Well I managed to sleep until 4.30am so not as early as yesterday. I did start ice bathing hands/feet on Thurs, wondering those of you who use the suzipads/ice packs, how long did you use them, I’m thinking mabie last day today (3 in total), not sure if was my imagination but I thought i felt a pin prick in hand/foot, you know what its like, you feel something new and automatically think was that a SE
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Hello @cruising I start felling something not right on my fingers but I didn’t use the ice packs and I use just compression gloves on the chemo day.
Should I use it everyday ?
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Im not sure of recomended time, so I’m just going to do it for a few more days and if the prickling gets worse, the mabie continue and mention it to the team
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Do check with your team so they can monitor this, neuropathy potential so please just check with them, a quick call to chat with them 
just to keep safe 
Shi xx
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I writing Notes to say to my oncologist about it on 28th when she call.
Guys who going through chemo and not going out like me.what do you do to kill the time especially as sleep is not easy as it was before.
Today I ended up phoning the same day team as my arm started to swell on picc line arm (not op sure) and it felt a bit thick. So I had bloods (all ok) and now on blood thinners til the morning when I need an ultrasound of my arm to check for clots around the picc line. For some reason it’s really upset me x
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Sending we’ve got you if you want to cry, rant or scream let it out just remember how flipping amazing you are tho cause we all know you are Shi xx
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Thank you shi, I’m usually pretty strong but today I just feel fed up with it all. Seems everyone is out enjoying the nice weather and we’ve been in hospital. I’m grateful for hospital staff and treatment but sometimes it all feels too much x
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pace yourself it feels like a slog right now but think of it like leaping over the grand national fences, keep your eyes focused on the finishing post like I say, scream, rant, cry, put on a silly dance tune and dance like no one’s watching do whatever you need to do for you we’re all here too so share if you want like you have 
we’ve got you Shi xx
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Thanks I think today is just one of those days. Tomorrow I’m back In hospital for the scan then Tuesday I start weekly paclitaxel. I quite anxious starting a new drug. I had a terrible time on EC and I really hope the weekly pac will be much easier. I’ve put on so much weight since starting chemo and today I wore a summery dress and I felt overweight, my boob on left side where I had mastectomy didn’t look a good shape and my wig was hot! I just didn’t feel anything like my oldself. I miss the old me x
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Sorry to hear your problems with your PICC, hopefully blood thinners will sort out any problem. They are great but not without their problems. It’s totally understandable to be fed up about it. My PICC caused a few problems but the staff resolved them.
I had weekly Paclitaxel only, I had aches and pains, fatigue and upset stomach, make sure you get Loperamide/Imodium. There is a risk of peripheral neuropathy so I iced my hands and feet after each infusion at home for two days. I wasn’t able to take ice packs to my centre due to distance and keeping them frozen. I had some tingling and numbness but not enough for the team to be concerned so I think the ice helped. You can also had problems with your nails, I did the Look Good Feel Better course and used strengthening treatment, dark varnish and moisturised loads.
Some say it’s kinder than other chemos, it’s a lower dose weekly rather than a high dose 3 weekly. I think we are all different and react differently to each drug we are given. Until you start you won’t know.
You are doing great. Sharing how you feel is so important and we all understand. Tell your nurses how you are feeling when you see them this week.
Thinking of you 
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Thank you. Tomorrow is a new day so I’m hoping it’ll be better. Thanks for info on cold socks and gloves and info on paclitaxel. Thanks for listening to me and @Shi for your kind words. Just needed to let it all out! X
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between chemo 4-5 I found mentally tough, I really had to dig deep and feeling the love and support from our oct17 gang and rest of forum who all understood felt like invisible blanket of strength wrapped round me we’ve got you, everyone’s got each other on here and breast cancer now’s got us too with all their support and strength and kindness for always Shi xx
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It can be so very hard and some days worse than others. Hopefully you’ll enjoy some sunshine now and the new regime will be kind to you - keep going 
you’re on the homewards straight
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Garden, walk, work (online) and lots of planning for when I’m through this! I have no creative skills whatsoever else I’d try a craft or something
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Sorry to hear that @stafford22 it’s good that you went to hospital to check. Hopefully they will sort it out for you this morning.
You are strong and you will go through this💚
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Unfortunately I do not work or drive so my activities are limited.
Yesterday morning I felt that I had energy and did things around the house and looking after my son as it’s weekend and in the afternoon I was shattered and coundnt move my knees were hurting my muscles my back and I slept for 1 hour like I passed out.
Chemo fatigue is no joke.
Gosh yes definitely need naps some days !
@stafford22 Sorry to hear this, realy hoping its not a clot and you can go onto the next phase. I daren’t weigh myself but I know ive put on weight.
I started to feel a bit queezy on and off yesterday, took antisicknes, couldn’t sleep so up at 2am, knackered now and still a bit nauseous, also taste is off again, going to try some toast and marmite to settle tummy, could be a sofa day, Ive got bloods tomorow so Ill mention it then.
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Just home from hospital and thankfully no clot. They’re not sure why it happens possibly the heat but I had a scan and all is ok so that makes me feel better. Tomorrow I start packitaxel. Hope it goes smoothly x
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