Morning All,
Beautiful day here and we’re off out into town for Oh’s daughter’s birthday so should be warm and sunny.
Amylou… Pleased you’re feeling ok xxx Have you heard how Dulcie is?
Bettie… Hope you feel better soon. I don’t know what if any pills I’ll be taking till Tuesday as I was only slightly hormone positive. I reallyz wish I had the confidence to go bald but fuunily enough I too have a mohican peak lolol Perhaps we all will.
Wolsty… Think I must be about due a hecart scan again as have had 4 herceptins now and 5 will be on Tuesday and first one without chemo :)))). theonly thing I find at the min is my legs get a bit heavy when going up pur cellar steps buy not sure if that is chemo or heceptin so will prob know better in a week or two xxx
Gabbylamb… Whoooo nearly at the finishing line xxxx I am looking forward to enjoying the sunshine too xxx
Happy Saturday to you all
Love KQ
Morning Marchies
Lovely and sunny here, think OH planning for us to have a BBQ tonight. Am heading into Norwich later as need new shoes for work, and see what other bargains I can find.
GABBYLAMB not long until you finish rads now, hope you have a lovely picnic.
AMYLOU lovely to hear from you, and that you are healing up nicely, ras will be quie a doddle after everything else you’ve been through, when will you start rads and how many will you have.
BETTIE a side effect of Tamoxifen is joint pain, I initally found my ankles tender, but that has worn off now, hope you manage to get some rest today.
WS hope you are ok.
DULCIE and JAYJAY not heard from you for a while hope you are doing ok.
Shops are calling now.
Jane
Bettie, sorry you are feeling low. I know joint pain can be an se of Tamoxifen, but I am sure I have read that it can lessen after being on it for a couple of months and your body getting used to it. Its natural to worry about going back to work after being off for so long, but I am sure you will soon get back into the swing of things. Big hug hon, be proud of yourself, you have been through so much over the last few months. xxx
Big hug too for Amylou, I was really glad to see your post, I have been thinking of you often and wondering how you are. Glad you are healing well after your op and I am sure you will find rads a doddle after everything else! xxx
Joan xxx
Hello, my brain is definitely gone,
Kq I haven’t worn anything on my head for ages, I have done Zumba with a scarf on but that was ages ago.
I got an appt through today to see the oncologist 15.10.2013 - I guess that must be good news. Talk about no brain I am so confused! I have a follow up appt with a dr from the radio team, and I have an appointment with the the surgeon who I first saw when I found the lump - who is part of the general surgery team on the 8th Oxtober 2012 - I thought he was the oncologist?!
Love Georgie x
I give up, this poxy site is so annoying I went to post and yet again it lost it.
I should have copied it before posting but forgot grrrrhhhh!!!
Right lets start again - have vented my anger elsewhere
Afternoon you lovely MMs, hope you are all managing to enjoy the weather with the appropriate caps and scarves.
Megmum - congrats on your new grandchild
Gabbylamb - My brain feels like a sieve and what gets through and remembered gets all jumbled up
Bettie - I also am suffering with aches and pains, mostly in my hips and pelvis area but am on letrozole. I am also feeling down with a very short fuse - not helped by the site playing up! Hope you start to fell better soon.
Wolsty good luck with your echo gram and I hope your heart has recovered enoough to restart your H. I am having my 3rd muga scan on the 21st and 3rd H next Tues. My BP and pulse rates have gone back to normal so FEC was definitely affecting it.
I am enjoying reading your plans for the meet up and even though I am not sure if I can join you I am getting excited by all the plans. Still waiting for OHs results so cannot plan anything at the moment.
Just finished 25 rads and skin was holding up ok and OH accidentally gave me a chinese burn with a bed sheet in the middle of the night and ripped some skin on my collarbone. Watch out ladies as your skin is evidently quite thin from rads.
My other post was a lot longer but I cannot remember what I had out so will have to do with this.
My hair is very short and very thick, white with a few darker strands, the bits around my ears are starting to look like they need trimming. All other hair is returning but for a bald bit in one eyebrow and my eyelashes are still really short. Underarm seems to be coming back lighter - may try going au naturel for a while!
Good luck to those starting or not yet finished rads. I hope all you ladies who have recently undergone surgery are recovering well.
Take care xxxx
Evening ladies glad to hear we are all progressing and doing reasonably well. I am half way through rads and am feeling very tired but not sure if this is a side effect or just me. 
I am having a Dexa scan on tues to check bone density as the Letorazole can cause bone thinning i think, I too have painfull joints mainly my ankles hope it settles down.
My new grandson is beautiful and my daughter is being a wonderful mum.
Hope everyone has a good week
Goodnight all the x factor calls ha ha
Good morning ladies, and another lovely sunny one here, hope it is with you too.
I enjoyed yesterday looking round a national trust place, then mooching round Cambridge, but that means I have to do some housework today - the worst thing about going back to work is that i don’t get so much time to do the things I have to do… I think I’m going to try and find a cleaner.
First week back at work was fine though, no one looked completely horrified by my white/grey/bald head. I feel like everything is slowly coming back to me.
My follow up appointment with Onc came through for 25/9 when I’m on holiday, and earliest date after that was 31/10 but I’m not in a hurry. I never found them very informative when I was going through treatment, so I don’t suppose they will be now. Wolsty how lovely that you have such a good relationship with your surgeon.
Megsmum, what a proud grandma/mum you must be! That is lovely, really pleased for you. Hope the painful joints get better soon. If i have been sitting still for too long I seem to cease up, and my first walk to the bathroom in the mornings I stagger about like a 90 year old, but nothing too painful thankfully.
Pargayan I hope OH gets some good results soon and you can join us in November. My hair sounds like yours, mainly white and the hair at the back and sides is growing really quickly but the hair at the front of my head is still very thin, I wish that would thicken up a bit!
Betty hope you are feeling better. My hair (what there is of it) also seems to want to grow into a Mohican!
Marie hope you found some new work shoes, I had to do that too, my big toe nails have still not fallen off but really hurt if I wear shoes, so have been out and bought peep toe shoes so they don’t hurt. I hope they hang on until after my holiday so I can wear sandals, and hopefully when they fall off they won’t hurt any more? Hope you had a good BBQ last night.
Beryl, you are a good mum! Are you back home yet?
Gabby, nearly finished rads, well done, hope your skin is ok. Hope you had a lovely picnic.
Carolyn, Carmy and Twinky hope your first week back went well.
Joan look forward to seeing you on Monday!
I hope all you lovely ladies are doing well, thinking of you all,
Caren xx
Just aboiut finished here at our daughters (Glos) and will shortly be off to Selsey Bill (Nr Chichester) to visit the IL. Lovely day here and looking forward to being near the sea again. Hope everyone is doing OK and able to enjoy the weekend. Will post again later and check on messages.
Take care and best wishes
Beryl XX
Caren - your joints sound exactly like mine - when I first get up I really struggle to walk and am also really stiff when I’ve been sitting down. Asked my onc if could be related to rada as I am not on tamoxifen yet. He said NO so must be chemo related. Hope it gets better!!
Going to enjoy what I imagine will be the last really warm day of the year. Must be careful not to expose rad area to sun.
Have a good day everyone
jane xx
Morning Marvellous Marchies!
Beautiful day here again but have housework to do today. Still, the washing is drying nicely! We went to a local music festival yesterday, which was really good. I was very tired though! I have been thinking about our meet up and I think the easiest way is if I pay the deposit for the meal and we sort it all out once we meet up. If you could all PM me with your menu and food choices by the end of September, I will forward it on to the restaurant. I am going away next Friday for a week and doubt if I will be able to post, so don’t worry if you don’t hear from me…… I know, I know, that will make a change!
KQ, hope the eyes have settled down now.
