Hi @nelly1 you have done it right! Great to have another in the June team (although ideally none of us would be here but you know what I mean!). Welcome aboard!
I had my second EC yesterday and I did need a nausea tablet before bed and gaviscon in the night but otherwise I think I am ok for now, but I know it won’t last . Today I must wash my hair so I might give it a comb / rub outside first to minimise drain blocking! When does leg hair fall out? That would be a welcome side effect for a change!
One more EC for me in 3 weeks time, then Docetaxel x3. 2/6
Oh the nurse told me the anti-sickness capsule before the chemo starts costs £750 each!!! I asked about having the one-time pegfilgrastim jab instead of the 5 filgrastim due to my anxiety over jabs but the NHS trust doesn’t offer it, I did look that one up and it is £££ so at least I know it’s not an option and I decided I just need to be braver! Story of our 2025 isn’t it? . X
Thanks! I wish I’d joined earlier but brain can’t take in too much at the moment and it slipped my mind.
I hope your sickness isn’t too bad (preferably non existent!).
I have three days of anti sickness tablets after each cycle, and steroids, then cyclizine/Dom Peridone as and when needed. I’ve stocked up on ginger biscuits and ginger cordial. I was really bad last time and lost a bit of confidence in my ability to cope. The difficulty is keeping tablets down when you feel nauseous…
I had a rough rough night, i think its the fil injections, i feel like im burning and the insomnia and pain in my jaw and legs, i am grateful today that i dont have a high temp.
Any tips my fingers are sore too, my body aches, i know they say to ring the number about side effects but i feel silly doing so.
Welcome @nelly1, it sounds like we’re on the same treatment plan but I’m a week or so behind you. Sorry to hear that no. 2 has been much tougher for you. At least the end of EC is in sight. Do you have another type of chemo after that or is that it for chemo? @runnerjen, it’s awesome that you love your pixie cut so much. I haven’t been brave enough to get my hair chopped yet but it’s really coming out now so should probably book in with my hairdresser… @trix1 I’d definitely call the helpline as hopefully they’ll be able to make you more comfortable. The insomnia is getting to me too-I’m doing everything possible to promote sleep but just can’t seem to sleep through and for the first time am getting hot flushes in the night (probably thanks to the zoladex injections). Thank goodness we’re not still having a heatwave as I think that’d tip me over the edge!
Hi I’m going on to nine weekly sessions of paclitaxel after this last EC next week. I’m currently researching nail oils because my nails are looking dodgy, yellowy and with some bruising underneath, and scalp oil if there’s a chance it might encourage regrowth. Any recommendations welcome!
I was watching a video by the Cancer Hair Care charity yesterday. They recommend rosemary oil-based products for promoting regrowth but not until after you’ve finished chemo as apparently you can develop a real aversion to the strong smell otherwise. She has a recipe for making your own scalp oil plus recommendations for products that you can buy.
Another vote for polybalm here-my nails look better than pre-chemo (though I’m aware it’s early days).
I’ve just washed my hair in the back garden! So much was coming out just running my hands through I couldn’t face the mess in the shower! It’s getting thinner by the day now, at least I have some head coverings sorted now.
I’m sorry for those feeling crappy. I have found the helpline at Norwich very helpful a couple of times. I think they would rather you call than leave it and suffer and struggle by yourself.
For nausea I have the domperidone to take as needed but the steroids seemed to cure it last time and I started them this morning. Fingers crossed they work well again this time. You never know how you will be which is scary.
Hi @nelly1 - welcome to the group though of course I’m sorry that you have had to join
I also love my short do @runnerjen - well at least I did when it was all even for a few days…now its all patchy! Who mentioned a few weeks ago about the prickely / strange feeling on their head as the hair started shedding more? I totaly understand what you mean now! Ouch!
How are you now @trix1 ? Don’t feel silly ringing the number. They are there to hear and hopefully help with any side effects that we are having.
Oh warm fuzzies I just read this. I’m so sorry. I just had ec3 yesterday, I know exactly what you mean with the sore head, my daughter gave me her silk pillowcase and it’s a lot nicer and doesn’t get as hairy in the morning.
My loss is very patchy, I had it cut into a pixie just before it started to drop out as you described and I have a straggly fringe which is holding up well ish. I’m going to shave it as soon as I feel well enough after this course and before my head gets sore again - but it has been tougher than I expected to cope with. I hope you are feeling better now x
I got my pixie wig n Monday for son’s graduation on Wednesday, it’s synthetic because I don’t feel I’ll wear it very often, I think it was £175- £60 thank you nhs, but I was very happy to have it- from adderans? Nottingham it’s a stimulate hair design but I’ve cut the tags out now so unsure of what design- we call it lottie, after pixie Lott
Hope you find something you like xx
A friend of mine who went through this 18 months ago gave me top tip of dark nail varnish. I have just had my 3 rd EC and will be going on to docetaxel next, but so far nails have never been better - I know famous last words… every day another symptom!
This is good to know! I’ve just had my fourth EC and moving on to docetaxel. I’ve just bought polybalm which is really lovely & my nails feel great, but like every little chemo symptom related product it was expensive.
There’s a product on Amazon that’s got the same ingredients as polybalm but the fraction of the price. I’ve been using it all the way through and to date I have been ok with my nails x
That sounds good, what’s it called? just looked on Amazon and there’s som many different products it’s confusing. I’ve been using clear nail polish whilst on EC but think I might need to up my game for docetaxel .
. Today I must wash my hair so I might give it a comb / rub outside first to minimise drain blocking! When does leg hair fall out? That would be a welcome side effect for a change! 
. X
I’m also using a silk pillowcase and it’s really comfortable and doesn’t pull at what’s left of my hair!
just looked on Amazon and there’s som many different products it’s confusing. I’ve been using clear nail polish whilst on EC but think I might need to up my game for docetaxel .