Looking to find like minded BC sufferers

Morning, lovely ones

I agree, joking about it is a defence mechanism. I have always erred on the side of humour and I don’t want that to leave my life. To have laughter taken away would be too much to bear.

I don’t want the sympathy faces from people. I want empowerment.

Big faux pas from your friend @twinkletits that said the waitress should have her ears pinned. She deserved to go home kicking herself after that comment. I’ll have the Julia Roberts comment ready for the next one who tries to present hair loss in a golden shining light!

@Shi Did it change you? Oh my goodness!! My boss’ wife said to me on the phone this week “I bet your parents are worried. They’re probably thinking they are the ones who are supposed to go first”. People really do put their feet in it lots, don’t they! Like you say, we have better things to do with our precious lives than let negative words impact. Today I will breathe deeply and brush them off.

I have spinach in my smoothie today @twinkletits It’s actually fine!

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Saltbert :heart: yes I appreciate life so much more :heart: I was diagnosed at 45, so i don’t put things off since finishing treatments, I go to the concerts, exhibitions and live each precious second for me and for friends I’d sadly already lost, I live for them too :heart: you may find it heightens your senses it has a lot of us :heart: everyone gets through their own way :heart: whatever is right for you, live, love and do what makes you happy :blush::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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@Shi I pray I come out of this like you. Mended and with a new appreciation of everything life has to offer. I hate this waiting bit. Everyone says it is the worst bit and they are right. This is akin to torture. To think I used to worry about blood tests!!

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:heart:thank you salbert, each day is a mending day, each day is another day where you learn something new and have new experiences :heart: It does try to take your joy and you might have to dig deep and focus but :two_women_holding_hands::heart:everyone here’s got you and bcn has got you :heart:go as crazy as you like our oct17 chemo gang did :joy: and our :joy::joy: definitely helped get us through :heart: and we’re still in touch daily :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Salbert :heart: be kind to yourself, take it a day at a time, it can be like a magic carpet ride, you hang on :two_women_holding_hands: and you all hang onto each other :two_women_holding_hands: :heart: :two_hearts::two_hearts::sparkles::sparkles:Shi xx

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Hi twinkletits the bone treatment is a transfusion what takes 10 mins to prevent cancer in the bones it’s every 6 months for 3 years , it’s easy no problems, sometimes it’s tablet form but can be problematic taking it every morning as you have to sit upright and I have a 3 year old to look after , I managed chemotherapy fine just had a day where I was tired then picked up fine, the radiotherapy’s easy but the fatigue that comes months later is overwhelming, I struggled with it even now I get so tired so I rest when I can , they’re pretty good at the hospital with ways to help you keep on top of everything, I definitely learned how to take time to be kind to myself , I struggled more with losing my lovely hair an actually looking like cancer patient but hair grows back X X good luck hun :heart:

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@Nikks i love this Dr Squirrel, chemo brain is horrible and it doesn’t go back to normal a quickly. I’m 4 weeks post chemo and I cried at the GP the other day because I couldn’t get out what I wanted to say. So frustrating.

Thanks for mentioning your bone infusion, I have mind early April, delayed as I needed dental treatment. Nice to know it’s only 10 minutes :smiling_face_with_three_hearts:

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I love that you replied with all the positive things that have changed you since BC.

Lets start a list:

I realised my other half actually does care and can now show it more.
I have stopped saying Yes to stuff I do not actually want to do.

x

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I really need to try a Smoothie - I have never ever had one - seriously tell me how to make one bearable … I am so fussy can I mix strawberries in wine and call it a smoothy? x

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@twinkletits I’m quite sure there is a smoothie recipe for strawberries and wine and you add cassis. Then again that could be called a cocktail. Not quite sure but I think they’re interchangeable. Go for it! :wink:

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Im all talk anyway 2 glasses of wine on a Saturday night is all I can handle these days!
I’m off to have a different part of my boob examined now - the joys but I am off to Margate this time so perhaps if the sun stays out I’ll pretend I’m on holiday!

Hope you’re recovering nicely from your latest op xx

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@twinkletits I love Margate! An old college friend has some Air Bnb’s there and so from time to time we have a weekend there and it’s such a cool place now. We were supposed to have a Margate Weekender this month but I had to cancel for obvious reasons.

Latest op has rather floored me to be honest. Having all your lymph nodes removed is not a walk in the park it would appear. I used to complain about never having time to watch everything on Netflix. Be careful what you wish for…
I had my drain removed from under my armpit today and almost fainted. My life was clearly lacking drama so I injected some!!

And here’s a thing. My roots don’t half need doing but I’m wondering if there is any point if I am soon to lose all my hair. There’s a quandary I never imagined I would find myself in!

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Hi twinkletits
Love the name, I was born in Margate hospital! Hope things are going okay for you.
My surgery was done last week and now recovering all going well and just resting mostly. I have a Valentine’s Day appointment with my consultant :two_hearts: for my results not expecting anything to change particularly so assuming it will still be DCIS high grade and was small this time as it had only been growing for 2 years.

The thing I did learn from last time was to be open and honest with my wife however hard that can be sometimes and expect her to be the same. I am also being open about my diagnosis and feelings this time which I wasn’t last time it does really help to talk not just for me but my wife.

I hope you are having a good week
Xx

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Think its important to feel good about yourself for as long as possible so get your roots done - you might not lose your hair if cold capping works for you? xx

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Hi,

Hope you are still feeling better post op.

Sounds like you have been through this twice which isn’t good.

Think its a fine line between being honest and sometimes having to hide it so that you can enjoy parts of your day?

x

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@twinkletits Guess who is about to go and wash the hair dye off her head? You’re right. I need to feel good for as long as possible. 'Tis done!

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You know it makes sense - now you just need to shave your legs and you’ll look human again :face_with_raised_eyebrow:

Tried to put an emoji in there and its just come up with a description of the emoji - I am not high tech!

x

Aah the emoji did work :rofl: :joy: :stuck_out_tongue_winking_eye: :crazy_face: :stuck_out_tongue_closed_eyes: :money_mouth_face:

Shave my legs? It’s been so long…I just said that out loud and my pink razor threw itself out the bathroom window. :flushed:

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Hi @salbert

Hope all your scans went ok.

You’ve made me laugh :rofl::rofl:, gosh can’t even remember the last time I shaved my legs but have chemotherapy to thank for removing most of them, not completely smooth but easy maintenance. I don’t t seem to have the energy and inclination to do anything, armpit hair also growing back, even bought an electric shaver as recommended when having surgery near armpit and I think it’s was only used a handful of times.

Was supposed to have a phone call from my work’s court selling service at 2:30 this afternoon and they didn’t call, no message or reason. Tried to call main number but just answerphone. Such a shame it took a lot to call and arrange and now I’m having to chase! May go to a cancer charity after all and hope that goes more smoothly.

Sending good wishes to you all :smiling_face_with_three_hearts: