Hi WS
Firstly i’m so sorry you’re feeling so anxious, secondly, i’m furious, what a stupid and irresponsible thing for your BCN to say. You’ve had a CT scan and you know that was clear so can’t be related to any spread, they already know what types of cancer you have and the grade so can’t be about that, surely that only leaves the number of lymph nodes involved? I can’t possibly imagine what she means by need to discuss a plan when they’ve already told you that the pathology wont change your treatment plan. I think it probably is a good idea for your OH to ring, i’d be the same as you and would be too afraid, but as an outsider looking in, i’m hoping she’s just got a terrible way with words. Is your OH going to ring her in the morning?
Chin up
Lydia x
Hi Lydia,
Thanks, yes he is. I agree with all you have said, Unless she means the plan for RADS and Arimidex? I do know that I haven’t been staged yet…
I hate it when they leave those awful ‘half-information messages’ it just gets you wondering about the worst, well it does me anyhow!
I wasn’t expecting to hear from her as I am seeing my consultant on Monday, and as far as I was concerned I would be getting the results from her (as we discussed when she came to see me on the ward). Also the district nurse is visiting me.
She knows I live on my own with my son and very little support…
Oh well, more waiting I suppose.
WS
Hello ladies
Had a very nice meal out last night and a couple of glasses of wine which went straight to my head! I had to go to bed straight away when we got in and Cleo ended up sleeping next to me on the bed!
Bettie, hope you got your first rads out of the way yesterday and didn’t have any more problems!
Dani, glad to hear you are recovering well. Have a lovely time in Cornwall and I hope the weather is kind to you.
Wolsty, there is no stopping you now is there?! Glad you had a lovely fun weekend and enjoyed the Paralympics last night.
Beryl, glad you are enjoying your time at your daughters. Hope the pets keep behaving themselves!
Gabbylamb, how is your sore area on your boob and your nipple? Hope they settle down soon. My chest area is slightly pink, but my underarm is quite a bit darker pink and sore.
Rae, I do hope you manage to join us in November. Do you know how many rads sessions you are having?
Caren, glad your return to work is going ok. I have been very interested to read about your HD brows and glad you are happy with them. I have taken the plunge and am going about mine next week! I hadn’t ever heard of them before you mentioned them but have done a bit of research on the net and they do look good! My brows are really dreadful, I usually have them waxed but they are so thin now, they don’t really have any definition. You had really good brows when you were pencilling them in during chemo, are they quite similar now?
Parsnip, glad you only have a couple more days to go now. I expect you are really tired with all the rushing round you are having to do. I am sure you will really appreciate slowing down a bit next week.
Carolyn, glad your return to work is going well. Hope you have a nice weekend away in Worcs.
Carmy, glad you too are getting on ok with your back to work! Hope you got everything sorted out with your rads. What a lot you have had to think about and wade through!
GeorgieB, you are well sorted out now for the wedding! You will have to practice walking in your heels! What date is it?
Marie67, I am with you on not using my right arm as much as I used to. I have done some ironing right handed, but tend to use the left mainly (not that I do lots!). My left arm is still tender in places from having the chemo but I guess that will lessen in time.
Waiting too, goodness, haircut?!! I couldn’t bear to part with any yet!!
WS, I am so sorry you are upset! How thoughtless! I totally agree with everything Lydia has said. I bet she just wants to go through the plans for rads and meds, nothing else. I am glad OH is going to ring her tomorrow and I hope he tells her how upsetting her phone message was.
Bit more info for our meet up, cant remember whether I said, but we can order from the meal deal menu too. So, I thought maybe you could all make your choices and PM me with them, I can collate them and pass them on to the restaurant by email so we shouldn’t have any mistakes. You can order from the set 2 course, 3 course or meal deal menu’s. If I could have the choices by the end of September please. I am off on holiday on 10<sup>th</sup> October, so I will need to get it done in good time. I am not sure really what to suggest about the deposit. I guess they wouldn’t really want us all phoning up with our individual £5’s, especially as it would cost them more to process each transaction. I might ask them if I could send them a cheque to cover it but ask them not to cash it unless we don’t turn up. Or everyone could send me a cheque? Any suggestions?
