Hi Alex
So much going on for you …the tests are good and then the waiting is so bad … and yes the chemo is daunting. And yes mx … get it off I agree . My bcn said same . Maybe lx not mx …
I was the same stopped crying and was getting on and even laughing about it . That this morning was strange - cause I had expected more nodes … just knocked my off my feet , maybe I’d been to brace and it was a build up( I don’t know but scary ) .
So glad your getting eggs frozen, like I said my friend had a baby boy after chemo and cancer and now lives in turkey .
Off to ct scan now - gonna wash my dad looking face first though xx
Having ct today : normal one I think . Then bone on Monday which is dye and 3 hours wait and stuff … so not sure H … x
Hagaha not my dad …my face ?- so so rubbish at tough type but my laptop upstairs and I’m to lazy to get it xx
No - sad looking face - god I’m a mess ?
No not naked or cold ?
Zena, the bone scan is an injection of a small amount if radio isotope. This is taken up in your bones and emits gamma radiation that can then be detected by a gamma camera. It takes about 20-30 minutes but is quite painless. You are mildly radioactive for a little while afterwards and I was told not to cuddle the children for long periods although didn’t have to stay completely away from them. It’ll be another tick off your lust when it’s done xx
Hi Zena - I think your post to me (Alex) was maybe meant for someone else as I’m not having eggs taken - I have 3 kids and don’t want anymore lol! On a more serious note please keep you chin up about node involvement - I spoke to my BCN today and mentioned the possibility of them finding involvement and she said lymph nodes are a defence and they are doing their job so if they are found in them then they will treat it. She described them as a bit like “pacman” gobbling up what isn’t supposed to be there and as I say that’s because it’s their job to “defend”. The treatment is amazing nowadays, we are now in 2017 and more and more treatment is coming through! Cancer is not a death sentence so keep you chin up and you have many many more years to go! Go with the flow, baby steps, and you’ll get there. Paceman rules! ?
*Pacman!
Loving the pacman analogy Alex! I tried some visualisation techniques and that is just what I visualised happening to any cancer that might be hanging round in my lymph nodes. It’s a positive thought that I’m going to stick to now!
Absolutely Jo! Chomp chomp ?
Great Zena…another one ticked off. Enjoy your take away and try and relax a bit. You must be worn out today xx
Oh I could just eat beef in blackbean sauce - would gobble it up like Pacman! Unfortunately my OH cooked tonight and like my daughter says “oh no, it will be spag bol, chilli or sauasage/bacon/egg”… I had sausage/bacon/egg! His menu is very limited! Might have a Chinese tomorrow night x
Hi all
can anyone help? I’ve been reading up on the effectiveness of chemo and it seems like some people get a really small percentage of life expectancy back (2% sometimes!) and decided not to actually have chemo, as the side effects just outweighed the benefits.
Im going to be having an injection called zoladex throughout my chemo to preserve my ovaries, but I’ve read that this drug has also been used as an alternative to chemo!! Especially if you are ER+
I think all I’m doing is completely panicking about chemo as it might change my life, change my body, drain me, make me ill etc. I’m 33 and want children in the future, and chemo might take that away from me ?
Steph, I will get tamoxifen at the end of my other treatments but I’ve been in limbo between mx and chemo starting so feel a bit like nothing is being done. Realistically, probably not that long of a wait. Just me being impatient and wanting to do something.
hi Pink,
Everyone’s diagnosis is different, for some chemo would be of marginal benefit, for others its key. Chemo is also about reducing the recurrance risk, to give you the best chance of recovery.
Do discuss with your team if you’re not clear on this & about the fertility implications. The ladies on the chemo threads would be able to support you on this or do contact the nurses or helpline here.
take care
ann x
Yes I agree Pink…do check before you have the chemo…the nurses should know. They will want you to be well informed.
Moijanxxx???
Hey, Zena. Just to say good luck with the bone scan today.
Hope everyone has a good day
Ali x
Hi , thanks all
And hope all goes well for you jo and all others today and tomorrow and this week and next and forever after …,( too much ?) …
Just had meeting and they want onc meeting first / before treatment plan . But said chemo to treat lymphs sweling and systemically - so been given tamoxifen even though I need to stop that 2 weeks before chemo … bit strange as I was hoping to start something at least soonish … onc On 24 th Jan ? So More waiting…but what if she says start chemo now and I’ve started taking tamoxifen…
Only Bit of good news so far - no new nasties in ct scan ( what a relief) but one swollen lymph on left side now ?But he ultra sounded and didn’t biopsy so that’s good.
Just sitting waiting for bone one now so finger crossed .
Old guy just walked in to waiting room to give his wife his wallet and when he turned round to leave his gown was undone at the back ?.. Everyone in the waiting room giggled and then his wife started laughing… bless him .
Zena xx
Meant Ali and all xx
Hope today went well Zena. Big yay for CT results and fingers crossed for bone scan.