Hi Peanut (Mary P),
Good luck witht he Onc. I am off there too this morning - scan results time!.
re: your colleague - feel free to pass on my details if you wish. I had fertility treatment and things before starting chemo as i was 36 (turned 37 in Feb), and still want children. If she does want to talk about any of that stuff i am more than happy to.
Rae
x
JOan - so glad you are geeling better. What date is the next appointment - would be lovely to meet you ladies 
x
Good Morning everyone hope you’ve all had a good sleep.
Off to check bloods this morning as I have been very breathless and chesty. Chemo nurse said it might be something to do with my red blood cells and might poss need some blood, blimey I should have permanent residence at the hospital!
I’ve posted a pic of my very naughty doggie. Hope you all like it. She’s a cross staffie, wonderful with people but a horror with other dogs. She’s a real sweetie with me and is constantly at my side. Animals can be so therapeutic.
Must go, need to make myself look gorgeous. Hope you all have a good day
Love Bettie xx
Joan - i need to learn to read. You said the 30th. Doh!
I need glasses…picking them up on Saturday as it happens. I had an eye test last week and need them for reading…
I think my body is falling apart!
Fingers crossed i will be able to see you. I have chemo no. 2 next Weds.
Rae
x
Good morning ladies! Thanks for everyone’s kind words about travel and I’m passing on your envy of my hats to the friends who sent them to me.
Had a rotten day yesterday. Went to have my portacath fitted and it took them an hour and 4 attempts to fit a catheter - finally put one in my wrist which is quite painful. After we waited a while, I finally got admitted to the ward at about 12.30 but half way through the admission, the nurse was told to stop as the doctor wanted to see me. I thought this could only be bad news and, an hour or so later, he came to say my blood count was too low and they couldn’t do the operation. So disappointed. They still have to do it before my next chemo which was scheduled for next Thursday so everything is now going to be delayed. I’ve been given antibiotics just in case. I had just started making plans and now everything is up in the air again. I’ve probably said a million times that I’m self employed so to say it makes life difficult is an understatement.
To top it all off I have developed the itchiest rash I have ever had in my entire life which I assume is a reaction to the FEC I had 2 weeks ago. Shortly off to see the GP to beg for some antihistamine or something as it stopped me sleeping last night and is driving me mad. My temperature is fine, fortunately.
So Olso may still be on hold. Thankfully, my lovely friends are very relaxed about it and don’t mind.
Sorry this post is all about me. How do you all remember what is happening to everyone else? I read nearly all of the posts but my brain doesn’t absorb much.
Jane (Wolsty), am I right in thinking you won’t need a portacath now? If so, I envy your lovely veins.
The baking powder and rubber gloves intrigued me. I thought I had wandered into quite a different forum!
Hope everyone has a good day today, whatever you are doing.
Shelley x
CM - Thanks for your message but I’m sorry I don’t understant what it means. I’ve googled penny brohn and found out it’s a cancer centre. What’s BR?
Thanks
Beryl XX
Hi Choccie …is this a CODE…for something lol
Can i say why i am very worried about chemo? The ONC said i was a healthy woman…coughs…i wish! Are you ready…
Thyroid (under now)
Reflux (severe)
Hietus hernia
Sciatica
Osteopenia
Osteoarthritis
Fybromyalgia
Arial Fibrilation
Spondolosis in neck
Dry Eye
nearly forgot Gall bladder…
So i am rather worried about my reactions to chemo…
Oh and my teeth…need fillings and i have the old mercury ones so i will get temps in omn Monday…
Has anyone any ideas on how i should look after myself please?
Was anyone offered a phycologist? we will be seeing one we hope.
Sorry ladies to list my ailments…
I hope you are ALL having a good day today xxx
Dulcie xxx
Franoli big hugs to you xx what a time you are having…i wish i could comfort you more than a typed word or too!
I do hope you are getting some real support at home …bless xx
Beryl, just a thought, could CM have meant …might BE worth looking at…?
I think our dear choccie had a couple of glasses of wine last night and she was posting on her phone, nt easy when sober, let alone after a few!
Joanx
Morning Ladies.
