Happy birthday. 
1 Like
Hereās a question for you all. Has anyone noticed that theyāre getting spotty? Iām really spotty on my nose and under my boobs. Not sure if I should be concerned. Iām awful with spots as I love a good pick but canāt in case I cause infection. Any advice out there?
Also, when did people shave their heads and where is it normal to lose hair first? Thanks everyone. Xx
@donna_51 Happy birthday! I completely missed your message above, Murder Trial Live sounds fun!
@wjs Sorry to hear about your cancelled round 2 
I hope your friend have something nice planned! Its so important to keep your spirits up, despite how hard it is! Good on you for ordering the wigs, some retail therapy never hurt. All the hugs to you.
@ljlj Nope you werenāt remembering wrong! I had an A&E trip 3 days after my first chemo session. So thatās 2 hospital trips between chemo #1 and #2 and both were temperature related! The last hospital visit my infection marker was higher than normal, but they were unable to determine what infection I got so they just dosed me with a broad-spectrum antibiotic which did the trick in stabilising my temperature. Fingers crossed I stay out the hospital after next chemo.
@alig1961 Highly recommend pimple patches. Iām a terrible pimple picker too and I find myself tapping the patches instead of picking them so give these a try! Iāve not noticed extra spots so farā¦
On a hair update, my scalp have started to feel tight, as if Iāve put it in a tight bun for too long. People said thatās the sign that a big shed is happening Definitely noticed more hair falling out today than usualā¦
2 Likes
Hi @donna_51
Same day 18 and the hair started to gently come out. I was looking forward to washing my hair after a week only to find the shower tray and me covered! No one else would know but I know! I hardly touch it to keep it as long as possible. Iām going to have to wash it today and be super careful. Itās scary to lose it all. Iāve got a wig in preparation but I donāt want to get it out yetā¦ round 2 on Monday and itās bound to make it worse.
Good luck with yours ā¦. Letās hope it goes sort of gracefully - my son says āown it mum!ā Letās see how that goes.
Take care x
2 Likes
Well done Donna. It isnāt easy. Birthday this year sucks - mine too in a few weeks and will defo have lost my hair.
Youāre doing great ā¦ keep going and we will pop out the other side stronger - thatās what Iām telling myself even though some days are flipping awful. Hubby going to a concert on Sunday - taking his daughter now as Iām advised not to go - I bought it for us as his Xmas present - oh well!
Sending hugs 
3 Likes
@collywobbles ā¦ it sucks doesnāt it? Iāve had to cancel so many things this year due to everything and itās hard. Treat yourself to a lovely cup of tea and rom com whilst your hubby is out instead 
small things!!
I did actually make it out last night with my pink wig ā¦ I felt silly and thought everyone could see I was a CANCER patient but no one batted an eyelid ! It was just great to actually forget about BC even for a few hours (you have to concentrate on the murder trial so I had to focus which felt good!) ā¦ see pic ā¦ real smiles from me and my hubby for a change.
Oh the hair ā¦ I do think this would be sooooo much easier if we didnāt lose our hair. Even having one breast is easier than my hair falling out. I donāt look in the mirror most days but one of my boys will say āthereās another bald bitā which makes it real. But my 14 year old did say a while back ābetter to be bald than deadā which made me laugh and helped me accept it a bit more. I love the āowning itā messageā¦ easier said than done but kids often see things differently donāt they?
Hang on in there team June ā¦ Iām hoping one day in 2025 we can all meet and show off our newly grown hair and this will all be in the past xxx
9 Likes
Fabuuuulous!! You look super!!
Kids keep you sane, realistic and make you smile even though mine is now 37! I used to say to him - doesnāt matter how many times you get knocked down, itās how quick you get back up! Guess whoās saying it now 
.
Keep going ā¦. Baby steps ā¦ weāve got this!
Enjoy your weekend @donna_51 - youāre doing great!!
You look fab. Iām so glad you enjoyed the evening. Well done. I think Iām going to try a pink Bob wig after seeing your picture. Itās an opportunity to try something new. Thank you.
Good luck for next chemo session - letās hope we donāt have to go back between treatments. Take care and sending hugs @akioqey
2 Likes
@charlie22 - Iāve just had my second round of EC and i have found its hit me harder than the 1st. Really bad migraine / sicky feeling. But Iāve only one more EC to go & then Iāll move onto weekly P.
