mai7 glad to hear your coping well, I seem to be too. I’ve only had one cycle of EC but I am too dreading the T part too 
xx
Thanks Mai 7 I will add that to the list to ask. Just thought I would share, my mum has come out on a rash on her neck and we think it is a reaction to a new scarf. I have recently bought loads ready for hair loss so I am washing them all now. My face is very sensitive already and I have spots on my scalp but still no hair loss. Anybody lost any yet?
Hi misyangel. How did hubby cope with that? Mine has also offered when I am ready. They are watching us go through so many changes. I am massively appreciative of my husband and his support. But I don’t look like the woman he only married less than 2 years ago.
Well done you! My husband has done the same about pics of Sinead O’Connor etc. Three cheers for those amazing men. ? ?
AnnieJ thank you for your reply. I guess it’s just playing the waiting game then to see how we react. Glad your doing well so far 
I haven’t got a follow up with my consultant through yet but I’ll be sure to ask similar questions to you xx
Raitchr, I am on my first cycle of EC at the moment and I have 5 daily injections to take which indeed have made my bones hurt xx
Hi gillyb. My oncotype score came back as 27, so I made the decision to have chemo. The predict is quite a simple tool and doesn’t look at as many factors, though my score on that put me in the chemo recommended bracket with a higher % than the onco score.
Wandestrong - I’m having 6x FEC as well. I have been ok on the 1st treatment - 2nd one next week. I went for a review yesterday and the nurse said the only side effects guaranteed on FEC are hair loss and fatigue. The fatigue is cumulative, so will build up over time though I’m still ok on day 16. I can feel it when I have to walk up hills but it’s not stopping me from working and going about the usual daily routine. You have your hands full with the children, so make sure you ask for help when the fatigue does kick in. Wishing you all the best.
Hi Wande. Welcome to the last group you wanted to be in as a new mum, it’s good that your daughter is doing well. I’m having 3 FEC followed by 3T. I start next week. I also have a 4 year old son who’s just been trying on my new wig! Big hugs. X
Ladies I have done one docetaxel ( you call it T) I joined this thread on day 8 and I was really struggling. This does not mean you will be the same as I have it along with 3 others drugs. I will discuss all side effects with onc next Friday and let you know of any painkillers or other tips. No one warned me it would be tough but then I don’t know any different. I have had 7 days of injections. Right now I feel fine. Try not to worry.
Camomile tea and spoon of Manuka honey ?. That’s my new Friday night. ?
I got a pretty new duvet cover and Netflix in the bedroom. That got me through day 4-8. I told my husband i felt like roadkill. Then my gorgeous sister-in-law came to stay and spoilt me rotten (did my toenails) and kept me laughing. By day 10 I started to feel human ? I got 7 more to go!
I have a Chrome cast on my bedroom tv so I can watch loads of catch up tv without having to lift more than my tablet and press connect, best invention ever for me!
Thanks all. I was initially quite adamant I wouldn’t have Chemo, as I didn’t want to ‘feel’ or ‘look’ I’ll. However all that changed when I had an Oncotype score of over 50 which translates to a 34% chance of recurrence within 10years without Chemo. I was pretty much sold on the need for chemo after this, I want to know I’ve done all I can to prevent going thing this or worse in the future.
Hi Wandestrong, I too didn’t want chemo, I feared it more than surgery. I didn’t want to do something that would make me look and feel like death when that is what I am trying to avoid! My BC surgeon said chances of recurrance is 4.8%
I have only had one cycle of FEC and apart for 2 days when I felt rough and totally constipated it has been ok so far. Next time I know to rest a lot more and not be a super hero. I have agreed with my husband that the maximum I will do is get up, get the boys ready for school, wash the uniforms and shower in first week of chemo. Everything else can wait until the SE have worn off.
People say to me that I look well and am so brave. How do they expect me to look? I rested when I was rough, I eat well and have no stress in my life now I am not at work. As for being brave, we have no choice other than to be brave, that’s what being diagnosed with cancer does to you. You either have to be bitter or get better.
My next FEC isn’t until 1st June as Bank holiday Monday got in the way so looking forward to the next 12 days of feeling awesome before the next poisoning!
Best wishes everyone
Heather
Morning ladies and new ladies, weekend away is just what I needed. Nice family time. Hope your all doing well. After reading your posts I am quite worried bout the T part of my treatment. I’m having it weekly 9 times so hoping the lesser dose will be more manageable! Here’s hoping. Hair is now definitely shedding but just as loose hairs rather than clumps at the minute. It is quite sad but also rather annoying to keep finding hairs everywhere xx
Hi raitchr. I love your comment be bitter or get better. We really have no option. My mum had only surgery and radio but that was 30 years ago. I was really surprised when chemo was mentioned and also dreaded it. No one mentioned scores or percentages. I was just told with my type of cancer I was having it. However they have been really positive about my outlook and have in some cases completely reduced tumour. I know my drugs are different to most of you. But I feel really lucky that they are available now and I have ticked enough boxes to be given them. The cost of one of them is ridiculous and it is not free to everyone. I will put up with the pain if it gives me the best chance. On the whole I feel well looked after and positive. Also enjoying 12 of awesome ?
Hi Katie. I think we’re at the same stage. My hair has been shedding in the last few days as well. It isn’t noticeable yet, but like you I’m seeing v short hair everywhere.
Woke up with a bit of a sore throat yesterday, temp spiked last night to 37.5°C so phoned helpline, very reassuring that there is someone there you give you advise. Make sure you take your temp ladies, it’s important to catch any issues early.
Thankfully it’s dropped down to my normal temp today, but I have got a cold now. Hope it doesn’t use up too many white blood cells - I need them!!
Treehouse, my cancer was triple negative so as its aggressive chemo is always given.
My Mum also had BC 3 years ago. She had ductal in situ in one boob and lobular in situ in other. She had Bi Mx, clear nodes and didn’t need chemo or rads. Hers was result of being on HRT for over 25 years according to the Consultant, she requested gene testing but they said due to her age and get it wasn’t necessary.
I have found out about a study for gene testing which is still open to women to join. It is run by the Institute of Cancer Research in Surrey. The study is called BOCS looking at breast and ovarian cancers. I have sent the info to my Genetics Counsellor to see if she will send my blood.
Hi. I think she mentioned that study. I have filled in a form. My councillor suggested mum get tested and my brother and sister have requested it too. We just worry how this will affect our own children. One step at a time. The progress in treatments for this disease is really amazing at the moment. Their future should be made easier.
Anniej sorry r hair ball made me laugh. I imagine you licking the pillow in your sleep. My hair has not changed but my face is dreadful. I look like a heroin addict . Spots cracked and flaking skin. Dark sunken eyes. I tried a scarf on today and I look like mother Teresa. I am 42 and 13 days into chemo. I have already aged 30 years!!! I feel great so I just don’t care!