Beryl, your daughter sounds like my son! Eldest boy moved out and was very messy for a while but has gradually started doing his own cleaning etc. Youngest boy moved out and no such improvement as yet. I don’t go to his flat very often but we went last weekend and I was horrified! Have a lovely few days by the sea and I hope visit to IL’s is bearable!!
Marie67, Jane, yes the meal deal looks good for the Friday night too, £22 seems good value! I think there are 8 of us staying on the Friday too.
GeorgieB, I get nice comments about my hair too, but I cant quite work out whether that is just because it looks better than no hair at all! Well done with all your zumbaing, puts me to shame!!
Gabbylamb, nearly finished! It’s a great feeling, I must say! Just keep slapping on the cream! Talking of bald headedness, I have a friend who really just doesn’t get it at all. She seems to think that I have not put anything on my head because I like people to feel sorry for me and I like the sympathy. I am actually quite shocked that she should think that, its so far from the truth! You ladies really understand, and I thank you all for making me feel normal and that I was doing nothing wrong by going out with nothing on my head. I have been upset ever since out conversation (Friday) and cant decide whether to bring the subject up again or not. She does dominate me and I find it really hard to put my point of view across though if we have disagreements so I am sort of feeling that I will probably just say nothing.
Pargayan, yes the site has been really annoying this weekend! It would be lovely if you could join us in November! Hope OH results come back good.
Megsmum, glad all is going well with your grandson. We are coming up to Newcastle next Friday as OH is doing the Great North Run for Breast Cancer Care. We are staying up for the week to have a little holiday.
Caren, looking forward to seeing you too tomorrow, shame Carolyn couldn’t make it. I wonder whether Raechi might like to join us? Let me know Rae and I will send you the details!
WS, how did OH get on with phoning the hospital for you? Hope everything is clearer for you now.
Hugs to everyone for a lovely sunny day, hope all our other ladies are ok and it would be lovely to hear from you all again.
Joan xxx
Joan- people like your ‘friend’ really annoy me, how dare they? It is precisely this sort of ignorant attitude that dissuades women to go bald. Gabbylamb was right, looking bald does make women look beautiful. Sorry to rant especially as she is a friend but it just makes me angry. My advice is keep going bald, I’m sure you look great and b… everyone else!
Well had another night of pain with my hernia/tumour which is situated right in my bottom area(sorry to sound personal) so you can imagine sitting is difficult and this is my fifth hernia. At least when I go back to work I have a special chair which has been custom made (feel like a right old granny) So desperate to get back and then I can think about an operation maybe after christmas.
Hope you’re all ok
Bettie x
Thanks Bettie, I have no intention of covering up! She has made me feel all along that I should sit in a corner with a paper bag over my head! Yes, it is ignorance really, i have done it because I wanted to, but I would always understand ladies who prefer not to go commando. Each to their own! Like you, I have hoped that if it has helped someone else to have an easier time then it has been worth it.
Sorry to hear youhave not had a good night again. That must be so uncomfortable, just there. Hope it eases off soon, youhave been through the mill this year.
Enjoy the sunshine
Joan xxx
Afternoon ladies
Another beautiful day here, off to MIL shortly, it’ll be the first time she’s seen me wigless but I’ve pre warned her. Being back at work with children was fine they all kept whispering I’d had my hair cut really short.
Like most of you I too have a hyper messy daughter. She lives in my flat and when I visit I have to stop myself and resist the urge to clean up. Although that doesn’t stop me telling her she needs to clean up.
Like some of you I too feel about 90 first thing and if I’ve been sitting too long, let’s hope it improves in time. Well ive completed my first week back at work, had to bring some stuff home as well to do over the weekend so it’s all clear in my head tomorrow. Strange feeling thinking of standing and teaching a class after nearly 10 months.
Ill look at the menu and let you know Joan, it’s a shame I can’t join you and Caren tomorrow, hopefully next time.
I too am having shoe trouble. It’s as if my feet have got too soft over the months not really going out or wearing shoes, any pair seems to take ages to wear in.
