Thanks naughty_boob that means a lot X
Hello all!
I am new here and stumbled on this forum. My PCP has suggested I get in touch with support groups. @smiler4 I cannot believe how long you have had to wait to get your results. I am using a system called “MyChart” online and see my results before my doctors see them. However, I have to say this creates another set of stressors. I was diagnosed with invasive ductal carcinoma after biopsy on 11/14/2024. A CT scan had already been scheduled for 12/14/24 due to other symptoms I’m experiencing so they waited and found other spots on my liver and ovary. An MRI was done last Monday, 1/6/25, and it’s indefinitive currently but they believe the liver to be benign lesions. I was cleared by cardiology on 12/23/24 to move forward with surgery on my breast to remove the lump but I have yet to hear from scheduling or even if we are going forward.
I had to google the other day how long does it take from diagnosis to surgery. A.I. came back with an average of 120 days. Arrrggghhhh… frustrating to sit and wait. Especially now my primary believes these other symptoms I have are systemic due to the cancer.
I am also losing my marbles…
The spot on my ovary they saw during CT scan was followed up with ultrasound but, did not get a good enough picture so are rescheduling stating they want to be extra cautious, which I can appreciate. So, more waiting, no employment. Thank God for my husband.
Hi @chickadee501 welcome to the forum and sorry to hear of your diagnosis.
I am assuming you are possibly in the USA and not in the U.K. by the way you write your dates. The U.K. put the day, month and year. It must be quite scary to read your results before having a medical professional explain what they mean and the treatment that will come. This is a U.K. based forum but has many people on from elsewhere in the world.
I don’t the the waiting time is great for anyone. There are targets in the U.K. but not many people get their treatment started within that time. Some have chemotherapy first to shrink the tumour and then surgery. Others like me had surgery then chemotherapy and Herceptin.
I’m sorry to hear about the spot on your ovary and hope you get more information about that soon.
Take care.
That’s funny! Yes! I am in the USA. I think we are the only nation in the world that writes dates the way we do! We are a bit backward (or backwoods) in many ways!
I love to hear stories from different places! And, well, cancer, is cancer. Scary no matter who you are. There may be some treatment options shared back and forth that are allowed in other countries to try! I am all ears and eyes!
This is my first cancer diagnosis. So I am so very new and do not know anyone that has been through this.
This forum and website is very helpful with support and information. I usually signpost to support services but I’m not sure if they are all available outside of the UK.
It’s useful to use the search bar to look for other people with a similar diagnosis. There is also monthly chemo starters groups on the forum for support with people going through similar treatment to you.
I was diagnosed for the first time in May 2023 and finished my targeted treatment last September and now just oestrogen suppression and bone infusions.
That’s fantastic news for you! How do you feel? Going on 2 years for you to get to this point. I’ve been going at least 3 years for answers to symptoms that are typically not related to breast cancer. Congrats on getting thru all your treatment!
Hello and welcome. I’m new too but I went through cancer 19 years ago but everything has changed now. Many more ways of doing things. I have a new primary in my opposite breast from the first time. It’s all very odd for me and I think I coped better the first time. They got me in for a cancellation vacuum biopsy tomorrow (Friday) instead of Monday. I’m very nervous now as I fainted during the previous biopsy done during my mammogram.
Sorry to hear about your experience and your ovary. I just had a CT scan which they said is ok but they want to discuss 2 areas that were highlighted. They think one is radiotherapy scarring from my previous treatment.
All this waiting and testing is stressful.
What state do you live in? I’ve been to quite a few places in the US and I love the spirituality of Sedona!!!
Great to hear that you finished in September naughty_boob. You are providing amazing support on here
@smiler4 I am from Washington state! The evergreen state! I’m sure there are plenty of beautiful things to see and do in Arizona, but the Pacific Northwest is the place to see!
Dear Smiler4,
Thinking of you, fingers crossed for a good outcome tomorrow, well done for being so brave and getting this far after such an awful experience.
Biggest hugs Tili
It certainly looks beautiful and green. I used to love watching the Treehouse man doing all those amazing builds in your beautiful state!! Do you have a lot of rain there??
Thanks so much Tili x
I have been to some lovely places there as my dad’s aunt went to Canada after the First World War to run a farm in a very flat area not far from Edmonton and another place famous for rodeos. It was not far from the Rockies and Jasper too.
One of her children had a son who now lives near Seattle and he turned out to be an amazing person who remembered my mum and dad visiting the family in the early 1980s
I think several of them had breast cancer at some time but it was all hushed up in those days
This winter season, a ton of rain and very little snow. I live in eastern Washington which is the sunny side of the state most of the year!
I go in tomorrow for pre-op and a rescan of my ovary. I just wanna get this done.
Hi chickadee501 so that’s why it’s so green!! We’ve had lots of snow in the UK over the last week but it is slowly starting to thaw today. I know how you feel about getting it done. Good luck tomorrow - will be thinking about you!