No taste changes yet but I really struggled with that the first 2 ECs. My appetite has been much better, haven’t had to force myself to eat at all and I’m finding it easier eating healthier again
@cazgib10 on paclitaxel I had odd/no taste for about 48 hours after each one then it wasn’t too bad. I still had an appetite so I just ate normally and accepted that toast would taste like cardboard! I found citrusy things tasted normal so had lots of those. I think you’ll need to experiment with what works for you.
@sam1204 sounds joyus sorry i just really want this all to be over i have had 3 weeks away from the chemo chair and all i have done apart from eat loads is worry what is happening to my body everytime it aches so God knows what im going to be like with pac but as long as i have some strong painkillers hopefully all will be well
Awww when did you have your 2nd one? Moan away, let’s face it, it’s crap!!! But look at you almost at the end and I remember you didn’t want to have it in the beginning and you’ve almost completed it ![]()
I was buzzing for the first 3 days after docetaxel probably the steroids and then I crashed day 4/5, today has been easier but still abit of a struggle!! Xxx
I did my 2nd Docetaxel Wednesday. Was ok Thursday but yesterday it just took me out![]()
Ive made no secret how much I have struggled through chemo, not that I think Im the only one who has suffered.
But its hard to know where to turn when physically and mentally not sure how much more I can take.
Trying to focus on the end which Im praying stays on track due to my low haemaglobin counts which makes my exhaustion worse.
I hope i can get to the end and be proud of myself
Thank you x
@sammy75 you will! You’ve come this far, you can finish it ![]()
It really does hit hard on some days and I think no matter how we’ve got on with chemo 95% of us here have thought we can’t do it!! I remember on my 1st EC thinking how on earth am I going to get through 6 chemo sessions!? And I’ve now only got 2 left, I’m having a really rough couple of days but I know I will feel abit better (hopefully!) as each day passes, I’m trying to make sure I do a little something that I really enjoy each day too dependent on how much energy I have ![]()
I’m very proud of you @sammy75 ![]()
Your honesty will have helped lots of people that think they are alone and the only one struggling. I know I come on here and shout positivity and it must drive some people mad
but the reality is like Katie said, its all crap
Your last 1 though @sammy75 thats amazing. Considering the side effects you’ve managed that’s a real achievement!
@sammy75 you are one of the most courageous woman here.
You still do what you can to look after yourself and you have continued with chemotheraphy even though it’s been so hard for and on you.
@foxgem thank you so much.
Your positivity is amazing and helped you and others.
I was in such a dark place yesterday and didnt know where to turn. I dont want people thinking all i do is moan ![]()
Thank you @katie91 just days I cant do a single thing. Just managing to eat and drink is a challenge.
Im trying to focus on getting to the end on track. But with my haemaglobin dropping its making me more tired.
Thank you for reaching out on what was a very dark day x
Thank you so much.
Was finding everything so very hard ![]()
I’m so sorry lot of you guys are having such a crap time. I haven’t had my Docetaxal yet and am absolutely dreading it I must say. I just want to send love and strength to everyone. I think I had imagined before I started that the first ones would be harder but actually I think it’s the middle bit when the side effects are awful and it feels like there is no end to the tunnel. I think coming on here and being honest about what’s happening (and that isn’t moaning it’s truth telling) is probably one of the best outlets we have as we’re the only ones who really get it. I sometimes go in to earlier forums where people are talking about it being over - it helps me to know that they went through this too and survived to the end.
Sending healing, supportive and loving vibes to everyone with our variety of horrible side effects - they are different for us all but still crap for everyone in their own way ![]()
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Morning all, I have returned from my mini break by the sea in Wales. Lovely weather, beach time finding sea glass and wishing stones and seeing Son 2. Lovely to do something not cancer related! Also developed a third eye teenage style spot on my forehead and a small break out on the face in general - an excellent symptom addition ![]()
@sammy75 , @katie91 & @clarabelle1 and all others starting new regimes or struggling to reach their last few - it’s tough but you are all tougher. If this thread is anything to go by what amazing resilient people you are. Nothing is predictable and our bodies throw us these curve balls that we have to absorb and keep moving forward with. Genuinely in awe of you all.
I am off to have a cocoa coffee as per our Neutrophil Cocoa Guru @sam1204 ! Blood test tomorrow and starting the Paclitaxel Thursday. Have a good week all. X
The bone pain is much worse if you’re having the filgastrim injection as well, I know not many in this boat but if your WBC and neutrophils are good speak to the oncology team about dropping the injection. Otherwise I would suggest the drugs and lots of movement to keep that blood circulation up. My pain started around day 2 and was much better my day 5. Because I found the taxol much easier than the EC I did find this next set felt like it went a lot quicker, so just keep going everyone the end is in sight x
@katie91 did you do the salt water and bicarb soda mix to rinse your mouth?
Getting mobile certainly can help with the annoying bone pain post chemo/injections.
Best to start with simple mobilisation exercises little and often then steadily work up to more once the pain starts to ease. Do not make my mistake, first time round tried to stay way to active as l had pre-hab. Ended up paying back hard by being wiped out for the next two weeks. Little and often mobilising then slow and steady strengthening helped far more and has proved more sustainable. Wish my brain could hack the starting to feel more yourself then your back doing Chemotherapy and right back to zero again.
Cocodamol and massage is helping today and some light stretching really eases the pain.
Onco nurse said next time start taking the cocodamol the day after the chemo to build it up in my system so I will do that. I didnt expect so much pain but I think for me my period plus the filgrastim injections alongside the paclitaxel is just a really bad mix. If it’s just day 3 to 6 I will manage
we’ve got this
I think that’s one of the things I find really hard @wibbles. The starting to just feel like a version of myself and then going all the way back (or sometimes further back) than before. It really is an emotional rollercoaster as well as a physical one isn’t it this bloody chemo. I know that there are good days and bad days though and I’m keeping track of things so I can look back and say to myself ok well this is how you felt last time and came out of it so you will again ![]()
Sounds like good advice @foxgem - knowing you’ll come out of something makes it bearable doesn’t it ![]()
You are a tower of strength ![]()
My positive for today is that Ive managed to have a shower and get myself into clean pjs.
Dreaded no 4 growth injection tonight so hot water bottle on stand by.
Apprehensive as last cycle was in hospital day 7 ![]()