Sounds as if everyone is now getting on road to complete recovery, hoping those of you still having surgery are well, and those post op are recovering.
Better go off to MIL.
Love and hugs to all
Carolyn xxx
Patchit! I feel quite angry about your inconsiderate friend. We have been through so much, and God forbid she has to go through the same. Whatever we feel is good for us, a true friend should be understandinmg and happy with too. I can understand to some extent when I first lost my hair my BF was worried about me going out bald in case there were comments that were upsetting, but this truely hasnt happened and he has calmed down about it a lot now. I consider going out without covering up my head is truely empowering, it is at least one thing we can make a choice in after all the c***p we have endured, and as I said before I have never had so many lovely and complimentary comments. Yes its true I stand out like a sore thumb (!) but, hey, thats my choice and no one elses and this is my body and I can chose exactly how and what I look like! Not one of us would have chosen to lose our precious hair, eyelashes and brows, God knows! but since we have lets embrace the fact and go out with our head held high and our ‘inner goddess’ dancing with joy! (guess where I got that one from… answers please!)
Hello Marchies
Well what lovely weather we have had this weekend, shame it is not going to last. Last night of the Paralympics tonight to, what will I do.
CAREN I to am quite stiff first thing in the morning, as well as my legs my right shoulder is stiff to, so I tend to waddle through to the bathroom. Glad all ok now that you are back at work.
BETTIE sorry to hear that you are still suffering, would your GP be able to sort you out some different painkillers?
CAROLYN glad all going ok now oyu are back at work.
JOAN we are obviously heading away at the same time, you up North and me down to Somerset, lets hope we both have goood weather.
WOLTSY hope you had a fab time at the stadium the other night, my 8 yr old neice went last Sunday and had an amazing time.
BERYL hope you are safely at your IL’s now and that all is calm!!!
PEANUT hope all goes well with your return to work this week.
GEORGIE hope your skin will behave so you can enjoy your holiday.
CARABEL hope that you managed to sort out you flights for Nov.
AMYLOU hope your rads planning goes ok on Tues, have you heard from Dulcie recently?
PARSNIP hope you will be able to recharge your batteries now you son is at scholl and rads have finished.
GABBYLAMB hope you had a lovely picnic, well only 4 more rads to go, when are you heading to Norwich for you weekend away?
MEGSMUM lovely to hear all going well with baby and mum. Hope all goes well with your scan.
PARAGYAN looking forward to catching up on Wed, hope the chinese burn improves for you.
WS hope you are ok and managed to go away fror the weekend. Hope all goes well with your apt tomorrow.
RAECHI hope you are doing ok and all sorted for your op on Tues.
WAITING TOO hope you managed to get your rads sorted.
ANGELHERTS it’s been ages since we heard from you, hope you are doing ok and getting on ok with the new job.
POPPY, JAYAJAY, GARY, ELKE, MOLLIE, DULCIE hope you are all doing ok.
Well off to cook lasagne and garlic bread for tea then will settle down to watch the closing ceremony with a glass of wine.
Hugs to all
Jane
Hi everyone
Although i havent posted for a while i have read some posts on my phone
Congrats to all those who have finished treatment, I love to hear some people have managed to get back to work, that is something i am looking forward to, probably till i get there and will prob be like I was never away.
Congrats to Megsmum, being a grandmother must be fab what a nice thing to happen for you
Thanks to all of you who have inquired after us absentees
I have only 2 more rads to complete my 25 sessions. As you all know it is time consuming and as I have alsohad to get to different hospital every week to see oncologist It has been a long process.
