Just realised its been a week since my first EC and I feel I’ve turned a corner today. I’ve not felt sick, managed ok with my bowels, was able to concentrate for 2 hours at a work meeting and ran 2 miles without wanting to walk all the time, so Im definitely going in the right direction.
I washed my hair today because I couldnt stand looking a mess. I hope that wasnt a mistake but I was very gentle and there is no sign of hair loss yet.
The gCSF injections have been fine; none of the expected bone pain and my husband changed my PICC dressing and flushed the line without making a hash of it.
So for those of you who havent started yet, it really is doable. Day 3 and 4 were the worst, probably because the steroids were wearing off, but I’m hoping I ve got 2 good weeks to enjoy now before the dreaded cold cap again.
Re Paclitaxel …doany of you get sore, aching muscles at all’? I find under my bra straps and along under my bra at the back is very tender.
also I get a reddish arm on the 3rd day which I thought could be cellulitis, but don’t think so now as it goes away…but my arm muscles hurt if I do too much.
Hello everyone. My name is Jane and I was given my treatment options on Friday so I’m still reeling a bit. I don’t have a date yet for the start of my chemo but I’ve been told it will be before Easter which puts me into this group. I’ve been offered Fec chemo, zoledronic acid and letrozole. I have a 1500mm tumour, removed by lumpectomy with clear margins and no affected lymph nodes. However, it is grade 3 and ER neg, HER2 neg and moderatively PR pos. I’m really frightened, both for my future and the side effects of the treatment which sounds terrifying. I live alone as my partner died in January 2016 but have amazing family and friends x
Hi ladies just been wig shopping( start chemo Tuesday ) not much success I’ve got short hair and all wigs look like something from the 80’s big and full bodied lady said!! Any suggestions where to buy I live in Newcastle thanks for any help xxx
I was told I wouldn’t get the voucher until I stopped using the cold cap, ie if your hair disorder fall out you don’t need the wig.
How much is the voucher worth. Does it buy a wig or is it just a bit towards a decent one?
I was given 12 mg of dexamethasone on my chemo day but no other steroids after that so it’s hard to say but I think all my EC side effects (tiredness, diarrhoea, metal mouth) weren’t changed much by the steroids
Less than a month from diagnosis and first chemo is today. I’m on the FEC-T regime. Still figuring it all out but as far as I know have grade 3, 33mm tumour, spread to lymph nodes, not hormone receptive.
Decided against the cold cap, resigned to the fact my hair will probably fall out.
Hoping I don’t need PICC or port!
Great to to read all of the tips for getting through this. Thank you ladies!
Starting chemo today good luck to us all thanks ladies for all suggestions keeps me sane knowing light at the end of the tunnel!
Got wig yesterday that if I say so myself looks good hope you all have a reasonable good day xxxxxx
Morning ladies treatment went well like you decided against cold cap my 17 year old daughter convinced me not to she said why add problems to the situation without guaranteed results and that why to try and hide hairloss go with the flow may I add this is a girl with long very thick hair and if a strand out of place the world is coming to an end!!! She means well I am going to take it easy today and hopefully we all have settled tummies xxxxx
I felt sick for 5 days despite aprepitant. I took domperidone before meals and that seemed to help me to eat, but then I wondered if they were contributing to the diarrhoea!
I’m on day 14 after EC and I feel good as long as I ignore my mouth, morning diarrhoea and now very mild nausea. My energy levels are good. I did a 10 mile walk/run yesterday so my energy levels are back to normal. No sign of hair loss so I’m hoping the cold cap has worked. I’m dreading cycle 2 next week now I know how crap I’m going to feel, and I expect it to be worse.
My mouth is awful no sores just nasty I feel tired but don’t know if this is real or lack of things to do I am making the most of the peace my kids are wonderful looking after me let’s hope it stays like this xx
Had my first chemon the 9th March. FEC fortnightly for two months and then Taxame weekdly for 3 months. I’m triple negative and just found out to be a BRCA2 carrier - joy.
I’ve had a few weird side effects. Ended up in A & E on Friday nigth as was getting chest pains and muscle spasms. Just managed to do some research and I think the Filgrastim injhections on day 8 are the probably cause of this. The chest pain turned out to be the worst heardburn ever but as the side effects of FEC can mimic heartburn I was told i need an ECG to confirm all was well. Has anyone else had these problems.
I started FEC just a few days after you (13 Mar), it’s looking like I am triple negative too (hormone negative, other test came back borderline and needed further tests but no herceptin so assuming I’m triple negative? ). Going for gene test on Thursday.
I have had heartburn, but doesn’t sound as bad as yours, nausea and horrible taste in my mouth! Trying walks too, works temporarily. Constantly sipping water, that seems to help a little.
Morning ladies hope all are well just a few questions 7 days into first fec cycle felt great until now just feel abit off is it normal to feel like this don’t know if I blame chemo or is it just me
Always feeling very cold and can’t face hot drinks only want fizzy pop! I don’t usually like pop
anymore else feeling like me
Appreciate any information have a good day xxx
Good evening to all of you. Finally I m starting my treatment on Monday 26 th. The dr said 16 cycles but 8 - something that I completely didn’t understand. This will be weekly… any tips or experience are welcome