Hi everyone,
Just curious with all our aches and pain how’s everyone’s vitamin d? The more I read on the subject of lack of the more interesting it is…cancer, autoimmune stuff. Your thoughts?
Sue
Hi B, glad you have a much deserved break booked, not too many weeks to wait. Will look into the insurance but we know we will have to pay whatever. I used to sell medical insurance for travel and with the start of the first few questions they have you even people that had bc 10 years past were being made to pay quite a sum. Hope you improve once you start thevshoulder treatment. Like you, I often think we will always have some sort of TWINGE. But, let’s think positive and take any treatment that you believe may help. Still taking the antibiotics for this abcess, slowly getting better and then I must have the tooth out. Joy! Let us know once you start the treatment and sending lol xxxxx
Hi ladies,
Pandorra I’ve been back to the hospital this morning to get my swelling boob checked and the lovely BCN I saw said it does look like breast lymphodema so she is referring me to the lymphodema clinic to see what we can do to stop it getting any worse. Might be worth you doing the same if yours is still swollen?
Francine I hope you’re still OK, I know you’re seeing your breast surgeon on Thursday so I’ll look out for a post from you then but in the meantime, just wanted to wish you well for that. Are you definitely having a mastectomy this time or are you considering whether you want to try another WLE? Whichever way you go, remember it’s your body and the surgeon works for your benefit so it’s up to you to choose albeit having listened to their advice.
SueBee I’m sort of taking Vit D tablets (as in, when I remember :womanvery-happy:) because I was prescribed them after some blood tests a year or so ago. I’ve heard since then that an eminent breast cancer surgeon recommends them to all his patients but having come across that particular eminent surgeon before I have to say I take his advice with a very large pinch of salt as his speciality appears to be self-promotion via any old nonsense rather than actual peer reviewed research.
Hope everyone else is doing OK
xx
Sharon
Hi ladies, hope all ok and progressing. Thanks Sharon, will have a check if doesn’t calm down. Really strange as somedays the nipple is very red and then back to normal, when I last saw my surgeon for a check he said the rads go on for some time. Good that you are goibg to be seen. Just had my results on thyroid, b12, iron etc, as doc said sometimes the rads affect. All good but I am taking vit c daily, or like Sharon, when I remember. Count down to job start for Sharon, we will all be thinking of you. Lol to everyone and sending hugs xxxxx
Hi all!
I hope the lymphedema calms down for you ladies. It doesn’t sound pleasant at all. Exercise and fluids are supposed to help to keep everything moving. I wish you well. Hopefully you’ll both see improvement.
The vitamin D deficiency is also big with inflammation too. How much are you taking Sharon? I was told to take 2000iu not more than 5000iu. I just ordered vitamin K2 also. Something of the absorption of D needs K2. I’m reading about short term mega doses…Interesting.
I have my herceptin infusion today and tomorrow an ultrasound on my neck a follow up appointment looking at a hot spot for cancer…we’ll see. Oh yeah and hopefully a shot of cortisone for my shoulder that has been hurting bad now for months. The xray says it’s arthritis!
Fun stuff though…I have an outdoor concert after the infusion…seeing Elivis Costello and Steely Dan!!!
I’m tired of hurting all over in my joints like walking upstairs! I know exercise would probably help me too but I’m just feeling sore all over! Ugh! Old at 51! But I will enjoy the show!
Sue
Hi Francine, just caught up with your news on the other thread, v glad to hear you’re going for the less traumatic surgery given everything else that is going on, 28th will be here before you know it and I’ll be spending the day willing a good outcome for you.
xx
Sharon
Hi Sharon
Yep think it’s the right decision. I’m very lucky to have such a good surgeon who discusses everything with both me and the OH. How’s the going?
Hi Francine,
Glad you’re happy with your decision, progress at last which must be a big relief!
New job starts on 17th so I’m busy trying to enjoy my last days of freedom. Had scheduled a trip to Brighton today on the train, with a friend, but we couldn’t do it because the tube strike meant we couldn’t get to the train station. Bit annoying but hopefully I’ll get to go next next week instead albeit on my own as friend will be away.