Quite a few posts to read this a.m already.
Dulcie -you do make me smile, I’m glad you have enlightened us all re your gloves!!!Thats quite a shopping list of ailments you have and PINK hair!!!
Wintersocks - when I went for my 2nd chemo my bloods were low, but when they re tested them they were ok and chemo went ahead, so fingers crossed for you.
Bettie- hope you are ale to get you breathlessness sorted, I know it can be a SE.
Mollie- hope you are still doing ok, what did they decide about your chemo?
Franoli- you are not having the easiest of times, I think we all focus on when treatmeent is supposed to happen, and it hits us if it’s delayed. Hope you get rash sorted.
Patchit- this really is a great place to get things of you chest isn’t it, hope you are feeling a bit better today.
Peanut- no I am not going abroad this year, that’s just the info he reeled off. I do have my LGFB session next week in our Bug C centre and I know there is info there ion travel insurance, so will pick some info up and let you know the details.
Hugs to all having treatment or appointments today.
Jane
morning ladies,
well saw oncologist on weds and she has delayed chemo by a week.I got a good telling off for not letting them know about my temperature for 24 hours although i didn’t feel ill.She has changed all my meds and ghave to go and have injections 5 days after chemo for 5 days to boost my white count which is still only 0.1
My hair has really started to fall out in handfuls so i bought some bandanas yesterday still dont feel ready for my wig.
Hope everyone is as well as can be, i am now going to have my easter weekend as hubby is off and spent it in hospital, will post after the weekend debbie x
Morning ladies
Well, I went back to bed at 7.45 and slept till 9. Better than nothing! I feel much brighter this morning thank goodness!
Peanut, hope your appointment with the Onc goes well today. I really feel for these young ladies with BC, those not yet ready to start families, those with children and those wanting to start families, it must be so hard to factor all that in as well, I think you all do amazingly well to cope.
Rae, good luck with your scan results, keep us posted, everything crossed for good news xxx. Hopefully you can make the 30th as you may be feeling better after your 2nd treat by then. If not, we will have to try harder to get a date that suits all of us, it would be lovely to meet up, perhaps somewhere between us all (perhaps Biggleswade?) to save you the longer drive.
Bettie, good luck to you too for your hospital appointment. Hope the bloods are ok. Your little doggie is cute, I expect she gives you lots of comfort and laughter!
Franoli, you are having a rotten time hon! One thing after another, you must wonder what else? All you can do is to try to pick yourself up and keep going. One day at a time. Doubly difficult when you are self-employed though. Things WILL get better though and you will get through this. Big hug to you xxx.
Dulcie, did you ask your Onc if he had the right notes with him?! Looking at your list of ailments, I can see why you are worried! Maybe the chemo won’t interfere with your other conditions? Maybe that is why he didn’t seem really concerned? I seem to remember someone mentioning a psychologist, no idea who now though! It would probably be a good idea, get all the help you can! Sorry, I am not being a lot of help here, but maybe you should speak to your Onc again, just to put your mind at rest. I am sure they will be monitoring you closely during your treatment.
Have a good day ladies, I am going to get dressed now.
Hugs and xxx
Joan
Morning ladies.
Not been on for a few days so lots of catching up to do. I’ve had really bad flu like symptoms and not been able to get out of bed. the nurse will be coming shortly to give my last injection so hoping things are going to get better from now.
Started to get comments now about no hair. on the whole it hasn’t bothered me but when someone said haven’t you got a lovely shaped head i started to well up. Don’t even know why really. think im hormonal. should of started my period at the weekend just gone but nothings happening so don’t know if that’s why i feel so poorly this time.
I know this is a bit of an odd one but has anyone’s pets starting acting strange. my older cat out the 3 has turned into a guard dog when it comes to anyone or anything coming near me. my dog who’s a nervous rescue had him around 6 months seems like he’s got the house on high alert. and when he sees me without a hat on he has a blind panic until i put it on again.
Hope everyone has the best day they can.
