Just newly diagnosed

Hey Alex

 

when did you have your ultrasound? It’s been a right pain with the Christmas delays! I had the weirdest festive season ever! Had my scans on 20th Dec…

 

What I keep forgetting is that it’s all just temporary… things might be crap for a few months but after that… is that it? Back to normality? God knows :( 

 

i wish you all the best for the 10th, make sure you keep us posted too. We need to stick together! Xxx

Hi Laura

22 Nov - mammogram screening trial
14 Dec - appointment for call back, ultrasound scan and biopsy on 22mm mass in left breast
25 Dec - Xmas day from hell lol
10 Jan - biopsy results but already got told by consultant radiologist at ultrasound it was BC

Xmas and New Year delay has been torture!

Hiiii Laura and welcome … you have just joined the best group everrrrr!! These ladies are amazing … I am a little further along … I was diagnosed on 28th October and had a mastectomy on the 22nd December … had MRI scan between. Anyway, it’s 2 weeks tomorrow since my op and I have results day next Tuesday 10th. I haven’t a clue yet what treatment I’m going to have next and the waiting between appointments is definitely the worst … stick with us and let us know how you’re doing … we are all here for humour or rants or just general peed off days … Sarah xxx

Hi Sarah 

 

oh I know! I’m already loving the community spirit. It’s helping so much to keep me level headed (for now!) 

 

do you mind me asking what diagnosis you had before the mx? Everyone is so different, I’m having chemo first then the op! 

 

xx

I don’t mind at all - I was diagnosed with grade 2 lobular cancer and after MRI scan it was found to be approx 4 cm and another smaller lump behind … I only have small boobs so a lumpectomy would have taken a lot of boob although the consultant did do a lot of thinking about it … I made the decision for him in the end ?? and told him to take the whole bloody thing off … I haven’t had reconstruction as they said I can make my mind up later if I chose not to have it on the day. At the moment I’m happy with my decision but who knows once I’m through treatment … I’m pretty sure I’m not going to bother xxx

Hi Laura,

Sarah is right, you have joined a great group of ladies. The waiting is the pits and really is the worst. We’re all at slightly different stages in the process with different diagnoses and different treatment plans or still awaiting treatment plans.

Big hugs to you.

Jo xx

I haven’t had any info regarding size of lump or anything! I even had an MRI inbetween xmas and new year and he didn’t give me any results from it! 

 

My bcn kept saying ‘it’s you’re treatment, it’s your body’… I only have small ones too. I’m wondering whether I’ll need to go down that route too… long road before that though for me. The joys! xxx

I haven’t had any info regarding size of lump or anything! I even had an MRI inbetween xmas and new year and he didn’t give me any results from it!

My bcn kept saying ‘it’s you’re treatment, it’s your body’… I only have small ones too. I’m wondering whether I’ll need to go down that route too… long road before that though for me. The joys! xxxt

I feel so much more prepared mentally for my diagnosis news on 10th after joining this group. Can’t wait to join the thousands of survivors of this *bleep* and I’m looking forward to a great Xmas 2017 after this Xmas was quite frankly torture - if my mother in law had said she was “praying for a miracle” anymore on Xmas day I was going to blop her with a turkey leg ? Remember “no such thing as a problem… just a solution” cx

Laura, your BCN is right really, we are all individual cases and treatment plans are just “ours”
The results from my MRI scan did take about a week to come through but it wasn’t the Christmas period. I’m presuming they will tell you all the results once they have gathered them. Initially I was just told it was a grade 2 and approx 2cm but a few weeks later I was given more results after the MRI etc … different authorities seem to do things slightly different so results are given at different times. I’m now waiting for post op results xxx

Hi all,

I have just popped into the thread to see how all is going. It is so great to see how much support is on this thread to all who join it. I am so sorry to see you here, but also very glad, as there is so much support here for all. Rant, rave, cry and laugh - and many virtual hugs.

My ‘journey’, well the active treatment, was completed on the 26th October.

