@jululemon thank you. Finally coming down this chemo mountain. ![]()
this is kinder to me. Slept about 4 hours so just going to have a chill day.
2 more to go hopefully will stay on track so my last one shouldd be 27th May. I start growth injections tomorrow. I didnt have them with EC which the nurse yesterday was surprised at. Have taken on board everyone suggestions. So
im prepared.
Have a radiation oncology 1st May hoping not to have loads of radiation (
for no more than 3 weeks 15 sessions) but trying to put that out my head and get through these cycles as safely as I can xx
@katie91 My only worry with being away is what to do if I have a PICC line issue as had a bleed around the incision post EC Chemo2 - I presume itās the old 111 and potentially A&E but I am sure all will be well for my pop to look at the sea also only a few hours from home in The Shire if worst comes to the worst.
Hey @herts82 the hair is what Iāve found most upsetting through this whole chemo journey!! Iāve got docetaxel next and Iām dreading it getting worse
Iāve heard some ladies have abit of regrowth but only time will tell I suppose. Sending you so much love though because it really just is the cherry on top of this whole shit show isnāt it
my logical brain keeps telling me it will grow back etc but itās still just abit rubbish isnāt it!!! Can you get away with a wig topper or are you just doing comb overs?
Hopefully it slows down a little bit for you as the weeks go on ![]()
Ohhh sounds good Iāll definitely have a listen, thank you for the recommendation!!
Sending lots of love and virtual hugs your way!! Xxxx
Thank you appreciate your kind words. Iāve decided the shave it now necessary so planning to do it this evening once the kids are in bed, oddly I am excited about it. When would we have the chance to do this otherwise?? (Positive spin
)
Snap again! The shedding at the crown is all too much so my boyfriend is going to clipper it either tonight or tomorrow. I figure when it grows back itās going to be a mullet if I donāt cut it now so why not! Definitely feeling a bit relieved by it - and I went out for dinner with my wig on to the first time earlier this week which felt like a big step!
Only two more to go! Are you cold capping for the last two? Iām going to persist with the cold capping, Iāve come this far so whatās two more sessions. And hopefully will help it grow back quicker once it comes
@rubytuesday we really are twinning with our chemo journey!! No I stopped the cold capping with the EC, couldnāt handle it anymore. Hope the shave goes well!!
Well done to you for braving the shave!! Itās got to be easier than stressing about it every day!! Let us know how you get on with it ![]()
Hey @rubytuesday how did you find wearing the wig out? Itās crossed my mind too that Iām going to have an odd mullet going on (if it lasts throughanother 3 docetaxel sessions that is haha) Xxx
The shave is done and I feel soooo much better for it, hubbyās left it at a grade 3 so Iām feeling a bit fluffy duckling at the moment but genuinely I feel 100 times better, and I spent about 2 mins washing my hair!
Amazing! I dont touch, brush it or wash mine at all. Other than the odd wide tooth comb through. The day before chemo I gently rinse it so that all the stragglers can come out and then the day after chemo I really gently dab a little bit of shampoo on it. Thatās it. If I comb it, loads falls out. So I donāt. I shed daily but the hairs are short enough it doesnt bother me too much. If its windy out I have to wear a hat though or Iām convinced they would all blow out ![]()
Commiserations to all of those who are getting more hair shed at the mo. Itās brutal. My one tip for post clip is to keep up your normal hair wash routine to whatever degree is sensible - once I had the buzz cut I just used whatever was in the shower to wash my head and very quickly my scalp reacted just as it would if Iād switched away from my normal shampoo. So as weird as it sounds, Iāve stocked up my normal shampoo and am continuing to wash my head with it, however sparse my hair is, to avoid breaking out like a teenager. Your mileage will vary and depends on your skin/scalp reactivity but just wanted to share.
I am taking husband out for a delayed birthday dinner tomorrow night and considering my hair/no hair options. A large part of me wants to rock the baldness, but not knowing how I look from various angles it makes me feel self conscious in a way that hair doesnāt. That said, the wigs feel the same way! Might go with the mad purple one I got off Amazon for lolz.
Enjoying the ābestā days from today until Wednesdayās infusion. Celebrating with a full bone scan at the hospital ![]()
Glad to hear some of you are getting away. I live near the beach in Edinburgh so I am getting to the water as often as possible for a top of up water serenity. Itās very good for the soul.
Happy Friday everyone x
Well done @herts82 . Itās definitely a good step if the shedding was driving you mad. You do get used to it. On the hair washing, all Iāve used since shaving my hair is Aveeno calm and restore facial wash - on my head. No shampoo. My head has been quite itchy at times so I use this then slather moisturiser on while head is still damp (Aveeno or Moogoo). Seems to help. I donāt think Iāll go back to shampoo for a while. Mine is probably a couple of cm long now (patchily!).
Better than going out with the bald patches! It was weird but I think I would get to it quite quickly - although not sure how I would feel about going out in the wind!
Feeling a bit low and icky today. Iām 4 sessions into my 12 sessions of pac and am on day 5 post infusion. I have 8 more pacs to go and then 4 EC. Feels like a long road ahead still
had my COVID jab yesterday which I donāt think helps with feeling rubbish today. Anyone else had a spring jab? I did make my little girlās day yesterday though because I went to pick her up at the school gates- I havenāt been for over 2 months and she was absolutely ecstatic. It felt like a big thing to do as have been so self conscious about wearing a wig.
today the rest of my hair parted company but for a few tufty bits. gave in and cut them to 3mm as it was driving me nuts. WEnt to local charity run cancer care centre and burst into tears as so upset. There is a big difference between the theory of losing your hair almost overnight and the reality. They fed me tea and cake and listened to me rant and cry.
Thankfully cotton headwrapping scarves have just arrived from Suburban Turban. going to curl up in a pile of blankets and allow myself to feel sad and miserable over all this.
Sending you lots of love, I wonāt say much because I know nothing will help and it is shit!!!
But you curl up as long as you need to and let all the tears out!! Iām so glad you were supported with tea and cake when you needed it xxxx
Pure cotton headwrapping scarves from Suburban Turban. They also supply bamboo and silk scarves. One thing to note: you do need some hair for a silk headwrapping scarf to grip on to. They slip off otherwise. Not an issue with the pure cotton ones.
Wrap up warm and nest, thereās no where else you need to be today or any day soon. Home and safe. The weather is still chilly enough to wear a cosy hat when we go outside. So whoās going to know or care, no one
I think once you get used to it youāll feel better. At the end of the day, you are still you, you are still here ![]()
@foxgem thats really lovely u made me feel a bit better about my own hair dilema . I get very stressed about the right thing to do thinking it could all go at any moment but if it happens then it happens.
@wibbles i understand how upsetting it all is i hope u feel a bit better about it soon
This hair stuff is really tough isnāt it. I think everyone doing what they need to do is all we can really - shave, hats, wig, hair piece, all of the above - itās hard to make your own choice until you actually get there as we donāt know how weāll feel. I admire all of you - mines hanging on but I dread combing or washing it as it feels like itās all just coming away and I always think the wind will blow it away too. I think chemo strips away so much of us but the hair bit really is brutal. We need to grieve it a little in whatever way we need and keep on keeping on I guess. Sending lots of love n hugs to everyone and wherever they are on this shittiest rollercoaster.
