Hi Jo
many thanks. will pass this on to him. noticed a typing mistake in my message. the son is friendly with my daughter as they met at our last chemo session and stayed in touch. I knew the lady to say hello to with our appointments, but felt i knew her more as her son was in constant touch with us. I will ask my daughter to tell him about the helpline, as I do worry about how he will cope with this. hopefully he will call them.
many thanks
debbie
Hi all. seems not much activity on this thread for the last few days, but hopefully you will read this message soon! Yesterday i went to the hospital for the results of my sentinal node biopsy and lumpectomy following last weeks op, and had some brilliant news - all was clear. Can you believe that!!! Seems I am now cancer free!!! Starting 4 1/2 weeks of radiotherapy soon, but what the heck!!! Not really sunk in yet, and although I cannot begin to tell you how I feel, I am so emotional and just cant stop crying! Sooo happy, and yet so sad for those ladies each day that dont make it through this. Now planning a trip to Swansea to see my son at uni in a few weeks time, cant wait.
anyway, hope to catch you on live chat soon
take care all
deb x
I am due to go in next month for my op, …is it really painful to have drains removed???
Hi Narnia
good luck with the op, have you had chemo or is this the first course of the treatment? I had drains on both sides, and all I can say is that is wasnt that pleasant, but a lady at the clinic yesterday didnt have any problems, so i think each person is different. my drains were in deep and i am a wimp, which didnt help. i have had a drain removed from my leg following a hip replacement, and i didnt feel a thing then. it is over very quickly though, believe me, take a deep breath and then out.
deb x
no chemo yet , op first the they will see what ‘needs doing’. my tumour is 2cm and is stage1 , borderline 2 but the surgeon says they won’t really know for absolute certain until the op.Then they will decide about chemo, but i shall definately be having radiotherapy.They are supposed to start me on arimidex next week…i just got a bit freaky about the drains!
all i can say is, that you will be glad to get the drains out, to get back to some sort of ‘normality’, so you wont be bothered by any pain, as you will be relieved! if that makes sense!
i wish you luck. time will go quickly and you will get through this and find lots of support on this site.
deb x
Hi Deb - so glad to hear you are out of hospital and recovering well and wonderful news for you with all clear results - now you can put bc behind you and get on with enjoying your life - just like to wish you good luck with everything you do.
Had first chemo last Monday, have felt sick but am feeling bit better today.
Take care, Sandra xx
Hi sandra
great news this week just starting to sink in! going to hospital this week to sort out radiotherapy. having 4 1/2 weeks of it, but i dont care about that now, as can see an end in sight.
glad you are feeling better. what chemo are you on and how many have you got to have?
Now that theres no more chemo or ops, I am getting to see my son at uni in three weeks. cant wait to see him. seems like he has been gone ages.
Radio will take me to just before christmas, then i intend to get out there and make the most of my life (how many of us have said that, and then 6 months later, gone straight back to the boring normality we had before!!!). we live near to Demelza House, the childrens hospice, dont know if you know it? I am hoping they may let me do some volunteer work there or at the local hospital. will have to wait and see.
anyway, thinking of you and hope you dont have too hard a time.
take care
deb x
Maz - where are you? are you ok?
deb x
Hi Debs!!
I’m in heaven with the thought of no more chemo!! Like you, not worrying about the Rads atall - so it’d better be a breeze!! I’ve stopped hibernating and started Christmas shopping ( sad, eh!!) Coming to Kent on 6th Dec - could get away Sunday morning for a coffee - we will be in Fordcombe, just outside Tunbridge Wells - could we meet half way??
Heard from Maz last week - she emailed me - she’s ok, just keeping her head down and not wanting to join in much. We all know that feeling!
Love Td xx
Hi Deb
So pleased for you that you can see the end of treatment in sight and will soon be out there joining the ratrace once again. I am having 3xFec and 3xTax - already had 1st Fec, felt sick and yukky most of 1st week, this week(2nd) have been having GCSF injections (did you get them) and feeling better only had a cold and sore gums but nothing major. Next week hope will be the best week of 3 although think my hair will prob be saying goodbye, also see Onc and get results from bone/CT scans so bit worried about that. After chemo will be Rads and Tamoxifem for 5 years. Have a great time visiting your son at uni, you’ll be fussing over him making sure he is eating properley etc etc (haha) our babies have to grow up and leave us at some point but they are still our babies!