Hoping for a better day today!
Belated Happy Birthday @donna_51 !!
Have a lovely sunday xx
2 Likes
Hi everyone. I have only just got my head together to post on here although I had my first chemo on 17th June, so sorry that I havenāt managed to catch up with who everyone is. I have ER + HER2 + grade 3 BC with 3 lymph nodes involved. Because of the size of one of the nodes Iām having chemotherapy first - 3 x ER 3 weekly and then 3 x Docetaxel. Then Iāll have surgery and radiotherapy 
I cold capped and until day 18 had lost no hair. Over the last 3 days I have had some hair loss but not so youād notice. I have been stressed about whether the cap will work and have considered stopping it so Iād have certainty about the hair but have decided to do it again for my second treatment tomorrow.
My main problem with the first treatment was severe abdominal cramps and diarrhoea- sorry TMI - from day 5 for 4 days. I couldnāt eat without having awful pain. I ended up being admitted to hospital - nightmare. Anyway, Iāve seen the Oncologist and we have a plan for this treatment if it happens again as Iāve said that thereās no way Iām going into A and E again. Apart from that it wasnt too bad - tired, reasonably brain dead, no sickness, bit itchy etcā¦
Love to everyone
5 Likes
@donna_51 Happy belated birthday!! Sorry itās late ā¦ Hope youāve had a good one ā¦ well as good as can be right now?!
Hi everyone ā¦ sorry been MIA last few days ā¦ hit a bit of a low as the hair shed was unreal and then shaved it all yesterday!!
Iāve come to terms with it a bit now and have actually braved taking my toddler out for the day and doing the food shopping in my au natural state 
ā¦ with extra make up mind!! 
Had my CT scan this morning so fingers crossed for results soon. And tonight Iām hoping for some decent sleep ā¦ Iāve had 6 hours ish in two nights 
Iāve missed so many messages but I hope everyone is doing ok? Xxx
12 Likes
You looking amazing @charlie22. Fingers crossed for sleep and scan. 
Iām still awaiting the big shed. I hope to go away next weekend just in the campervan but not sure if I should shave before I go. 2nd chemo is 17th. Itās weird but Iām hoping that the shed happens before Friday so I know what to do. Itās lovely to see more pics as itās nice to put faces to names. Well done you. Xx
1 Like
@charlie22 Wow you look fab! Iām sure it was a hard decision so well done you!
2nd EC today, my oncologist said heās giving me a new anti sickness as a pre-infusion instead of a pill so fingers crossed it will work better this time. Hair shed is unreal though, luckily itās falling out evenly but my god its everywhere and the loose strands are constantly tickling my chest and back! My husband claims I shed as much as a golden retriever but we donāt have a dog to compare haha! Maybe to compare we should get a dog.
3 Likes
Just popping here to say that Iām due to start chemo this month. I donāt think I can be bothered with cold capping and I hope I look 1/10th as stunning as you do when I have to brave the head shave! 
2 Likes
You really do look beautiful
1 Like
Welcome @pat and @kellzh ā¦ lots of support here no matter what stage, what age or what treatment! Weāre all going through this together
@charlie22 you look amazing!!! Well done for going out and rocking the look. Iām still very much with my baseball cap when out and about casually but maybe Iāll get braver.
My Labrador she sheds hair A LOT so perhaps a competition going on , ha ha
Hope everyone else doing as well as you can xx
3 Likes
You look beautiful! Hope your CT scan went ok and the results are back quickly.
@akioqey hope your chemo has gone well today and the new anti sickness meds do the job.
For anyone else having treatment this week I wish you well and that the side effects are kind to us all.
x
4 Likes
@pat if youāre doing docetaxel and considering foregoing the cold cap, please read up on the risks of pCIA (persistent chemo induced alopecia), specifically with docetaxel. I think itās something that a lot of oncologists tend to gloss over because it hasnāt been studied enough but there is a decent sized community of people who have experienced it as a side effect and the only proven way to bring down your risk is to cold cap.
https://www.aheadofourtime.org/ is a good place to start.
You might decide that youāre okay with assuming that risk, but I wanted to make sure you were at least allowed to make an educated decision.