Love to all x x
Hi joan where the eck is Biggleswade…can we ALL get there when we have come through this…I really would like us ALL to meet one day…it would be wonderful…
Can peps who are having monetiery problems be able to claim…a kind of DLA …also can you get help toward the cost of all these items that are needed…i know they help with transport costs…and what about the ‘headgear’ too? It seems too vary the cost towards a wig…
Amylou hugs for you again xxx
And all of you having a rough time xxx
Dulcie xxx
Morning ladies
Glad your feeling better Joan, and definitely have that coffee at next oncology, hope you can join us Rae, or like Joan suggests we can always cine closer to you, I don’t mind a bit of a drive.
Hope all others ok, and goes well for anyone else today.
Choccie I need your advice, you mentioned buffs before, I was watching the DVD from LGFB last night, finally got it to work, and it showed a lady using a tube that snowboarders wear, I assume it’s similar to buffs. Anyway you put it over head then tuck in, is that the same as a buff? Where do you get them from because they look really comfy, easy to put on and give a bit of dimension to head as I feel horrible when everything is flat I need a little height. God I could be a PR person for buffwear with all this shpeel! Your advice as always greatly appreciated.
I’m feeling fine today, think cold is slowly going. Sorry to hear about blood problems with others. The nurse said I was a strange one yesterday, apparently my red blood count has been exactly the same at 12.6 each time, whatever that means, and she’s never seen that before. So challenge on to keep it the same next time. White has gone up and down but no problems, I must be a good blessed! Makes my heart go out to those of you having injections etc.
Hi Dulcie, Biggleswade is in Bedfordshire, the four of us are near the border of Hertfordshire, so near Bedfordshire and Cambridgeshire so crossing counties is easy. I know what you mean about the whole costs, it varies so much in different areas, some people get free parking, we don’t, free wigs, we don’t but get a prescription so just pay the £63 prescription fee, and apparently so others have said you get another one if needed 6 months after. I agree about us all meeting somewhere when thus is all over, but I expect you to gave pink hair and be wearing rubber gloves ! :))
Fingers crossed for you Wintersocks, like others say it takes a lot to cancel a treatment, hope it’s ok.
Good luck for results Rae, at least you’ll know whats happening now.
Enjoy your late Easter weekend Mollie, you deserve a treat after what you’ve been through.
Love and hugs to all you marvellous Marchies, sorry so many now hard to keep track of everyone, wow won’t our meet up be a big affair if it happens, as Joan says it’s like having 50 new friends who all know exactly what’s going in during a traumatic time both physically and emotionally.
Carolyn xxx
Is that new piccy you then Carolyn? After treatment…
At this rate we would have to hire a hall…what a hoot! I would buy sequined rubber gloves …so you would know me!!lol
I thought with all the stuff you have to buy …some might qualify for help…its a dear do.!!..
I would like want to know about this tube scarfing also…dont want a ‘flat head’…i wouldnt mind looking like a colourful African lady with the HUGE scarves…
Dulcie xxx
Hugs to you Mollie xxx my brain is all fuzzy and i dont take in the posts…
Dulcie xxx
Hi Dulcie
I’m trying to out a pic if me in wig but it’s in my phone, took my ages to transfer that one, I’ll have another try this afternoon.
Maybe we should have fancy rubber gloves as a dress code for meet up!
Love to all Carolyn xxx
Hello lovely ladies.
Thank you for all the good luck wishes. The scan was CLEAR…phew…
So its just in the boob and lymph nodes… which sounds odd saying it - but what a bloody relief…
Thank you all so so much for the support… i am now off out to lunch to celebrate.
xxx
Great news Raechi! Enjoy your celebration x
Sorry to hear so many of you getting poor blood results. I’ve been very lucky. No SE’s from my Neulasta jab ( self administered to save me a 60 mile round trip to the hospital day after juicing) and I’ve been drinking Guiness in the week running up to chemo ( refreshing icey cold from the fridge) and my blood results have been normal! The chemo nurse recommended me drinking the black stuff so from my results it looks like it works! I have also been fortunate with the steroids…no lost sleep or restlessness. I always take them with food. Maybe that makes a difference.
Just eating some red grapes whilst watching Bargain Hunt. They are beautifully juicy and easing my dead chemo mouth a bit. Lovely x
Twinky