Losing my marbles waiting

Hi everyone I am new to the forum. I am really struggling waiting for biopsy results. It has been 11 days now. I don’t even know if I will receive my results before Christmas. Not sure if I want them before Christmas either. But then that’s all I will think about. I have been here before. 19 years ago I was diagnosed with breast cancer just before Christmas and I feel like I am back in the same place. I am really frightened this time and I can’t get any support from the hospital or from my GP. I am lucky to have a supportive husband but I am still feeling in a very lonely place right now

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Hi smiler4
Yes it is an extremely worrying and anxious time. At the time of my biopsy, I was given an appointment for the following week to get the results. 11 days seems a long time. I would contact the hospital again. Hope you get a positive outcome x

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Thanks poorlyboob. Hope you are well! I have phoned the hospital today (again). And they said the results aren’t back. And they can’t tell me when I might get them. And I am getting worked up as me and hub are going away on Saturday for a quiet week in the Lake District. And I am not sure I will have heard by then. Feeling stuck x

Dear Smiler4,

Welcome to the forum, this is a very anxious time for you, can I suggest your call and speak with your breast cancer nurse, explain that you are going away, but feeling extremely nervous and stressed about the outcome, letting them know your are in this country and can be reach on your mobile at any time.

Unfortunately the waiting game is so stressful, at any time, however this time of the year always seems worse and takes longer.

Keep posting to let us know how you’re getting on. Wishing you a pleasant Christmas hopefully good outcome ahead.

With love Tili :rainbow::pray::rainbow::pray:

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Hi Tili
Thanks for your message.
I don’t have a breast cancer nurse and when I phoned the Genesis today and asked for support they said they could not provide any. I said I am struggling and they basically said I am in the same boat as everyone else waiting. They were not very supportive and I have not had a good experience with Genesis so far. Last time my treatment was at another hospital and I was assigned a nurse and this time nothing at all which I find very strange and pretty awful for patients :frowning:
Thanks again x

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Smiler, I’m so sorry for you this is not what you need at the moment, maybe your GP could help.

I do hope you get so news very soon.

Hugs from me Tili :rainbow::pray::rainbow::pray:

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The waiting is horrible and I feel like I’m losing my mind at times, I have a complete meltdown, and takes me age to calm down. I had a biopsy 2 weeks ago and get my results on thiursday. The dr already prepared me by saying she’s v sure it’s cancer. 2 weeks feels like forever to wait. I really feel your pain x

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It is horrible. It feels like every minute lasts for a whole day at the moment. I hope you get on ok on Thursday. Keep us posted stafford22 x

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Dear Smiler I’m so sorry you haven’t got a dedicated nurse. I assumed everyone would have access to a Macmillan nurse. Sounds like you were really fobbed off. We may all be in the same boat but we all need someone professional to talk to. Having bc is a serious thing and all services owe it to their patients to provide help. Sending lots of love and prayers for things to move forward and that you actually get some help xx

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Thank you annie8 I had better luck when I phoned the MacMillan support line and I got to speak to a nurse but I don’t think that this is the way it is supposed to be x

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I am unable to contact my GP. There is a 2 hour wait on the phone and they will not ring me when I added a note to the patches system on their website. An admin just tells me to ring the hospital but all I have is the reception number and they are really unhelpful. Not a great experience for any patient.
Hugs back to you xx

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Dear Smiler,

My heart goes out to you, this is absolutely devastating for you when you’re feeling so anxious. Maybe call 111 they maybe able to contact your GP on your behalf, also the nurses on this site are extremely helpful, and caring.

Hopefully, you can get some answers before you going on holiday.

Love Tili :rainbow::pray::rainbow::pray:

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Thank you Tili. I just had a text message from my GP practice this morning inviting me to book a telephone appointment with them on the 16th of January which is 4 weeks away to discuss my current situation. I’m just in a state of shock. 4 weeks!? Unbelievable

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Dear Smiler, Totally unacceptable, I’m so sorry you have to put up with this.

Maybe call the breast cancer nurses on this site, I feel you would get some good advice, most of all peace of mind.

Love Tili :rainbow::pray::rainbow::pray:

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Thanks Tili I will try to call them today for a chat. Thanks again and hugs x

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