Naughty_boob, you absolutely take that further, they have duty of care to you and that in my opinion is unacceptable to be spoken to like that. You need compassion, care, understanding and their help not to be spoken at like a naughty toddler. Sorry to read that. I’d go to the head of the department rather than to pals office. The head of department needs to hear how patients are being spoken to. Not acceptable at all in my opinion 
Shi xx
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Thanks @Shi . My husband suggested I talk to the consultant’s secretary. I wasn’t the first to have an issue with them. She escalated to her managers and head of booking team.
My consultant was ill and no responding to emails, so she emailed another member of the team, who called at lunch time today. Unfortunately I have to go to the outreach clinic tomorrow or no chemo. I’m only just over 1 week out of hospital and only had 1 chemo since so should have been at the main site. My bloods have improved so she reassured me it would be ok at the outreach. I stilll have concerns considering wha5 happened last time, but I don’t have a choice!
Hopefully this escalation will prevent others being treated in this way.
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Naughty_boob sending you positive 
for tomorrow and hopefully you have a better experience and usually the consultants pa’s are an amazing resource of help and experience and will assist you with kindness and compassion you raising will hopefully ensure you and others are treated with more compassion and respect Shi xx
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Hi @naughty_boob ,
So sorry I’ve not been in contact. Where are you up to with your treatment now? Did the raised lump on your PICC line site go down? I hope you’ve been able to spend some good time with your family. Sending you loads of love xxx
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Hi @Geo23
I’ve just had 10/12 Paclitaxel, I had a couple of weeks off as I had a temperature that wouldn’t go away. I’ve found that I have 3 bad days and 2 good days and then I’m back in the chair. I shall be so glad when it’s all finished, 2 more to go. Radiotherapy planned and booked for 10 January so hopefully have a good recovery time and nice Christmas.
Thanks for asking. How are you? 
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So I’ve had 10/12 Paclitaxel today at out reach site and it went well. But overheard nurse saying they’d had several people have their app change by booking team. I called one of them over who was on the ward last week and explained what had hall to me, she said she saw on the notes. I advised her that the booking team were saying g the nurse shouldn’t have given me the appointment last week, she said she’d stick up for the nurse( I named her to the nurse) as I feel they need to know what the booking team are saying.
I the got given next weeks appointment in a hospital 40miles from home which could take 3/4 hours in the car, never been there before so need to find parking and ward. I was 6 hours today as there was a delay starting and some issues with timings of arrivals etc. I tried to phone booking when travelling home for over 20 minutes and it just said they weren’t available. The nurse I spoke to on the ward had advised there was a concern/complaint dept I could contact as they need to know what is going on.
I phoned and they said somebody would call back. They called back 3:30 and agreed to should be travelling that far and past two other cancer centres to get there. I said I was considering stopping treatment as this is so much hassle and shouldn’t have to deal with this. He assured me that he would get my next 2 appointments so I could finish my treatment.
He said that the management of the booking was moving to him from tomorrow and was aware there were issues especially relating to geographical locations. I feel better for speaking to him, I admitted I am a worrier and will wake up and ponder the situation which is not good when I need to sleep. He said he called tomorrow or Monday with appointments. I shall try and put to the back of my head and be ready for the weekly side effects.
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Really hoping and keeping fingers crossed you get those next treatments booked. Hope side effects are not too bad. Keep us posted.
Xxxx
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Happy weekends I hope! How are you all doing?
@naughty_boob hope things are smoother?
I’ve just had immunotherapy on its own for the first time. Weird being in chemo unit knowing that I have finished - at least for now.
Xxx
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Hi @rachel60
They managed to get me a cancelled appointment this week and the side effects are starts kick in.
Unfnext week it’s at the farthest centre again and I have my Herceptin injection which adds to the time and the PICC line should be being removed as well which is another 20/30 minutes. They booked 1pm to finish at 5:15 not allowing for PICC removal. Also the bell to ring is in the main centre in Cardiff so they have removed my choice to do this on my last chemotherapy ( even if it’s not the last treatment- maybe that’s when I should ring it? )
I have clinic in Tuesday so am not going to stress now and will ask then and hope there is another cancellation.
Have an ultrasound on my liver next Wednesday after my iffy blood results, Nil by Mouth for 6 hours before. Not so great when you need to be hydrated with chemotherapy!
Was you immunotherapy via a drip? Was it quicker than chemotherapy? I’ve seen so many people come in for an hour and go and I stuck there for 5 hours.
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Hi all, hope you are doing okay - I had my lumpectomy on Tuesday. Stayed overnight and was discharged the next day. Feel very tired but okay. Im making sure to do my physio exercises x
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Great news jess that you can tick that box! Hope recovery is good and early days but you get the movement back. Are you having radiotherapy? X
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You made me laugh, spending 30 minutes flirting!
I think the other therapies being given like immunotherapy and Zolendronic acid infusion ( that I’m due next year) are being done in chemo units where they probably need new unit for the other treatments. But I’d it’s anything like our centres they don’t have enough staff to run another unit.
I bet it can be quite triggering when you finished chemo and then back in the chair, my Zolendronic acid is due April, 3 months after chemo and I would rather have it anywhere than a chemo chair, maybe I could go into a doctors office!
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Yes feeling happy to get it ticked off! I am meant to be having 15 sessions of radiotherapy 4-8 weeks after my op. I know some people only have 5 sessions, so will ask my onc why I need 15… Best of luck for your surgery Rachel, is it in the new year? X
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Hi @Jess_1
Glad it all went well. Take the painkillers they gave you ( probably codeine but you may get constipation so taken Senna or Lactulose). Take your time to recover it is major surgery even for day case. Also some incisions can be quite deep, one of mine was near the chest wall and there is a lot of time needed to fully heal.
I think I’ve mentioned before that www.pennybrohn.org.uk doa monthly scar workshop. 3 sessions over 3 months, intro, manual manipulation from 6 weeks ( very gentle) and emotional aspects of dealing with scars. Next into is January 2024.
When outer wound/scar healed, I would recommend bio oil or Ren Gen oil ( recommended by cancer hair care for a fraction of the cost £2.90 said in Primark and online) I used bio oil even though some say it contains nasties ( petrol derived chemicals) when I had radiotherapy planning they were impressed by how much my scars had heal. Penny Brohn lady recommends Rosehip oil. For someone with allergies especially to essential oils and fragrance the petrol derived stuff works better for me and most dermatologists recommend and prescribe. Eczema medication is all based on man made ingredients.
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Great you are through it. My op is on 2nd. Lumpectomy. Fingers crossed all goes smoothly!
Keep healing well and look how far you have come. Xxx
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Naughty_boob what day is your last chemo and we can 
with you Shi xx
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14 December
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Well naughty_boob once you put some up we will all join in 
with you on 14th and then when you get near the bell at Cardiff you can do again but even if it’s virtual on here with us you ring it on 14th Shi xx
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Pressed reply but managed to delete! Oops. Just wanted to say will be thinking about you on 14th! Bring it on and hope it goes smoothly and you get to ring the bell! X
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Good luck tomorrow! Thinking of you x
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