Lovely BCN I saw on Monday has been super-efficient and organised appointments for me with the lymphoedema clinic and a follow up with the surgeons so I’m feeling much happier now that I’m back in the hospital system (was told I’d ‘got lost’ after radiotherapy but I’m suspect they just couldn’t bear the thought of having to deal with me again, and I can’t say I blame them :womanlol:)
xx
Sharon
Hi ladies, hope everything going ok. The time is just racing, doesn’t seem that long ago that we all met. Hope everyone getting orvhad their follow ups from rads. Sharon, have you started the job? Been thinking of you. Last week I finally had the dreaded tooth out. Oh, I was so brave. Starting to feel better now but can only eat on one side. Never mind, we’ve had worse haven’t we! Taking my daily vit C drink and I think I feel better, or is just cause I know I am taking it. Still not sorted the holiday, looking at Malta, any tips. And still got to sort insurance. Have a good evening and thinking of you all lol xxxxxxx
Morning all 
Great to hear from you all and I’m so pleased that we all seem to be moving beyond cancer-land although the weird side effects seem to linger don’t they (my leftie is still swelling/changing shape like a lava lamp :womanfrustrated:) Still, it isn’t at all painful so compared to everyone else I’ve been very lucky. Hope your side effects calm down soon Pandorra.
Lovely news about your daughter Rose.
First week of new job survived and…I love it :womanvery-happy:wonderful surroundings, fantastic colleagues and interesting work. Whether I’ll actually be able to *do* the job remains to be seen (feel like I’ve forgotten how to work after 18 months off) but at least I’ll enjoy myself trying. Kitkat baby is well and the whole cancer malarkey feels like a lifetime ago now although I do have an appointment with the lymphodema clinic this week.
Got my first annual check up booked now too - it’ll be in November so I expect I’ll be whimpering with fear at that point but for now, life is good. If we can organise a get-together I’d definitely be up for it, would be so great to meet you all in real life.
love to all
x
Sharon
Well some of you may be moving on, she said with a wry smile. ? Suppose I will be one day, of course. So pleased for you all. Rose, lovely to hear all your news. Sharon, you’ll do a fantastic job, it sounds lovely. Having my 3rd WLE next Friday and praying it will get a clear margin. They’ll be keeping me in overnight and possibly extra day, to monitor my blood pressure and make sure I don’t have any more problems with my bowel. If not clear, then mx. Me and the OH are feeling rather apprehensive about it all but it may be 3rd time lucky! Had my pre op assessment on Wednesday and the BCN said ‘oh you again’. Didn’t know whether to laugh or cry but I did the former of course. ?? Tele in the room was showing a programme about humanist funerals, so cheery, lol. Onwards and upwards. Xx Francine
Francine I think you win the prize for staying power, pretty sure most of us would be permanently curled up in a foetal position having gone barking mad with stress by now. Roll on next Friday and I hope this will be the last time you have to go through it. Will be thinking of you and sending every possible good vibe your way.
xx
Sharon
Thank you Sharon. I think having to keep my business going has helped me to battle on, as you have to keep the money coming in. Couldn’t have done it without the amazing support from my OH and I know I’m lucky there. Had a bit of a down day yesterday, not sleeping very well and everything seems worse when you’re tired doesn’t it. The Anastrazole is keeping me very warm at night, is all I can say! I might appreciate it in the winter of course. X Francine
Hi Chez and Beryl
So sorry to hear your news Chez, such a difficult time for you and goodness knows where you get the strength to cope with it all. Life really is **bleep** sometimes. Beryl, I had a conversation with my surgeon yesterday about the Anastrazole, which is the same as Letrazole. I’m having hot flushes at night which really disrupt my sleep. He was quite insistent I should stay on it as it has proved very effective at reducing recurrence according to the latest studies. I suppose I’ll just have to put up with them if it stops it returning. My 3rd lumpectomy went ok yesterday but they were very careful with me after the major problem I had with my bowel. Managed to get home the same day although not until about 6.30. Now have to wait 3 weeks for the results (more waiting). If it’s a clear margin, then I’ll probably have rads but if not it will be a mx. Have plenty to keep me busy with the business and an office move to arrange. Feeling quite groggy today, too much anaesthetic and morphine I think! Hope you’re all having a good break, weather is very nice here in little Rutland today and I’ve resisted the urge to rush and put the washing out! Love Francine x
Morning ladies
Cheryl I’m so pleased to hear from you but so sorry to learn about your dear Mum. I found it comforting to be able to say last goodbyes so I hope it was the same for you and I’m sure she would have found comfort in knowing that she had her nearest and dearest with her at the end. The work thing is sounding ridiculous now, what on earth are they playing at?! Sigh. Must just make you long for the day you can move on to something else. And now you’ve got your Dad to worry about too…it’s just all too much sometimes isn’t it. Sending a huge great bear hug your way.
