Looking for advice on Paget's Disease of the breast

I have been to my GP who is referring me to the breast clinic for further examination. When i asked her on what her thoughts might be, as to what is wrong with my breast she said the signs of Paget’s Disease and that she also found a lump on the side of breast to…
I am looking for advice on the the a red rush that has started from my nipple and is making it way round side of breast. is this normal?
and also with Paget’s disease is it common to have pain on the outside of breast where the disease is (mine is on my left) the right breast is fine and have no issues with it…

So sorry for so many questions


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Hi bumblebee1,

Thank you for your post asking about the signs and symptoms of Paget’s disease.

This sounds like a difficult time for you, and it is understandable that you have some questions after seeing your GP.

It is important to remember that breast changes can happen for many reasons. They may be due to hormonal changes as part of your monthly cycle (if you are still having periods) or due to benign conditions (not cancer).

A red rash around the nipple and a breast lump can have many causes and although these could be a symptom of Paget’s disease it is not possible to know the cause of your symptoms until you have been fully assessed in the breast clinic. You may find it helpful to read our information on what to expect in a breast clinic. On its own breast pain isn’t usually a sign of breast cancer but a breast rash, whatever the reason may be associated with altered sensation such as pain, irritation or burning.

Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen to your concerns, talk things through and signpost you to more support and information. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK - prefix 18001).

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Best wishes


Breast Care Nurse

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