I’m glad I had my Mirena removed at diagnosis - in fact the Dr that diagnosed me recommended it in the first instance. Histology showed me to be ER 30% and PR 70% which proved in my mind that the Mirena had an effect on me developing bc (had the Mirena for 3 years). I asked my Breast surgeon on 2 occasions whether the Mirena had any impact on me developing bc but he said ‘no’ it was just ‘bad luck’ but I have a different opinion but just can’t prove it. Wondered if taking a class action against the company who produced it would be feasible.
I had low grade invasive ca diagnosed in april 06 Er+ required wle and rads and was commenced on tamoxifen, which caised me terrible period probs with prolonged heavy bleeding and flooding so had mirena inserted under ga in jan 07 which has been great for bleeding probs.
im pretty sure if the title of this thread was ‘no contraception linked to breast cancer’ you would have even more people posting as the majority of people who get it are postmenopausal and no longer require contraception.
women are more like to get breast cancer than men.
women who are older are more likely to get breast cancer than young women.
women who are older are more likely to have mirena coils than young women.
many women who have mirena coil now were previously on the combined pill which does have a link to increased incidence of breast cancer.
also as said before many people have the mirena inserted because of heavy bleeding so could it not be the bleeding issues which indicate that you are at an increased risk of bc and not the mirena.
although i know a lot of people want to find somebody or something to blame the two main risk factors are being female and geting older but unfortunately those are the risks we can do nothing about 
I had the same issue as you. Mirena for about 3 years. Then I was diagnosed with breast ca and the doctor wanted it robed right away. I have no family history and my genetic testing was negative. Have you figured anything out? As u see we are not tr only ones.
Is anyone still out there? I’m still waiting for a link to be discovered.
Hello I have questions. I had the marina. Got it in april this year removed yesterday bc the side effects were crazy. Decided to do a check up too. They found a lump on my right breast. My doctor wants to see me back in six weeks to see if it goes away with new birth control. Advice?
I have always thought that my Mirena coil was connected to my bc. My mother also had bc and I was told never to take oestrogen-based contraception eg: pill but eventually was given a Mirena coil. Asked about this and was told it was progesterone and low dose so would be OK. Five years later I was dx with bc. 8/8 Oestrogen positive, 8/8 progesterone positive bc.
BS also told me to remove my mirena coil as soon as I was dx
It isn’t genetically linked, or at least no brca1 brca2 or palb2 link, so I wonder if hormone sensitivity may have played a role
My sadness is that one day in the future, we will be ‘the past and the voice’ of the many who said the ‘Mirena’ was usafe, and eventually maybe one day trials and evidence will come through to demonstrate that we were right. I say this because my ‘intuition’ (yes NOT evidenced based) told me that I was uncertain as to the safety of this product. However, I allowed myself to be convinced by the "medical experts’ that this was not the case despite myself and a multitude of other woman saying ,“Ummm…Are You sure?”. Because I’m hearing about all these woman who were desperate to resolve their ‘menopausal bleeding issues’ and now they are dealing with a new diagnosis of Breast Cancer shortly or within 1-5 year time span of having a Mirena inserted. Woman like myself whom had many years (16 to be exact) of ‘clear mammograms’ prior to the Mirena. And then within a few months of my Mirena insertion. I found a new lump and guess what “its Breast Cancer”. Yet I had lumps before over my 16years of being Cancer free from my first Breast cancer (diagnosed aged 35yrs) and all of them proved to be either fibrosis, cysts or benign lumps. Yet just a few months after my Mirena is inserted a lump grew quickly, I ‘sensed’ an uh oh moment. Thinking hmmm? That was quick and its not resolving or going away (as the others did). Don’t get me wrong ‘the Mirena’ definitely helped relieve me of my heavy bleeding and hot flushes. However, these symptoms although a big pain in the arse did not carry the risk of “killing you”. So here I sit getting prepared to have my whole world turned upsdie down as I commence the journey towards saving my life. This journey is going to involve Surgery, Chemotherapy, Radiotherapy and Herceptin Treatment, not too mention the physical, emotional, psychological, spiritual and family impact this will have on my life. Do I have the evidence to state that my Mirena caused this…NO. Does my Intuition, my gut instinct state that the Mirena may have influenced this outcome…YES. Will I ever be certain? or be able to prove this?..Sadly NO. Do I regret having the Mirena?..YES! (#note)-Within a few days of having the Mirena removed my hot flushes returned with a vengeance. Which for me indicates the powerful affect the Mirena does have on Hormones. So now… I would rather live through the horrible symptoms of menopause than risk having a Mirena. Although the Mirena has benefits. I would sooner be a sweaty bleeding woman than a dead one. This whole debate and situation for woman is So Sad… So very very SAD. Bless all the woman out there whom are suffering, confused and searching for answers during this most difficult time. All I can say is follow your own inner guidance, seek your own truth and trust whatever decisions you make will be Okay for you. I wish you ALL THE BEST! and pray for us all.
I got the mirena coil out to try for a baby after having had it in for 4 years for contraceptive reasons. 2 years later and I have breast cancer. Don’t know if I’m just looking for something to blame, my mother did warn me not to get it in as it’s false hormones roaming Around your body… maybe I’ll listen more to her next time!
I am currently in the waiting game for results after a biopsy last week so have been googling anything I can find to help determine whether it might sway more to fibroadenoma or the full on C word and had an epiphany. My marina coil is due to be replaced later this year and a couple of months ago I started to get periods again. In my mind I was thinking maybe hormone changes causing the mass but on doing more research it appears there are more sinister connections even if not scientifically confirmed. It amazes me that there isn’t more information on possible links.