Take care, Sandra xx
Hi Td
was going to ring you soon. not meeting with sue now until 12th december, so glad you are coming down bit earlier. all being well, can make that, so we will have to make arrangements when and where.
glad maz is ok. been worrying about her as not on here for ages. give her our love
have only just started thinking about christmas presents, and will be going shopping soon. well behind this year!
having a ct scan on wednesday, and then straight from that hospital to local hospital to see my rheumatologist to go back on medication. having tattoos done with scan, ready for rads.
sandra - i had 3 and 3. found the tax easier. hope you get on ok with it all. got difflam from doctors for sore mouth. had corsodyl, but not as good. i suffered more with my mouth than anything else. cant wait to see son in 2 weeks. we shall have lots to celebrate this christmas, hopefully. daughter enjoying uni to and hoping to move down there next year, so we shall be all alone! cheaper bills, less housework and washing and much less mess!!! i had the injections to, 5 of them starting on 5th day after chemo. they help you to feel better.
my hair is now starting to return and my eyelashes and eyebrows. really pleased, its taken long enough.
anyway, have a good weekend and catch up soon
take care
deb x
Hi all … Its me back from my massive bout of depression had a load of bad stuff going on …more people with bloody bc and not surviving .!!! younger than me dx after me knocked me for six !!! still under investigation for my bone pain …but have managed to claw my way out of the black hole of despair !! Got tickets for TakeThat !!!Yipeeeeeeeeeeeee so not all doom and gloom .Hi debs hope you ok ! PM me if ypou are on facebook and you can be my friend .
Lots been happening to you all by the sound of it ,just wanted to keep my head down for a while was feeling pretty crap !! But a lot better now hope you are all doing ok xxxxxxx
Hi all
just to update - went for ct scan last week and was sent home, as unable to do it, due to me not being able to lift my arm enough to go through the machine. returning next week to try a different machine out. hope that one works! went to rheumatologist and got put back on medication and had steroid jab to boost me up. joints still bad but hope they will settle soon. of to hosp on monday for the look good feel better meeting. looking forward to that and back tues for scan. flu jab on thursday and then next sat off to see son at swansea uni. cant wait. so busy week ahead. visiting a friend on thursday too, who starts chemo this week.
maz - still having problems with facebook, for some reason they dont seem to want me!!!
so jealous you are seeing Take That. I love them. Have got tickets for the X Factor concert next march. and very good seats, near the front. Being disabled does have its advantages!!! going with daughter and sister.
finally managed to get some travel insurance, so we are hoping to book a week away to the canary islands in january.
radio finishes mid december, so all systems go, apart from follow up appt with oncologist end of january.
hair coming slowly but eyelashes coming faster and eyebrows.
hoping to meet with Td soon and Sue from the live chat, when we go to wales in december. busy time ahead, and still all my christmas shopping to do!
anyway, hope all is well with everyone and catch up with you all soon
take care
love to all
deb x
Hi All!
Nice to hear you so much more cheerful Maz - stay out of that hole now…
Debs - I’m going to try to change my rads time on 5th Dec so that we can drive up to Kent on the Friday, otherwise I’ll be running around like the proverbial blue-ar**d fly. Then we could meet on Sat 6th at some time in the day which could be better for us both. I’m stupidly busy this week - but do text and we’ll try to talk soon!
Td xxx
Td
have such a busy week to but as soon as i can i will text and see if you can chat. am keeping 6th free to meet up, looking forward to it.
hope you are all ok
speak soon
deb x
Hi all
just to let you know i have finally registered on Facebook! Yehaaa
now i have just got to learn how to use it!
see you on there
btw - had xrays done yesterday ready for radio. also had tattoos - no problem. was worried they might hurt, but didnt. start next wednesday.
off to see chris this weekend. cant wait.
catch up soon
big hugs
deb x
back again!
have been on facebook and cant find the lymphamaniacs! where have i gone wrong!
help!!!
Sandra
found lymphomaniacs on face book but wont let me join as need to be accepted by a member. can you tell me what to do please?
thanks
deb x
Hi
to anyone out there, was diagnosed 3 weeks ago, having a lumpectomy on Thursday (13th nov) then radiotherapy and 90 % likely to have chemo, scared beyond belief and cannot believe its happened to me, I’m 37 and had a breast reduction 6 years ago, which although breast cancer didn’t enter into the decision, it still made it less likely. My mother died of cancer (secondary) at 61 yrs old but was plagued by it from 32 the ironic thing is she had it everywhere but her breasts. Anyway sorry to rant but it is so much easier to be honest through typing than it is at home, as I cannot allow my 15yr old son or my partner (who is also 15 emotionally) see me deflated and the reason for that is I may never pull myself out of it. I am strong and will beat this so it may want to chose another victim because I am not one.