Of course, it has to be…health is EVERYTHING! X
Barry and Nikki , very difficult time , but it it keeps her fertile it is good for you. I had an interesting afternoon. My surgeon looked at my mx and has said he can sort the extra skin after chemo, but has said I now need to moisturise scar area. Got measured for my prosthesis, that was fun as the lady was someone who I went to school with. I then waited over an hour for my onc. Went through the process signed paperwork, talked about injections, anti sickness etc. Booked next meeting then had pre chemo bloods. Exhausted now xxxx
Sounds like a tiring day Ange. I asked about Emend and Nikki asked if she was sick often. Nikki said she suffered from car sickness as a child and the consultant told the registrar to put the request in They won’t decide about picc line until she goes for her first session x
I think I might try that car sickness approach Barry as everyone seems to rate Emend! I was rather spectacularly ill the day after my surgery so I might throw that in as well.
How you feeling this week Sarah after your recent round two?
They’re giving her the lot they said x
Sounds like a tiring day for Ange, Bazza and Nicki … It certainly makes it seem real when you start discussing chemo, that’s when I think it really hit me about everything that’s happened. Stay positive the thought of it is far worse than doing it, you will manage and will be fine. There’s so much good advise on this forum that’s really helped me. Take care xxxx
Briefly spoke about nutrition and exercise but.it’s something to be talked about after treatment really
Sarah it’s best to stay away from germs when you can x
Hi Sarah, I told her I was really worried about being sick and that was the effect I was worried about the most. Let’s see what I get xx
Don’t feel guilty Sarah. I’m a bit phobic about germs at the best of times let alone when my immunity is low. I’m sure people understand. I have a case of “manflu” in this house at the moment but I’m being sympathetic as hubby has been marvellous and at least has the decency to get sick before I start my chemo. Look after yourself. x
Thanks Peggycat. Xxxxxx
Hi Jill, at my hospital, they test the nodes when you are on the operating table and take them out there and then if they are affected. I suppose it has the advantage of requiring only the one operation, assuming clear margins are obtained. The disadvantage is not knowing what you are going to wake up to. I must sound like a control freak!
Peggy, that is my understanding. Although I suppose it might be possible that I agree to go on the trial, they tell me I’m on one pathway and then if I don’t like it, I withdraw consent before the operation. That would be a bit pointless though, wouldn’t it? As the nurse said to me today, I need to be reasonably content with either pathway or I should decline to take part.
One thing that was said by the oncologist in the video which surprised me is that they don’t keep more of an eye on those who don’t have the nodes removed, as that would introduce an element of bias. It occurred to me that if I decided not to go on the research project and not to have full clearance, I could insist on having a higher level of monitoring, by paying privately for if if necessary. I’m just not clear in my own mind what the potential consequences are of having small elements of cancer “festering” under my arm and what early indications there might be of trouble ahead. I am reading everything, but seem to know nothing!
And I do appreciate that your treatment is more extensive than what I am likely to face, so our decision making is unlikely to be the same. I really feel for everyone on here who is facing this illness and have worse things than I have to contend with. I know I’m very lucky that it was spotted so early. I’m hoping my luck holds out and the nodes are ok, but I’m not feeling as invincible as I was three weeks ago.
Gracie x
So sorry to hear that, Fiona. The lovely ladies ( and gentleman) on here will guide you through it.
Gracie
x
Gosh, everyone is moving on now, I’m feeling left behind! Still, I’ll be seeing the surgeon next Wednesday, so the next steps should become clearer.
Thanks Sarah, I will be glad to get tomorrow over with, sounds a horrible thing to say but I am emotional enough with the BC already.
I have quite a fear fear of being sick too and also was travel sick as a child, particularly on boats which was unfortunate as we lived on a private island for seven years so every time we went to town, it was three miles on a boat! Still, I don’t know if I’ll be needing chemo yet anyway. I always freak out a bit when there are sickness bugs going round, but you don’t necessarily get them but it does make you fret!
Thinking of drug availability, I found this somewhere else on the forum, it is worth a try!
petition.parliament.uk/petitions/107548
Amanda x
Best wishes for tomorrow Amanda, hopefully you will get positive news next week.
All the best for tomorrow Amanda. I’ve signed that petition too x
Signed also. It’s just too appalling to think about.
Barrie I keep meaning to tell you that if your on Facebook to add a page called heal for real. It’s a young mum who’s started it and currently having chemo for a cancer that was deemed inoperable. Have a read through her stuff you will find it really interesting x
Is it inspiring Lisa? As I don’t or don’t want to read upsetting ones x
Morning all, hope everyone is ok. Jill hope you are feeling better, Barry (& Nikki) hope you are both feeling stronger today. Amanda -Big hugs xxx is any one else having to log in every time they want to put up a message? I am finding it frustrating as putting updates on 2 pages. Never mind have peace and quiet until 5- Bliss xxx