March 2025 chemo starters

First paclitaxel is fine, so far :crossed_fingers:t3:especially compared with the EC (although I don’t want to tempt fate this early in the game!). Tired, but not wiped out, no nausea, still suffering with heartburn, so taking Omeprozole today.
I hope you do better on it, too x

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Sounds like a good plan. My appointment started an hour late, so my ice packs didn’t last the infusion time. I didn’t think about following up at home, so I will do that next time, thank you.
It may not help …… but then again, there’s nothing to lose by trying (other than very cold hands and feet!) x

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Oh no I really hope you’re ok. I’m getting my strength back each day now since the last EC but do find I get tired easily and by mid afternoon I need a nap. I hope you feel better today x

Thanks for update, really hope you’re ok on it and so am I. Take care x

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I was cold capping but after 2nd EC around 80% fell out so I shopped. It’s so hard. Every stage of the treatment is hard both emotionally and physically x

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Hello, everyone I write here before starting chemo on the 27th and now I am just recovering from my third.
I was not active here coz every cycle with docetaxel/carboplatin/phesgo is horrible.
First round had UTI infection and heart palpitations and ended up in emergency and then horrible diarrhoea for 10days and I struggled to eat so my blood oncologist lowerd my doze to 88ml instead of 120.
Second round end up with inflammation of my port scar stitches and emotional break down so had to move to MIL coz I couldn’t stay alone and because my son had tonsillitis and need to sleep away from me.
Third round now they gave me antibiotics for the port a catch tissues and it’s horrible and I hate it had to vomit once and the taste awful.
This round was harder for me than the previous ones.Everything was accumulating from Nausea/sickness/fatigue/shortness of breath/loss of appetite/hot flushes/headache.
Finally 6 day now I am feeling bit like Humayon being out of bed.
I lost 7kg until now and I still have 3 rounds to go.
Anyone have the same treatment to tell me if the rounds are getting better or worse ?

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Oh Hasnae what an awful run you’ve had. I’m different drugs to you so can’t help but sure others will be able to help I’m sure

Hope things get better !

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So sorry to hear that you’re having such an awful time. I am on different chemo to you, so I can’t comment about that, but I just wanted to send you some good wishes x

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Thank you feck

Thank you teedee

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Hello @hasnae87

I’ve had hell with docetaxel too - it’s horrendous. How are you feeling?

X

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I have not had the same type of chemo as you but just wanted to let you know I’m thinking of you. That all sounds awful. Praying it gets easier for you and/or adjustments can be made to make it more manageable. Good luck x

Today feeling like Humain again but it’s hard they should call it the clear devil.
Yesterday I was sobbing thinking of telling my oncologist to give up on chemotherapy as my tumour already shrunk (physical check).
Today as I am feeling bit ok and I can do small things around the house and look after my son I am thinking of just complaining how the SE is accumulating and not give up for his sake.

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Thank you

I understand. I had a total meltdown after my first docetaxel and said i don’t want to continue. How many have you had? I ended up in hospital with suspected neutropenic sepsis (though it wasn’t and they concluded that it was my body’s response to the treatment)

What have your se’s been if i may ask? How many do you have left? Sending healing vibes. X

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Hello, I had three rounds of Doc and I have 3 left.
The SEs are nausea and vomiting even they gave me 8mg instead of 4mg of anti sickness this time but it’s not helping much. loss of appetite and weird taste that why I lost 7kg until now.
I experienced bad headaches like my head is tight want to sleep but can’t and I can’t keep my eyes open too, unfortunately until now my sleep is missed up reminds me of when I gave birth to my son.
Multiple rounds of hot flushes and super fatigued I cried after going up the stairs once coz I struggled to breath with high palpitations.
Sometimes I feel some tingling on n my hands and my skin became very dry and sure hair loss is normal as I didn’t cold cap.

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I totally understand. Did you speak with the oncologist?

Not yet for this round, normally she called every three weeks before my chemo appointment

Feedback if you can - they have suggested lowering the dosage for me. I’m terrified of the next round.

I had similar pains, nose bleed, my nails are going a funny colour, conjunctivitis, a rash between my thighs, hot flushes, oral thrush & a constant coating in my mouth that I couldn’t get rid of. Blisters on my feet, sore skin. I cry every day. X

The nose bleed for me stopped after lowering my dose. I think if they lower your dose will be bit better or not as nasty as it’s first time.

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