Amylou, Dulcie, PoppyD, Mollie43, Elke, Pargayan, Jayjay, Lindy50, Gary and Angelhearts, WHERE ARE YOU ALL?! I do think of you all often and wonder how you are. Historygirl, I know you post elsewhere, I hope you are getting on ok. Xxxx
Well, I am off to watch DALLAS!! Cant wait!
Joan xxxx
Morning MM’s xxxx
Finally gave in and rang the chemo unit aout watery eyes as was really bad yesterday and they were running constantly. Nurse said it was down to the chemo irritating the conjunctiva and recommended a product called viscous tears…nipped to chemist and have used it 4 times now and they are defiinately improving xxx i suppose the plus side was I can’t wear mascara as no eyelahes so at least it couldn’t slide down my face xxxx
Patchit… Joan…will have a look at menus, one of my faourite hobbies, this weekend and let you know asap. Just let me know re deposit xxx I think i will drive myself to rads…will get more shopping done that way lololol
Wintersocks… Thinking of you and hope your OH gets some answers for you today xxx
Waitingtoo…Wow a haircut…I show my hair what there is of it to OH’s hairdresser when she comes each month as she can see more of a difference than us…I miss my hair now.
Parsnip… Sorry you’re feeling tired but not long to go now xxxx
Carmy… Pleased to hear your first day at work went well and your bracytherapy problem has been resolved xxxxx
Wolsty… Been watching a lot of the paralympics on TV…amazing people…pleased you had a lovely time xx
Ceej… Am convinced the flushes start in my toes and spread up the whole of my body and can happen any time any place anywhere lolol
Marie67…Pleased your nails are looking good, my finger nails are quite ridged but toe nails have managed to stay perfect for some reason. probably cos they don’t get to see daylight very often lol
Carolyn1709… Pleased work went well for you so nice to be almost back to normal againxx
BeryS… Hope the dog walking is going well. have you read the thread on BC and exercise? Tis quite funny in some parts.xx
Well I forgot to watch Dallas last night, used to love it years ago. OH has decided he may come to Birmingham with me as he has a few people he knows in the area. I guess I’d have to ring them and change my booking or is it just the room that’s booked not how many people occupy it? can’t remember how Premier Inns work.
Thinking of you all xxx
Love
KQ
Joan, the 2 set meal is fine for me and if you want me to send you a cheque please let me know
WS - sorry for all your worries, plse know that we are all thinking about you
Have now had 2 rads (18 to go). The Staff at New Cross Hospital are wonderful and cant do enough for you and I’m meeting some lovely people so thats great.
Been having a lot of trouble again with tumour 1 and an associated hernia which is making sitting very uncomfortable. I DO NOT WANT MORE SURGERY!! Prob in the new year I’ll get something done but for now I’ll just have to grit my teeth and get on with it, as if having BC isn’t enough eh (this other problem has been going on since I was 23 when the tumour was diagnosed. I am now 51 and still having trouble. Anyway the sun is shining and Meg needs her walk so best wishes everyone
Bettie xx
KQ - It’s the room but when I booked I put down for 2 adults. Just give them a call and they can change it to 2 adults the room rate shouldn’t change but they may charge you an admin fee, they like doing that sort of thing for not doing very much especially as it’s only probably clicking a button! I haven’t looked at the menu yet and Joan I’m happy to send you a cheque if it makes life easier ref deposits etc.
Off to do some cleaning - sadly my daughter and partner/boyfriend are not too worried about that sort of thing and prefer to be outdoors but not in the garden either. I’m at a loss to wonder how they can think that everything looks fine!!! I find it hard to keep stum but sometime soon it’s all going to have to come out. I think it’s called tough love.
Will come back later for a break!
Love to all, Beryl.
November is going to be great!!!
Joan the £22 meal deal would be great if we can get it. I willl have a look at the menu and let you have my choice asap. Hapy to send you a cheque if that makes things easier.
Wel had my final rads session yesterday. My skin is a bit red now in my armpit and over my boob. It feels a bit hot but not too bad at all. Hope its all c lear for my hols in a fortnight. Have been working all the while but am feeling quite tired in the afternoons.
WS hope all is okay when you hear from BCN today.
