So good to hear you are through radiation. Not surprised that was emotional. Hope you had a good holiday too before that part started.
I still measure my spoonfuls thanks to your early advice and it helps me to take each day at a good pace. Smoothies, walking, yoga, meditation all help. Hoping the next 3 EC follow a similar pattern… and then a break for op and radiation.
Enjoy these days and hope your strength grows.
Xxx
Hi
Glad to hear to radiotherapy is completed and your ‘active’ treatment has completed. It must be emotional.
Did anybody get given any information about what you should and shouldn’t eat on Chemotherapy. What is best for nausea or diarrhoea etc?
I have a diary to complete and inside it states you could be given a leaflet about food safety. Somebody mentioned that I would be given an introduction on my first chemotherapy but really it was this is your drug are you happy to go ahead and do you have any questions.
Read about raw foods especially fruit and salad as well as under cooked eggs. I’ve found a charity called Penny Brohn who have an online session about eating well with cancer so I’ve signed up for next week. Don’t want to increase chances about getting infection from food.
@naughty_boob fairly certain that among the leaflets on the drugs they use there was a general chemotherapy guide I was given which does mention foods. Its things like no grapefruit (interferes with the drugs) and no probiotics, unpasteurised foods (could cause infection).
@Beeza66 I hope youre doing alright now after your reaction to the last treatment.
No Brie or soft cheeses too 
ring the nurses on here and check, my onc didn’t want me in turmeric or any herbs stuff too during chemo, so I followed my oncs instructions to the letter 
Shi xx
No turmeric ? I was just told no grapefruit or prebiotic (live) yoghurts by my onc
Thanks feel great today (though chucking up straight after the Docetaxel in hospital) but slept well night after chemo and think steroids made me wake at 6am and eat three pieces of toast! Been pretty manic all day with a good appetite and no nausea! No tingling fingers yet either just one lonesome mouth ulcer! Still got most of my hair due to cold cap too!
Great! Hope you have turned the corner. Good you can eat.
I’m on second day after steroids following EC last Tuesday.
Yesterday still nausea, but today that has eased alot and just zero energy. A sofa day and hope I get another spoonful of energy tomorrow. Because today I’m empty!
Is this normal?
Xx
It’s normal. Hopefully your nausea will go after second day of EC. Tiredness is normal but I found I had more energy after the steroids.
Thanks! I finished steroids on Friday. Today is a bit fatigue day but hoping I get some energy soon!
Pleased you are doing ok. We keep strong don’t we!
Xxx
I also avoided raw vegetables, eggs (unless boiled), undercooked meat. And I was told to stop all supplements (vit C, omega3, etc) until the end of radiotherapy.
Thanks to everyone who responded regarding foods to avoid. Will be phoning breast cancer now nurse to clarify.
@shittytitty83 @Florence_87 and @Geo23 @diesel How are you? I haven’t seen you post for a while.
I think someone mentioned they had acne rash after their chemotherapy. I have developed 5 rather large whiteheads and one deep under the skin. Contacted helpline who want GP to loo at it. I have very reactive skin but seen nothing like this in years. I had been on Epiduo (Adapalene with benzoyl peroxide) and later Adapalene alone (manmade retinol) on prescription) but advised to put this to the side while on treatment.
Anyone else going to the toilet loads especially in the night. I didn’t sleep more than two hours per night until I took a sleeping pill last night and only woke up twice.
Hi @Artylady
Have you finished your chemotherapy? How are you doing?
As you were weekly Paclitaxel, how many ‘good’ days did you have in a week? I’ve just had my first felt awful 3 days, just felt better then UTI, antibiotics upset stomach and added nausea. There isn’t much information about how weekly cycles work.
Hi naughty_boob, nice to hear from you, I was just thinking of adding something to the June starters comments. I finished my 12 weeks of Paclitaxol two weeks ago, but now I’m on to three weekly Herceptin injections, and I had one of those last week.
