June 2023 Chemo Starters

@Beeza66
Oh yes diarrhoea has been bad on Docetaxel, I know exactly what you’re experiencing! Small meals and immodium are helping, but generally very achy.

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I wasn’t prescribed or told about Imodium?

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Hi

I’m on Paclitaxel like @Jess_1 and have just had my second. Diarrhoea on both occasions 3/4 times in a few hours. Got Imodium or Loperamide (diarrhoea relief tablets in chemist and supermarkets about £1 a pack much cheaper than Imodium) but your team or GP can prescribe aswell depending if you have to pay for prescriptions. In Wales prescriptions are free. Next clinic I was going to ask if I could taken them before the diarrhoea starts to prevent it happening.

I also had a UTI ( urine infection) last week and the chemo nurse thinks it was caused by dehydration after the diarrhoea, so make sure you keep your fluids up. Check what you’re eating, dry foods like toast help to stop it whereas Pears can make it worse. I did a www.Penny Brohn.org.uk free online course about eating well with cancer and it was helpful. They do have course while having active treatment but they are on a Thursday which is my weekly chemo day.

Take care.:smiling_face_with_three_hearts:

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:heart:up you carbs and Imodium :heart: let your team know about the diarrhoea and the thrush, they may prescribe something :heart:docetaxol can cause :tornado:bum and even if you could sprint quicker tho Usain Bolt it wouldn’t matter. Hope Imodium and upping carbs helps :crossed_fingers::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Thanks for the free online course Info @naughty_boob - I’m going to book it also.
Got a pessary and canesten cream from GP and so far it seems to be helping the thrush.
Will ask my breast care nurse about Immodium as diarrhoea is still there and very unpleasant.
Trying to keep positive.

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So ladies, how are we all doing?

Is anyone coming to the end of their chemo journey? I only have one more docetaxel on Monday and I’m so thankful to have gotten this far after my June start.

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That is great news @Cali . I’m having cycle 2 of EC next week and then two more but 3 weeks apart. So bit longer but I can see bit of light at end of tunnel. Hoping time goes quickly!

What’s next for you. Op? Or done?

X

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Hi @Cali I had my last Paclitaxol three weeks ago, just on Herceptin injections every 3 weeks and Letrozole now. My energy levels are definitely improving which is great. Just waiting for hair to grow back and neuropathy in my hands and feet to wear off, tho apparently that can take some months. And I have an annoying cough which doesn’t seem to want to go away- bit I feel so much better than I did! Keep strong ladies!:boom:

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Hi ladies @Shi @naughty_boob @Artylady @rachel60 thank you for sharing your experience, I am in September group, so only at the beginning of the treatment, but I am grateful to read all your experiences with the treatment, make to me more easy all this new situation.
Hopefully you are doing well and your journey end soon. Please keep posting here .
I am on 2 cycle Ec, 2 left and then I will start 4 Paclitaxel, I am a bit worried about paclitaxel but all tips and experience you have please let me know.
All my best wishes and lots of health. :sparkling_heart::two_hearts::gift_heart:

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Hi @Camy_Radika good luck with your treatment- I had 12 weeks of Paclitaxol and found it quite hard but hopefully if you’re not having as many you won’t feel the side effects so much. Just take each day as it comes and rest if you feel you need to, though gentle exercises or a walk can lift your spirits even if you don’t think it will!! We’re all here for you xx

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Hi all 3rd Paclitaxel today and within half an hour I began to feel sick. I called over and go offered a sick bowl. The I was physically sick. I was in an outreach centre from Velindre Cancer Centre that was nurse led, no doctors for SACT. They tried to get a doctor on the phone from Velindre to agree to give me anti sickness intravenously, that didn’t work, so walked into the nearby outpatients to see if a doctor could prescribe, no one available. Eventually after 20 minutes or more they got someone on the phone at Velindre and they agreed I could have anti sickness. By this time I’d been sick again. They had stopped my treatment and given iv piriton and hydrocortisone. As this was outreach with no doctors they were unable to restart my treatment. I have a history of allergies and feel I should never have been sent to an outreach. I felt unwell for 1 1/2 hours.

I had the cold cap on and didn’t feel cold at all this time, which I should have thought was odd as past two weeks I had to have a blanket to keep warm. They commented that I looked warm and flushed in the face.

They advised that the next two treatment will be in Velindre and that I will be prescribed medication to take before and after to help with the allergy. I have a clinic appointment next Tuesday and will be pushing for all treatment in Velindre as I don’t want this to happen again. Not just the sickness but the stopping of treatment.

Back with piriton tablets to take for next three days.

Anybody else had issues with allergic reactions? How was it handled?

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Hey @naughty_boob, sorry to hear about your reaction. My onc said 2 or 3 out of 10 women have a reaction to paclitaxol. I am on weekly paclitaxol aswell and on my 4th dose I had an allergic reaction. It was a coughing fit and my throat felt like it was closing, they stopped the infusion and gave me IV piriton and hydrocortisone like you had. They said if I had a milder reaction, they sometimes try the next week running the infusion at a slower rate with more pre-med drugs. But they decided to change my drug from paclitaxol to abraxane, I’ve had 3 abraxane treatments now and no reaction. My oncologist said it’s just as good as treating the cancer. Let us know how you get on xx

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I had a reaction on 2nd docetaxol. When I saw oncologist they offered abraxane or back on fec for my 6th and final chemo back in 2018 so I had another fec. So I had 3 fec, 2 docetaxol and then 1 more fec and I was tnbc. Your teams have seen it all before and know what to do, push to have your treatments at main site after what’s happened :heart: think your amazing btw :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Ah dear, I am so sorry you had all this experiences, hopefully you will manage well next time. Take care :kissing_heart:

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I finished chemo in 2018 :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Poor you. Hope you are recovering. I had 3 Paclitaxel and then an allergic reaction. They treated me the following week with pre meds but same thing. So I got switched to Abraxane which was fine.

Hope you get thix sorted soon

X

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@naughty_boob how are you doing? Hope things improving.

@minty1 how ‘s my fellow EC warrior. Hope you are doing ok.

Happy weekends to all x

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Thanks for asking. Feeling better. Less side effects today as I only had half the Paclitaxel.

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Are you doing ok :heart: you are always so kind asking after everyone :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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How is everyone this Sunday Morning? :smiling_face_with_three_hearts:

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