again i guess. Daughter just baked a chocolate, peanut butter and popcorn cake which looks and smells devine but im sure will taste like lard to me… Boo hoo… I am so gojng to eat when taste buds turn up!
Enjoy your day everyone
kip
Xxxxx
Hi Cdc,
I’m halfway through Taxol but I got my clots before it started, just the luck of the draw I suppose. I have been told by the oncology nurse that clots are more common with picc lines but I don’t have one of them either. I also don’t have tingly fingers or changed food tastes so it’s not a given. I’ve had no nausea either. I have one anti sickness tablet with the chemo but nothing apart from that. I have less steroids than on EC. Just one intravenous lot with the Taxol which is much better.
Thanks Sally That’s reassuring. Good to hear you’re halfway through and still relatively side effect free. Fingers crossed it stays that way. X
Hi CDC, the issue around dense breasts is worrying isn’t it. I was told at my mammogram that my tissue was dense due to being “young” so they had to do an ultrasound to see what was going on, I am concerned that in the future they will only offer mammograms as a check up? Do you know what they do? So sorry to hear about your cousin, but so glad she did go and get checked, its crazy how many young women are finding themselves in this position isn’t it. Whats happening with the world?
As for the T - I haven’t had any nausea with these ones, and I have heard several people say the same. I still get the anti-sickness ONdestron to take for 2 days and then I have the metrocolampide as and when stuff too, but have never had to take any of them. Although I have had the extra steroids I haven’t had such a downer this time, and the mouth hasn’t been to bad. See if you can get Fluxonole to take, I have one tablet a day to prevent mouth thrush and although I have limited taste and slimy tongue it has helped to take it as soon as the mouth started and not wait like last cycle. I also regullary swish with salt water and Difflam too, not sure if any of this helps but it seems to. I haven’t had any ulcers or anything. Yesterday I had achy legs, but manageable and took paracetomal and the tiredness hit last night, but actually although the side effects are there, they are ok, numb fingers worrying though as don’t want that to be permanent. I would say the first T cycle was definately harder but this time seems to be ok, day 8 now so hoping some taste may return shortly… now eating a “carpet” sausage roll! Still hungry.
Kip
x
I always need to just ask the important questions.
What’s a carpet sausage roll?
Lol, I thought it was a special way of making them 
CDC so glad you had such a good meeting with your new oncologist. I have to say that T didn’t make me feel sick at all. No Emend this time either. I also now have a light fuzz of hair on my head and may even need to sort my legs out soon. T does not seem to influence hair growth. Just be aware that you are likely to feel more fatigued. I have found even simple tasks quite exhausting!! Good luck with your T. I’m doing Life Kitchen in Wednesday so have pushed next chemo back to Thursday. Kxx
I had a positive meeting today with one of my oncologist’s registrars. She’d properly read my notes and knew all about my stay in hospital. Because of the severity of bone pain I had they will prescribe codiene and oralmorph as part of my take home meds on Wednesday. She’s also going to talk to the oncologist about my numb heels which might result in a reduced dose. She was interested in my view, that if at this stage of FEC we termed my recovery as 100%, then I feel that at this stage of T I’m only at 85-90%. Both DH and I came away happy.
Ive started taking anti-histamine tablets today in the hope it may help and salt water mouth washes too to keep my mouth as clear as possible.
Roll on Wednesday- am dreading it, but need to get it over and done with!
LJ
Hi LJ. Glad you too had a good experience with your oncologist. At the end of the day we just want someone to listen!
CDC the antihistamine won’t help with the pain. It reduces the chance of an allergic reaction. That is also why the steroids are ramped up at the start of the cycle. I was given a Piriton antihistamine infusion before my T. It made me quite sleepy and some people do dose off! If you get a rash or itchyness after your T it would be well worth taking antihistamine. Boots own is the same as Piriton. Hope it goes well today. Kxx
Hello,
CDC - that is such goods new that the new ONC was fab… makes a whole lot of difference when you get listened to! Interesting to hear about the dense tissue, I am definately going to find out if I can have MRIs in the future. I am so hoping you don’t get any sickness with the T, you’ve dealt with so much of that already. I haven’t had any so far, so fingers crossed for you, and I was warned about body pains etc, but so far, thats been minimal too, paracetomol twice a day for 2 days and it was fine. Today, I have the numb thumb issue and sore tongue, but even that is much better, no large whiteness and ulcers so hoping taste buds will reconnect sometime soon! I think the tiredness has accumulated over time, I guess you get used to not feeling 100% after a while, but the sleep was better last night. The big dose of steroids wasn’t great on first cycle but was ok this time round, I have 8 day before chemo, 8 day of and 8 day after and then 4 a day for 3 days… actually OH was painting the lounge all weekend so didn’t see him so that might have helped with the lack of fall out !!!:smileyvery-happy: And as for the hair, mine is definately thickening up so I would imagine your fluff won’t be going anywhere on the T either! Interestingly eyebrows departting and eyelashes too!
KIp
xx
KTK - glad you are doing ok! The tiredness makes things difficult though doesn’t it, but I’m still walking everyday… got to get that weight off somehow!
LJ - I have numb thumb but not feet, am going to find out if they are going to reduce the last dose for me too, I don’t want permanent numbness!
KIp
xx
There does appear to be some evidence that the active ingredient in Claritin (loradatine I believe) helps with the pain from the GSCF injections and also Herceptin. So as I’m having both of those I decided to give the anti histamine a whirl so that if it lessens those two things I might cope better with the T. Dunno if it’ll work though.
LJ
Antihistamines do reduce swelling, which can be a cause of pain so it makes sense that they relieve pain too. I doubt that taking more drugs can do you any harm. We are so full of chemicals we probably glow in the dark!!! Kx