KQ glad your eyes are improving. My eyes have been fine through chemo, apart from the fact that my eyesight seems to have deteriorated a bit.
Clare - a haircut indeed! I can’t wait to have enough hair to need it cut. Still only got white fluff but think i am starting to see a 5 o’clock shadow underneath it.
Bettie so sorry you are having problems. As if you dont have enough going on.
Beryl I feel the same about my daughter. I visited her at the weekend and i am afraid i cant keep stum. I doint know how she can live in a mess! She graduated two years ago but still lives like a student.
Am off to work now. Going in a bit later as i have a meeting late afternoon that will likely go on past 6pm.
Love to all.
Csrabel xx
Carabel - I know where you are coming from on the student front but our youngest graduated in 2004 or there abouts and she should have learnt her lesson then. She shared a nice 3 bed semi with 2 other girls and used to get on to them because they didn’t do their jobs on the rosta. Quite funny when I think about it now, anyway, when it came to the end of their time there it was hubby and myself who put most of the work into getting it ready for handover. One of the other parents said ‘Do you need to be doing all this’? Not to us I might add but I told them that we did if they wanted their deposits back! All went OK and I vowed that I/we wouldn’t do it all again and here we are - stupid or what? This is positively the last time. Our daughter is very clever and works for a big company at junior management level but it’s a pity she can’t apply her organisational skills at home. That’s enough about all this but it will come to head very soon. Good that you have now finished rads as well but you may find that it will take a little longer than a couple of weeks before everyhing settles down. Keep slapping on the cream because it all certainly helps. I’m still doing that and my last rad was 26th July, but not having to do it quite so often.
Love to all and best wishes.
Beryl XX
Deleted double post - got carried away with pressing the button!
Hello Marchies
Met a friend for coffee today , she’s 35 and had a heart attack followed by cardiac arrest 6 weeks ago, she’s doing ok though gets very tired. and gets very panicky when not feeling great, bit like me going through chemo. Was nice to meet and have a chat about our experiences, worries and how we feel our experiences changed us.
WS I hope your OH managed to get some answers for your from your BCN.
JOAN the meal deal is great and such good value for money, let me know where/how to pay the deposit.I don’t know how many of us are staying the Fri night to, and if that’s something we could consider doing then. Hope you have recovered from your wine last night.
CARABEL glad that you to have now finished rads, hope the zapped area settles before your hol.
BERYL hope you have recovered from cleaning your daughters house. Do you head back home at the weekend or are you off to visist in laws?
KQ glad that you have drops for your eyes, and that they seem to be working already.
WAITING TOO I must say going for a trim is impressive. Mine isn’t long enough for that yet. Hope rads ok.
BETTIE glad that your rads are now going ok, sorry to hear that tumour 1 is misbehaving
Now going to watch more para athletics these games are really great, such amazing people.
Love Jane
X
Morning All
Marie (Jane) - We are off the IL on Sunday for a couple of days. They live at Selsey Bill (Nr Chichester) and live about a 5 min walk from the sea. We will probably be back home on Wednesday but will stay a little longer if hubby isn’t expected to play in a golf tournament. Today we are going to a National Trust property near Bath for a look around the house and gardens. It looks like its going to be another nice day day here which will be nice.
Hope everyone is doing OK and managing to enjoy what is left of our summer. I’m always thinking of you all and send you my very best wishes. Will get back on later to catch up on things and post again.
Beryl XX
Morning - I have just got back from Zumba and got a certificate for having attended 25 sessions - most of which have been whilst receiving treatment! Everyone keeps telling me how lovely my hairlooks grey and how I should keep it short and grey! - but no way is it long enough for a hair cut. Students - this time last year I was dreading the last one leaving and going to uni - this year I cannot wait till they go back. They lie on the sofa all day watching tv… The wedding is on the 20th October in a village called Bix near Henley. My skin is sore after rads so am slapping on cream or aloe Vera. They said I could go swimming but be careful of infection. I wish they had told us we have to keep out of the sun for two weeks after treatment. I am going to look seriously weird wearing a scarf in 90 deg heat! WS I hope you are ok and you got some answers.
