I’m so scared. How are you doing today? X
Don’t worry too much, think of today and what best of it and go for small 15min walk if you can near some river with fresh air if there is someone to take you.
I am alright everything is better that the first 5-6 days of chemo so I am very grateful for every little thing and you should be too.
I notice my lump at the end of January and look now we are in May.
Believe me my dear time pass even slow or fast but it’s will pass.
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Was January for me too. Has anything helped with the side effects of docetaxel?
Hope you’re ok, please speak with your oncologist or nurse as they can lower the dose without it affecting treatment and this will hopefully make it more bearable. I didn’t have doxetaxel but I had 3 x EC and it was soooo hard. The oncologist reduced the dose. I’m now about to start 12 x weekly paclitaxel. Keep talking and remember you will get thru this, this feeling won’t last x
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Thank you - I’m terrified of the same thing happening again.
They have agreed to reduce the dose but i just don’t think that I have 3 more rounds in me. The oncologist said that the 2nd round should be better but mentally I’m struggling. X
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I try to keep hydrated so I always put electrolytes in my water and walk every day for 12-15min around even on my worse days especially in morning even slow steps.
Hi everyone. New to the forum but not new to chemo. I have triple negative breast cancer and I have completed paclitaxil with carboplatin and pembro and now moving on to EC. I am scared to start as I have found PC really good side effects wise and I have been told to prepare for an ass kicking! I have a buddy a couple of weeks ahead and she has been non stop sick and bed bound which obviously frightens me. I know we are all different but being sick still makes me cry for my mum!
I’ve managed to keep my hair so far (but it is really shedding now) and I know that will likely change soon. It kind of feels like because of how good PC has been I’ve been able to ‘switch off’ from the reality of the situation and now it feels like it’s getting real. I know I have been fortunate and could have felt like crap the whole way through but I am so worried to end up in the hospital. I had a scary reaction to my first lot of PC so that’s in the back of my mind too. I know there’s no way to know how I’ll react but is there anything that has helped your mindset or to get through EC if you have had it after paclitaxil?
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Sorry to hear about your mum being ill while you going through this.
I don’t have the same treatment but I hope someone will answer you back.
You done so well until now just think of it as the last push to take the monster put of your body.
Hi Kitten I’m also TN but my treatment is the other way round, i start pac/carbo tomorrow, thankfully my SE have been mild compared to others, brain fog first cycle and hair loss started day 15, (about 5% left 
) mild pack pain from filgristrim injections, mild constipation during steroids and I’ve had runny eyes/nose with a little bleeding when I blow. Good luck with your new treatment x
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Please speak with your nurse as they can arrange weekly calls. It’s really tough but you will get thru it. Take each day at a time that’s the only way I got thru EC. Also phone the nurses at Breast cancer now or MacMillan x
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Really mixed reviews on EC. I was very lucky and had no issues to speak of. Others have had different experiences. I don’t think any of us know till we get there.
I have cold capped and only very small hair loss which staring to recover (I’m on 3 Docetaxal now but not mixed with anything else) - will write about that separately
again, I was very lucky with EC
Good luck and hope it goes the right way for you
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Just posting to say I’ve just had my 4th (and last) cycle of EC. I’ve been really lucky in terms of side effects. Horrible taste, fatigue and insomnia being the worst - after getting over the hair loss which was tough.
Moving on to 4 x 2 weekly paxitaxel next. And just hoping I continue to get a decent run at it. I’ve managed a good few days of feeling human every cycle so far…
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I was one of the people where I suffered on EC! But if you take it day by day then you’ll get thru it just like I did. Believe me if I can do then you can! My main side effect was fatigue and weakness. But each cycle was the same so I knew the pattern. I’m due to start weekly packitaxal next week so I’m hoping I’ll have an easier ride! X
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I had phone review this morning, bloods ok, I think she said neutriphills bit low and something about thyroid being a bit out, she asked if I was on thyroid meds, I’m not, so she will be keeping an eye on things but is happy for me to start pac/carbo tomorrow, she said I may get more tired, muscle/bone pain and to take paracetamol, if it gets too painful then phone red card, anyone know about the thyroid issue? haven’t seen it as a SE. I have to go in half hr before my treatment to take anti sickness.
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I’ll be thinking of you tomorrow. Take care x
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Hope today went well, thinking of you x
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I had my oncologist call today prior to starting weekly paclitaxel. It’s v different to when I had ec. No injections, no take home drugs only mouthwash. Start next Tuesday x
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Yes it went well thank you, even though I was told to go in half hr before to take anti sickness nurse said I didn’t need it before, so during the first flush I had 2 steroids, 2 IV drugs that I had to wait 15-20 min to work (can’t remember what they were, think one was anti histamine, anyone else know what they had?), then an hour Pac and hour carbo, catheter went in easy, so far so good apart from being awake at 2.30. Be prepared for a surprise though… damn Filgristrim appeared grrrrr I said I was told I wouldn’t be needing them, so nurse spoke to oncologist, apparent she wants me to take them sat/sun/mon with a review on tues bloods, I got the nurse to write blood work down, everything was normal it was the thyroid that was low (10 is the lowest, mine was 9.7). Plus take home meds 2 anti sickness for last night and steroids, 1 last night and 3 times a day for 2 days. Good luck for next week may we have NO more SE please xxx
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So glad you got on ok. It’s strange how different the take home meds can be. But I’ll see what they me. Maybe it’s because I’m only having pac and not the other drug. Praying we don’t get any side effects x
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Hey @kittenmccaro I’m on the same treatment for TN, just finished my Pac + Carbo (they had to cancel Pembro after 1 session) and switching to EC next week.
I’m also scared of the new but at the same time Carboplatin gave me such a hard time last cycle that I’m happy to stop with it.
Let’s hope we are the lucky ones with no or almost no side effects 