How’s everyone doing?
Day 3 of EC and fatigue has hit. I’m so tired but I can’t sleep long as the hot flushes wake me up.
No sickness or nausea at all and food tastes good.
Taken laxatives today as no movement since weds, probably should have taken some yesterday but I’m sure that’ll sort me out.
Hope you’re all having a restful weekend and managing the side effects xx
The 2 laxatives worked after apox 6hrs for me, It says take at night but couldnt wait so took the midday, as i knew i wasnt going anywhere. Thats the same timescale i waited before doing something. x
That’s good to know, yesterday seemed too soon but timing is right today. Sleeping with hot flushes every 30 mins seemed enough if a challenge without adding in tummy ache too.
I’m not going anywhere for a week at least I think, lots of rest needed.
This forum is so good to know what to expect and how to deal with it. I’m so glad you’re all here xx
Same for me.
Extreme fatigue hit Day 4 & 5. I started to improve from day 6.
Been managing constipation with laxatives.
Now on day 13. Feeling good. Get tired easily but that’s to be expected.
Ready to go again on Monday. Fingers crossed it’s easier to manage now i know what’s coming.
Hope you’re ok. I found day 5/6 is when it hit me hard then around day 10 it lifted on EC. Keep a diary of your symptoms as I found each cycle followed the same pattern. Drink lots of water and rest. I’m now about to start week 14, it’s hard but there is light at the end of the tunnel x
I’m day 4 after EC and feeling a bit brighter today although more fatigued. Last day of steroids today so expecting more fatigue tomorrow.
Headache is lifting so thats a bonus!
No change in taste or nausea.
Hopefully improve now until second zap of chemo!
Hope everyone else is feeling ok
I’m reading all these as I am supposed to start chemo on Friday 20th. I still have a wound that’s not healed up yet so I’ll find out for sure on Monday or Tuesday. I’m due 6 cycles, 3 EC and 3 docetaxel. I’m trying hard to be positive and brave, reading your posts is helping with that! In a way I just want to crack on with it, but I’m scared that if they go ahead it might hinder this wound healing up and it’s been a long time already - at 6 weeks post-op they found a haematoma and it’s been 4 weeks and counting since then. I know the oncology team will do what’s right but I wish it had healed already!
So I should be a June starter but I may end up in July, but I’m here saying hello and wishing you all well x
I start my chemo on 17th and worried about everything as i am shy and dont like speaking up. Scared of needles. Having 3 x EC 3 weekly and 9 weekly of P. This will be followed by radiotherapy and hormone. Ive shaved my head so can get used to having short hair, and wont be as bothered when lose it (still will). I find it hard talking about being inbthis situation.
Hey @cl4reh
We’re here with you.
I don’t find it easy to speak up either.
The nurses are all lovely though and always checking you’re ok so they make it easy to say what you need.
Good luck for 17th.
I take a few options to pass the time.
Book, audio book, headphones, something downloaded on my tablet. I spent most of my time chatting to the nurses though.
They are always coming round offering drinks and snacks so I didn’t need those.
Good morning all! I packed my little bag yesterday for Friday (in case I get the go-ahead) and I just wanted it done and had some spare time. I’m going to try cold capping so I packed the bits I need for that. Then I’ve got a couple of puzzle books, a scarf and I’ll take a blanket for warmth to counteract the cap. Mind you since I stopped the pill on February I have been having some hot flushes so I might be flinging it on and off like I do with the duvet!
I’m also a bit nervous about needles and almost fainted at my CT scan with a contrast dye via cannula. I’ve told them what I’m like and they said they will look after me. Today I am back at the plastics dressing clinic, we have to take a photo of my boob wound and send it to the onco nurses, so they can decide whether to start me or delay a bit. Also having my blood test done in case I am starting Friday. Best of luck everyone this week. I feel better knowing we are all in this together xx
Hi cl4reh I read that you have found it hard talking about being in this situation and I have felt that a bit as well. When I see my friends and family now they are mainly talking about me. It’s nice because I know that they care about me but it’s hard being the focus. I find I am trying to be extra positive and bright to convince them all it’s good and they can talk about something else!
Just had a shower, I have to stick a freezer bag over my boob to cover the dressing as I don’t want it getting wet and coming off! I must look a right loon but it’s soooo nice to have a shower & wash my hair (while I still have it) and not having it washed over the sink by hubby! Small wins at this point but I’ll take them!
I dont like be centre of attention and would prefer they talk about something else. Having a shower always makes you feel better. It doesnt help that my 13 year old is struggling with my diagnosis as she is not sleeping had to get dr and she is going to get coucilling so hopefully that will help. Trying to get her to school is a knightmare. I go counselling so not having to talk to friends and family. That is why i think talking on this forum will help x