Fingers crossed wolfee. ? Well done this week you get the ? medal for being awesome ?
Hi all
Can say that today my mouth actually feels normal, as in how it felt before the start of chemo in May. Tongue is no longer yucky!! Taste buds are returning but have to still spice everything up with HP sauce!
I am going to give oat milk a try, have stopped eating yoghurt and only have a little cheese some days.
Have a lovely weekend everyone.
Heather
Glad your mouth is better heather. I have just done a 30 min power walk. Making the most of my bonus week. X
Hi ladies. How have people coped on delay?
I am having a bit of a wobble. When treatment is happening I feel like a chemo patient and I am fighting.
Now I am in limbo I am a cancer patient and my head fills up with all sorts of stuff. Lying awake worrying about not having a will etc.
Sorry to be negative but family don’t understand an I know husband feels like he is walking on eggshells with me sometimes . Also feel bad as I can’t blame the drugs for this one.
Thanks Jay. I think knowing the family are going back to work and school next week is also making me sad( I wish I could say I am looking forward to it and having some peace but I love having them home even though they make a mess and bicker all the time)
I just need to kick myself up the a**e and snap out of it.
X
Hugs
Treehouse - this is my first delay but my main feeling has been one of sheer frustration. After the phone call I threw my phone down (along with words similar to your duckety duck) and it ricocheted across the room. I then wanted to phone back to ask what the level was and couldn’t find the phone and my daughter said , mum you threw it over there when you swore. I then had to sheepishly cross the room and retrieve it!!
I was more upset by the fact the whole thing is going to take longer but now I’ve calmed down, I am enjoying feeling well and think that a stronger body is going to fight much better. I feel I really needed the break from chemo, I went out for a meal with my sisters last night and enjoyed tasting the meal and not having such a sore tongue. I almost felt like a “normal” person, just the wig let me down ha ha. I think I will now be in a better position to get through the last cycle.
And as Jay says a week off will really not make any difference to the lump as the chemo is still working, my side effects haven’t completely disappeared yet.
Thanks ladies. It really is the lack of control that I am struggling with. I do feel physically well and I feel like I am letting everyone down when I get emotional for no real reason.i am also fed up of the whole family and our activities revolving around whether mum is going to cope. You plan your crappy week then it moves. This affects so many people not just me as hubby now needs to get a day off work next week whereas he was on holiday.
Hi Treehouse, it must be very frustrating having got this far and anxiety is completely understandable.
We can’t be ‘positive’ and ‘strong’ all the time.
One benefit to a week delay is that you won’t have to get back into the school routine while feeling the pits of chemo side effects. Hopefully they will be easier to cope with for not being in the same week… X
Agreed MJK. Sorry for being a grumpy moo. Retail therapy!!! Oat milk and earrings. Went to M&S but felt too fragile for post op bras. That can wait for another day.
We decided to do an end of holiday family meal out tonight. ?
Thanks for the boost and for understanding x x x x c
I saw that too. They are collecting at my gp surgery.
Treehouse, sorry your delay is getting you down, hopefully it will give your body a chance to recover and be ready for the next poisoning. I think it is the anticipation of finishing and that control is taken away from you.
Mai, re travel insurance, I was given a comparison website to use from another forum. It is www.medicaltravelcompared.co.uk. I looked at doing a separate policy for me and another one as family group for my husband and 2 boys. But it worked out cheaper to do a joint family one with me declaring high blood pressure and breast cancer (receiving chemo via vein). You go though screening where it asks you various questions. It cost 28.92 in total for a week in Spain, with my screening costing 8.15 for medical declaration. I booked this whilst still having chemo but think it may have been slightly cheaper once I had finished chemo. Have the choice of bronze, silver gold levels and I selected silver level from Get Going Travel insurance.
I think it is good value, per person excess is 100, full cancellation is 2500 each refund but flights were less than 400 for us all and villa is free. The thing I was keen on was medical emergency cover is 10million so could be flown home to UK if needed. As we have been to villa before as owned by friends we know nearest hospital is 20 mins with English Speaking nurses so feeling ok about going. The day we fly I am 8 weeks from last chemo. If I was still having chemo then we wouldn’t have booked it.
Sorry for the waffle
Heather
Mai, I am day 10 from last chemo, have been out all day shopping this morning and then family bbq this afternoon. Feeling well, mouth is great, a bit tired tonight.