Love Georgie xxx
Afternoon MM’s,
Just had a wry smile to myself as I received my first letter to go for a routine mammogram as they start them at 47 in our area. Still, I suppose if I hadn’t found lump myself it would have been picked up then :))))
BerylS… Thank you for the info re:rooms…hope the give us 2 keys as my Oh will prob be out till the early hours lololol
GeorgieB… Well done you for sticking to your Zumba…I’m hoping to go back next week…can’t wait actualyy although I’m not sure what to put on my head as wigs and scarves will be too hot but haven’t got quite enough hair to feel that confident just yet. What do you suggest?
Hope everyone has a fabby weekend
Love
KQ
KQ -same here - tho they made me wait til the age got reduced in Nov last year as i had no symptoms!
Just 4 more rads to go!!! Wahoo! its gone quite quickly thanks to the volunteer drivers, the lovely people I have met in the unit every day, and the kindeness of the staff. My boob is soooo pink! and even through my clothes feels hotter than the other one! How odd is it to have a boob microwaved!!!
I feel awful I cant keep up with your posts and as soon as I have read them I forget who said what! I really think my brain is never going to be able to retain anything again, im still so mushy headed!
Is it just me who finds bald headed women incredibly beautiful? I seek them out in the unit each day and feel such a bond - am I really strange?
Joan please just let me know what you want me to do/pay/agree to, because as long as we all meet and stay together I really dont care what else happens and am just so happy that you are organising us all so well 
I am sooo loving this sunshine, long may it continue! I intend to drag BF out at the weekend for a walk and picnic (must remember to take a scarf and a hat!)
Lots of love to you all and many many hugs
Gabby
Hil ladies
Gabby - know what you mean about the brain - had to leave myself 2 messages today reminding me of things I need to do. My brain is mush, I can’t remember words I need to use, jobs I need to do, things I have said - chemo brain or early onset of dementia!!
Saw my onc today and he has booked me in for another echo heart scan to see if my heart has recovered enough to carry on with Herceptin. He talked about giving me another drug to lower blood pressure (although mine’s fine) which might help my heart. I would have to take it at night otherwise it might make me feel very woosy! Its worrying how all these drugs have impacts on other parts of our body.
Saw my breast surgeon too who now doesn’t want to see me until December. She has become almost a friend - when I went in today she spent the first 15 mins talking about her holiday and asking how mine had been. I really feel that she has been such a tremendous support.
I seem to have spent so much time in hospital this week with rads, counselling, onc and surgeon appointments. Now lying on the sofa with a glass of wine watching paralympics. Tomorrow I am going to laze at home before we go off to the Olympic Stadium tomorrow night.
Talking about messy children, I have one daughter who is exceptionally tidy and the other who is the complete opposite!!!
jane x
Evening ladies
hope your all ok. I’ve lots of reading to do. been to see oncoplast today. healing nicely. will go ahead with rads planning is on Tuesday. after that they’ve said all they can do is monitor me with check ups every 3 months to start off with. children are keeping me on my toes and its nice to feel nornalish.
thinking of you all
love and hugs x x x x x x
Hi, hope you’re all ok. The sun is shining again so remember your factor 50s!
To those of you who have just started Tamoxifen have any of you been experiencing joint pain or any other side effects? I have been in pain all night but don’t know whether its from my benign pelvic tumour or the tamoxifen. Feel really weepy this morning and just think its the pain dragging me down. Really stressing about returning to work and not being well from the pain in my other tumour but just want to get back for some normality. At least they’ve agreed a 6 week phased return and I won’t be going back until end of Oct.
Anyway, thats my feeling sorry for myself moment and sorry to moan.
Have a good day all
Bettie xx
Gabbylamb- I just need to echo your sentiments about bald women being incredibly beautiful- I totally agree and its so lovely to see women not worrying about their scarves and hats and other people because why should we. I also think that if we can make it easier for the next person then we have done a great job and the more people go bald the more accepting other people will be. If I’m honest, as someone who has gone bald from day one, I’ve hardly noticed anyone staring and I honestly think most people don’t.
I had an amusing moment in rads the other day when this man asked me if I had styled my hair!! What hair? I have a tiny bit on top which seems to be growing in a bit of a peak like a mohican but I just laughed, it was quite funny.
Bye Bye
Bettie xx