I have had a marina going on 11 years. I’m 36 and just got my 3rd one put in this past April. About 7 days ago I found a lump on my left breast in the 7 o’clock area. I was heading into the shower standing in front of the mirror putting my hair up and saw it. As soon as the Dr office opened the next morning I called and made appointment. About 2 hours later I was in the office talking to the PA. It seemed as though she couldn’t feel it when I was lying down during her exam however once I sat up and put my arms up she could see it. I have my mammogram and US tomorrow morning I’m petrified. I have never had any problem with the marina but now I’m worried especially because of the length of time I have used it. I use it for birth control and as a mood stabilizer because of the hormones. The only side effect is I haven’t had a period the entire time I have been using it. The 1st 2 were put in by the same dr but I moved so a different dr inserted it and was told this would be my 3rd implant and she said that it was fine. Since 3 was inserted I’ve felt off like my body is running differently. When I found the lump one of the 1st things I thought of was the marina. The lump is about the size of a quarter it seems solid but it moves side to side a little. After reading the posts most of you have only it in for less then 5 years. I’m not sure if the marina has anything to do with it but like I said I’ve felt off since the last one was inserted. Maybe it’s a coincidence but after all I have read I’m concerned.
I had mirena since Dec 2012. It was installed as I had a heavy bleeding non stop. Mirena certainly stopped that and I didn’t have periods during having mirena. 2 years ago my GP prescribed me eostregen patches, the minimum doze explaining that I have very low eostregen and it will help me to keep my bones healthy. This year after having 4.5 years of mirena and 2 years of eostregen patches I was diagnosed with breast cancer no particular type, stage 1, eostregen responsive, pregesteron negative. I found this forum and after reading about others experiences with mirena I feel that there is a connection between mirena and breast cancer.
In April the tumour was found during routine mammogram comparing with images from two years ago.
In May I had to go through the surgery removing the lump, that was 8x6mm, and the sentinel node that was connected to the breast. The biopsy showed that the lymph node had the lump (2.7mm) as well that led to the second surgery of axillary clearance. I’m hoping to survive all of this…
Hi.
I am just after mastektomy and before decision what to do with Mirane. I am 42.
I have read many scientific articles showing that all false/synthetic hormons can laverage risk of breast cancer.
And I could notice repeating pattern in BC cases.
When I talk with breast cancer survivors, it turns out that they cure the thyroid at the same time. So maybe the combination of thyroid hormone (eg Letrox) with Mirena so drastic increases the risk of breast cancer?
Do you treat your thyroid at the same time? Are you taking synthetic thyroid hormone?
I have had Mirene coil for 11 years. Unfortunately I was diagnosed with breast cancer after 4 months of taking Letrox (synthetic thyroid hormone). In theory i am out of BC risk group.
Please send me even short message (Yes/not) if you cure the thyroid at the same time.
You can also read following post: healthimpactnews.com/2014/taking-thyroid-hormone-increases-breast-cancer-risk-by-200/
I wish you much health!
Dorothy
Hi Ladies, I had the Mirena coil for around 15 years. I have no family history of breast cancer. I’m 48, diagnosed in March and still in active treatment. As soon as I was diagnosed, my Oncologist told me to have it removed. I’ve had chemo, mx, lymph node removal and awaiting radiotherapy. I’m ER/PR+ HER2- grade 2. 9/12 lymph nodes positive. I just found this article which is quite interesting and suggests medical opinions in the USA are slowly shifting towards the Mirena coil increasing the risk of breast cancer.
healthline.com/health/breast-cancer-and-mirena#overview1
Katerina
There is a clearly acknowledged link between HRT and breast cancer. That is why HRT is no longer recommend in the UK for routine use. The Mirena coil is not HRT. We don’t yet know if there is a link between the Mirena coil and breast cancer. It seems very possible but I don’t think it’s been shown by any studies yet.
I think the vast majority of doctors in the UK are very conscientious, caring individuals and are not handing out remedies without thought. That are all trying to do their best with the knowledge that is available to them.
They are all trying to do their best…
Damn phone!
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I am sad because I have used Mirena for two years I didn’t know that it is dangerous . The last December I removed it because was so uncomfortable… was nightmare, the first 3 months my breasts had increased of size … when I went to the GP and hospital to remove it they refused to do it finally in since April last year in my left breast I started to feel a deeply painful I when to GP again many times …finally they discovered some cysts in my left breast … but they told me that these are no cancer but they didn’t remove them s ones to analyze …so I can’t to trust to the doctor because it is clear, another thing is that nowadays I have a painful in all muy left side. I will try to insist ??
Newly diagnosed with ER positive Stage II breast cancer. Had the Mirena placed on April 2016. Mammogram July 9, 2018 showed changes in breast tissue. Diagnosed on July 25th. The first instructions that I was given by my oncologist was to have the IUD removed. I specifically asked if the iud had caused it and was told “no we’re not saying that, but we need to get it out immediately.” I truly believe mine was caused by the MIrena.
When I was diagnosed with ER+ breast cancer my surgeon told me that I had to get my coil removed immediately. My GP was furious - there’s no oestrogen in the Mirena and as far as she was concerned too many surgeons don’t know this and give poor and frightening advice to women. I did have my coil removed, but it was due to be removed anyway due to my age. I’d had it for 7 years with no issues, and there was no indication that my breast cancer was in any way related to the use of the coil.