My weeks went a bit like yours - are you having pre meds as well? I had those for the first eight weeks then they decided I would be ok without, which was when I realised the pre meds were what made me feel incredibly sleepy, so that was a bit better once they stopped. But yes- 3 days feeling really rough( upset stomach, exhausted, achey) then slow feeling a bit less tired though usually diarrhoea on the Tuesday for some reason, and by Wednesday feel almost normal, then I had the Paclitaxol again on Thursday! And I did find that the rough feeling lasted a bit longer each week, which was very wearing. Add to that a bad rash on my face for the middle cycles, and a runny nose with occasional nosebleeds, which are still happening.oh, and by about the eighth week I was getting tingling fingers and a bit of numbness in my feet, so they reduced my dosage by 20%, but that has continued. I’m really hoping that it will start coming back to normal feeling again now that I’ve stopped the Paclitaxol.
So, it’s been a bit of a journey as they say, though I know not as bad as many people have. I had my mastectomy in March, so at least I don’t have any more surgery to come. I really feel that you have to take one day at a time and listen to your body. I’m lucky that I’m retired and on my own so if I just felt like lying on the sofa dozing and reading all day that’s what I could do. It might have been nice to have someone here to cook the occasional meal though! Oh, and my tastebuds have been all a bit odd, too, so I’ve been eating too many sweet things which I could taste rather than healthier stuff which I couldn’t, so I’ll have to lose some weight soon. I hope you manage to get away lightly with your side effects- do take the nausea medicine they give you, as soon as you feel dodgy, it definitely helps, and the same goes for diarrhoea stuff.
Did you say you’re having 12 sessions too? It seemed to be forever when I started but not too bad now, looking back. I was just starting to feel very fed up with everything by about the 10th week! And now I’m impatient to get my energy back, and my hair too. And waiting to see if the Herceptin has any particular side effects, which I guess will be more obvious once the Paclitaxol has come out of my system. I’m seeing my oncologist tomorrow so will see what she says. I’ve had a cough for the last three weeks which doesn’t help!
I’m thinking of you- hang on in there, the end will surely be worth it. Xx
So nice to hear from you. I’m on Herceptin too, so every three weeks is a longer session.
I wish the premeds made me sleepy, I didn’t have a ‘good’ nights sleep until Sunday (treatment Thursday like you) and had to take sleeping tablet! Side effects seem similar without tingling apart from funny tingle in big toes on day 2 only. I’m signed off work as I cover teachers in a primary school and mix with over 120 children who have all the germs and viruses which I need to avoid. I do doze a bit in the day but try not to after 4pm so I can sleep better at night.
Down side of Thursday treatment is 12 weeks of feeling poorly for the weekend which is when we normally visit our children. Bu they it won’t last forever.
Hello all!
Well my Docetaxel experience.
While I was having chemo I could feel all my fillings and crowns - my teeth became super sensitive.
I vomited twice immediately after treatment while still at hospital.
I felt fine over the weekend - took eldest to university digs and thought all good.
Sunday night I had terrible diarrhoea. I hardly slept. Monday and Tuesday I was exhausted and weak.
On wed I noticed some vaginal infection (maybe thrush) which is bringing me down, I’m waiting to see the doctor,
Yesterday my diarrhoea was so bad I couldn’t get to the loo in time. So embarrassing.
Naturally trying to keep positive but I’m
Being tested right now.
Any tips for diarrhoea ?
Hugs to all.
Hey @Beeza66, sorry to hear you are feeling rubbish! I hope it passes soon. I also had really painful teeth (with EC chemo, was a weird side effect). I’m on paclitaxel but the side effect profile is similar to docletaxol I believe, my team prescribed me imodium before they even gave me the drug as they said it is a very common side effect - worth giving your team a call and then popping to the chemist if they say it’s okay. Avoid high fibre foods and keep your fluids up as you will be losing water xx
Thanks for your reply @Jess_1
I’ve also got a streaming nose !!
Yes, white rice perhaps for the diarrhoea
and no fruit or brown bread! Loads of water but can’t give up my one comfort (after giving up cigarettes and alcohol when i was diagnosed) COFFEE!!
So sorry you are having a rough time. Its just ruthless sometimes
I stuck with a really bland diet of apple sauce, rice, potatoes, bananas just to settle my stomach. Plus Imodium which my nurse said would become my best friend
I was an espresso drinker and have gone off it. But I still dream of a double shot!
Hope it eases soon.
Hug x