It is unfortunate that the route of diagnosis can have ups and downs. Often the final results, on which treatment plans are based - are ony post op - may that be an SLB (Sentinel Lymphnode biopsy), lumpectomy or mastectomy. There are many varying reasons for it - age, breast density, type of cancer.

I was diagnosed on the 5th January 2016 and initially it looked like operation and tablets. Well, post operation they threw the whole kit and caboodle at me.

My hair is back and I have never had such beautiful long nails for years, as I have now! And that is nearly to the day 12 months post initial diagnosis and the whole raft of treatments.

It will very much depend on your type of chemo treatment, should this become the case, whether your nails MAY be affected. Nail bar treatments and gels, however, are out, if you should go through chemo. But there are things you can do to help them stay in place and there is, of course, the cold cap, too. No guarantee your hair will stay - it might or it might not. However, if, as and when the time comes - there are many tips and tricks on the forum and on the monthly chemo threads. Those who start in the same month tend to swap their tips and also ask for help and advice. They are a great support through all of this.

I am vain, too - and this is before - during - now…I hope it gives you hope and strength that you can handle this. Yes, there could be some challenging months ahead - but you will get through them and come out of the other end… 

IMG_1710 small.jpg Ready for dose 2.jpg post 5 1.jpg xmas16.jpg

Hugs to all

Sue x

 

Sue you are an inspiration!!!x

Alex, you have so made me smile! The best advice I’ve been given is to punch well wishers on the nose when the tell you to stay strong, blah, blah…so I totally get the turkey leg comment ?

My OH and I have been planning Christmas 2017 too. Sounds so bizarre doesn’t it?! I was upset this year because I’m divorced (x2) and none of my children were home with me at Christmas. I convinced myself that I wouldn’t be here next year. Now I planning on the biggest, bestest family Christmas ever. I know I have a tough year in front of me but I’m determined to have a lovely reward at the end of it.

Sue, thank you so much for popping up on this thread. It is inspirational for those of us at the beginning of our journey and lovely to see you looking beautiful throughout your journey. xx

Haha Alex!! I don’t blame you! Bless them. My brother was the same with me, I know they only mean well. But he was saying ‘it’s not been confirmed’… er well they were 90% sure!

 

sue - I second Alex there. Thank you so much for your post. There is life after this!xx

We’ll all be clunking those champagne glasses on Xmas day 2017 but this year I will have to make sure I don’t wrap my 18 year old daughter a bottle of “I hope it’s not prosecco mum cos I don’t like it” surprise! Mind you she felt pretty ? when she opened it - no worries mother in law drank it with her turkey leg ?

Hi Sue, 

 

I just wanted to say how lovely you look in all your photos.

 

I’m going to echo Helena, you are an inspiration and thank you for giving us hope and a look at the other side of all these treatments. 

 

Susan

 

Sue… woohoo get you being chatted up! You sound like a lovely person so I bet you were just beaming anyway, you have a winning smile! Thank you for your words of advice, I’m telling myself that my daily life will grind to a halt during chemo… I’m frustrating myself with the unknown. 

 

Steph - thanks for saying hi! Everyone is so friendly here. I’m definitely going to hunt out some similar aged ladies so we can swap notes. Like you say though, we all have the same worries really :frowning:  

 

my husband says the reason why I’m calm is because it hasn’t sunk in yet, but I’m not sure. xx

 

 

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Thanks for the link Sue! Will take a look…

 

Hi Steph, yeah I’m definitely the ‘get on and do it’ kind of person. I’ve surprised myself at how strong I’ve been with this. I know I’ll have absolute rubbish days, but it helps to keep focussing on the fact that Xmas 2017 should be a lot different! 

 

I don’t want my friends and family to feel sorry for me. I know it’s absolutely awful, I don’t need telling! 

 

And youre totally right, I can’t wait to be in the position to be able to help other people. It’s a privilege in a weird sort of way! 

 

Node biopsy on Monday under general anaesthetic… please god let it not have spread xx