Francine I’m so glad to hear your WLE went well and you’re home already, just the anxious waiting period to get through now *crosses all bendy bits for you*. Sure you’re right about work distractions being a good thing so I hope you’re business is prospering now you’re back at the helm.
Beryl that’s sounding a bit miserable. Oh these hormone treatments sound awful all round to me! Totally get not wanting more surgery, especially given the rough time you’ve had.
New job is still going well and my handover with my successor finished on Friday so I get to go it alone next week - yay! Have felt a bit tired but I think that’s because I haven’t slept very well (mind permanently racing at the moment with work things). Saw the lymphoedema nurse on Thursday and was told that the swelling boob is a result of radiation damage and ‘drainage’ problems. Ewww, sounds a bit gross but at least it isn’t anything serious to worry about so that’s great. I’ve got yet another cold sore now (second in the space of a month) so I think my immune system is still struggling. Really need to make more of an effort to eat better and get some sleep. Sure it’ll all right itself eventually.
Hope you’re all enjoying the bank holiday weekend
love to all
xx
Sharon
Oops, brain still not working, I meant ‘predecessor’ not ‘successor’. And ‘your’ not ‘you’re’. Duh!
Lol Sharon! Thought it was rather a short job history! Mind you, in my youth, when jobs were plentiful, I did start a job in the morning and left it lunchtime! Just went out for lunch and didn’t go back, naughty! Strange how memories come back, I remember I was wearing my brand new pink Biba maxi coat on that day. Still feeling very zonked after my op but after 4 ops and a 10 day stay in hospital in 6 months, I suppose it’s not too surprising! Perhaps not the day to do the VAT return?! X Francine
Glad to hear you’re doing OK, albeit a bit zonked Francine. How is your boob holding up? And I totally love the sound of that Biba coat, do you still have it?
Personally I think the best time to do a tax return is when your brain isn’t working properly; it’s the only way to not get massively irate with those endless forms :womanfrustrated:! I did mine a little while ago and am now planning a shopping spree with my mahooosive £77 refund. More Sainsburys than Hermés sadly. Why is it that when we owe them money it’s always a five figure amount, but when they owe us some, we’re lucky if it would cover a weeks supply of cat food?! Still, I suppose any sort of refund would be good for you, if only because I suspect the hospital will start charging you rent soon…:womanlol:
love to you
x
Sharon
Hi lovely ladies, been a while since i peeped in, busy sorting new furniture and deciding on a holiday. Great news with the job Sharon, take it easy. Sending love to all you lovely ladies and positive thoughts. Still getting horrible pain on the scar area, feels like millions of glass pieces. I know I should have done more of the exercises and so trying to do now. Just hope it gets better by December as the thought of clamping when I have the mamo sends shudders. As for the anastrozole, we can only hope it gets better. The hot flushes are horrid and some mornings I feel the stiffness in my joints. I have been taking vit c drinks daily and I am sure I feel better. Oh well lets all rejoice together. Lol xxxxxx
Hi Ladies!
So much loss…this is a tuff time in life when it seems the apple cart has been turned upside down. I can relate. And we are Marching for sure ladies. God Bless you all.
Sue