My axilla (armpit) is a mess has broken down and I have dressings to see too twicea day as well as underneath my breast. They are very painfull at night and my breast looks a mess. My nipple is darkand breast very red. I am fair skinned so other nipple very pink think I am gonna look a sight for sore eyes. Hate not being able to wear a bra, i am a bit busty for wearing just a camisole with hidden support. But nearly there. good thing inseeing onco every week he listens to chest and checks everything out, but fed up of constantly being examined
although my son is recoveering quite well from his thrd neuro surgery unfortunatley my daughtr in law has given up on him and has lead us all a dance. I no longer feel proud to call her daughter. I accept she doesnt want to do it cos its hard but cant help feeling angry by some of the awfull things she has done. For example having a tatto onher wedding ring finger and putting her ring on the otherhand and often staying out alll night at nightclubs and gaining attention for herself whilst trying to convince people that he is disabled when he clearly isnt he is doing so well and looks after himself well. Anyway enough about that I have cried rivers and now needto gain control of my emotions.
I found the worst part of the radiotherapy is the lack of dignity, staff walking into roomwhilst you are undressed, especially whilst having dressings, i will need to point out to them this not only breaches dignity but contravenes their infection control poilicies.
Opps sorry not a very jolly post, see thats why i havent posted dont like being a boring moanie girl,will try to be more captivating next time I post
Love to you allxx
Gabbylamb- you put that so nicely and I couldn’t agree more with your comments. I have a neighbour who just dosnt get why I don’t wear my wig. My body, my choice and b… everyone else!!
Bettie xx
PS, just off for rads then 15 to go
Morning lovely ladies
Here I am now at the IL’s and all well so far, but my MIL is quite disabled now with her walking which is very upsetting but she just accepts the situation. I feel so sorry for FIL who does most of everything and if he should go down hill fast then I don’t know what will happen. None of the family live close so time will tell on that one!
Have been reading everyones messages and it’s great that we are all moving forward, slowly I know, but we are getting there.
It’s great that some of you are getting back to work and settling back in must be so nice for you moving on,
My joints are playing up as well but I have put it down to Arrimadex s/e’s, beause it states that it can effect joints etc on the paperwork. I hope it all settles down very soon and gets back to normal, fingers crossed.
I’m with everyone on the hair front and don’t wear anything on my head unless the sun is too strong. All the comments I’ve had have been complimentary and supportive! Joan (patchit) your friend was out of order saying that to you, what was she thinking about? You just keep on doing what you want to do and blow her.
Socks - Thinking about you - how are you doing?
Dulcie - Still nothing from you, I do hope that you haven’t switched off from the site and you will come back on soon. Always thinking of you and take care.
Mary (Peanut) - Good luck with your return to work this week, hope everything goes well.
Gabby - Rads will soon be finished and you will be through the other end and looks like a nice weekend away will be on he cards. If it is Nowich then you should enjoy it!
Poppyd - Lovely to hear from you but sorry that you are having problems with your skin breaking up. Do hope that it settles down soon and you will get to feel better soon. Sorry to hear that your DIL has gone off the rails a bit, it must be so hard to deal with along with everything else. Hope that it sorts itself out soon one way or the other.
Joan - I will take a look at the menu and let you know my choices asap. It is really good of you to stump up the money for the deposit on our behalf, your are a real March Musketeer - thanks!
Well I have to be off now because FIL is in going out mode!
Be bvack later and everyone take care,
Beryl XX
Hi ladies xx Sorry Beryl i didn’t answer your email xx
OH has now been told he has cancer too…but they still don’t quite know where it is? yet!
So many things are going wrong for us right now …in lots of different area’s…medical and home…(like my washing machine ) exploding on friday night! His TV packing in…and lots more…do you think someone has ‘Vodooed’ us? lol
I went so see a ‘councellor’ in what i thought was a confidential enviroment…and she could not wait to ‘put it out there’ …to all depts! I can’t believe it! Thank goodness i didn’t tell her more!! Come into a letter about dying… death…terminal who needs that for gawds sake!
I hope you are all really well and enjoy your weekend in November…if i manage it will be going to a big meeting and hopefully make lots of contact with ladies in my boat…
Hoping to start chemo this week…but i have akinda flu…i am in touch still with my friend Amylou…i will still read you all and think of you with smiles and fondness…after all you are my sisters right?
Dulcie xxxx