H
Everyone seems to know someone who got something from something else. What we have to do is let them tell us about it then make a note and speak to Oncologist who is medically trained and knowledgeable and who can weigh up the pros and cons and explain it to us. We can only be guided by those in the medical profession.
I was told by a friend not to have chemo as you get cancer from chemo. I nodded politely and said thanks for advice but chemo was recommended by Onco as my cancer was aggressive. Did they really think I would not have chemo because they had read something in the paper about juicing…
Oh not helpful!
Try not to worry Mai ( sorry I know that line gets old!)
We have a lot of choices to make with medical guidance. Is there actual evidence that her cancer was due to tamoxifen? She may already have had an increased risk.
What did you say to her?
I guess some people just don’t appreciate how there comments can affect us when we are in the middle of this.
I was worried while shopping today that I might bump into someone I knew and they would want to ask how I was coping.
By the skin of my teeth at that point.
We went out for a family dinner and I have just walked 24 mins. Husband is enjoying being my trainer. Crazy woman in a scarf keeps marching past the pub( I think he is hoping we will stop off one of these evenings) ?
Morning all. The fog has lifted and I am back to counting my blessings. Kids confused about why I keep hugging them this morning ?( although it’s drizzling here)
How you feeli today Jay? The mouth ?thing definitely seems to take longer to recover each time.
Hope you managed to fix the pipe Mai ?
Here’s to a good day for all
X x
Glad you are feeling better treehouse. We all have those moments. Delays must be very frustrating especially as nearing the end.
How you feeling now rosie?
Hope everyone else ok. Not doing too bad now definitely notice my legs aching when walking up a lot of steps or Hill? Wonder when that feeling will go away! Does anyone know how soon we can take supplements after chemo? I forgot to ask when I finished on Wednesday. What to start soon hair , skin and nails ones?
Stay positive everyone we are nearly all past the chemo finish line. Any else up for rads next? X
Glad your feeling a bit more better in yourself now Treehouse it’s such a lovely feeling when the gig lifts.
Jay, I’m Chemo tomorrow. Excited because it’s my last one but dreading the mouth and taste thing already and of course the steroids back on the today. But it is my last one so I need 2 keep reminding myself that yes it’s awful but it’s for the last time.
Oh and has a letter in the post yesterday. My 1st surgery which will me mastectomy of cancer side (left) and all my lympth nodes removed and it’s on Thursday 28th September (pending blood results are high enough) they won’t be doing other side preventative mastectomy and both reconstructions until a year later because of the radiotherapy.
Have any of you had the tissue expander that they put in and keep adding something for expanding? I’ll be having this until the recon I’ve heard they can be a bit uncomfortable??
I have been taking a multi vitamin supplement through chemo. I asked both chemo nurse at pre chemo appmt and Oncologist (2 of the 4 different ones I saw over the 18 weeks) and they said continue taking it.
I had Mx right side and am right handed. For the 1st week it was uncomfortable to use right hand/arm for most things like eating, wiping bottom and showering difficult. You get the hang of it after a bit. Food that doesn’t need cutting up unless you want to feel likes toddler, moist toilet wipes and taking pain killers before shower helped. I also wore leggings and loose tops that didn’t need me to lift my arm over my head to put on. I had vest tops rather than a bra for a few weeks then moved onto soft bras than I could step into and pull up rather than reaching behind my back.
Good luck with appmt this week.
One more day of school hols tomorrow, then I have to set alarm clock for 6.30am!!
Heather
So not sure where my head is but you know I said I was having mastectomy on my cancer side first (left) well actually that’s wrong it’s my RIGHT side (I’m also right handed)
Gosh I hope I don’t point 2 the wrong side b4 the op when the surgeon comes around and draws on you before I go off for anacetic!!! The reason I’m obsessed with my lest side is because I’ve drummed in my head lest side, lest side because of blood tests, blood tests and chemo etc because of not allowed in my bad cancer side.
Mai, I’ve done a screen shot of your suplimemt list. I know your our resaurch queen so your list will be a good place 2 start when I begin my reading. I will look at getting the vitamins I need after I have recovered a bit along with improving my diet and exercise!!
Oh noooooo 6:30 alarm after tomorrow Heather! When I hear alarms I now think steroids!!
How many of us are right or left side tumour? I am left.
Yes to diet change.
Yes to exercise, more walking and yoga. Maybe even running?
Yes to some supplements:
DIM
VIT D
LIPOSOMAL VIT C
Also with early menopause will look into calcium etc.