I’m having my PICC line put in on Tuesday, I’ve ordered a shower cover but was wondering if you got or bought sleeves to cover them and if so what size. I put my stats into Predict, chemo and hormone up it from 40 to 68% for 5 year survival. Not optional. Nor is being ‘positive’, ‘brave’ or ‘strong’ as everyone tells me but no-one can be like it 100% of the time.
I haven’t used the Predict website or anything, my Consultant said 4.8% chance of recurrance based on diagnosis, surgery and path results. I find stats confusing and alarming they vary so much. I guess the best person to ask is Breast consultant or Oncologist.
I too have changed lifestyle and diet. I am compiling a list of what I should and shouldn’t eat and looking at foods which can prevent cancer cell division. It is confusing what to eat so I am going to ask my Onco to refer me to the dietician for best advise going forward. I also know I need to loose weight, lost 1/2 stone from diagnosis to start of chemo but know my “ideal” weight should be a stone less.
I’m with you on the healthy front too. I was fairly healthy before but have cut out alcohol, caffeine and refined sugar. I’m eating more fish and gone organic for meat and dairy. I’m also aiming for 10 a day on the veg, fruit, nuts and seeds. I’ve been reading 150 healthiest foods (Jonny Bowden) which is very thorough. At the moment I’m also trying to fit in an hour of walking. Hopefully I’ll be able to keep at least some of this up once chemo starts…
I just had a look at that book on Amazon, it looks an interesting read, I will have to order it.
H
Hi ladies, just catching up on what I’ve missed whilst been away. Thanks for tip on book sounds an interesting read! I’ve also been talking to a mum in my sons class who is also going through this at the minute. She is due to finish chemo end of may. She has been having T and said she’s just been feeling tired as time has gone by. She got swollen ankles and her veins now ache but she was better on T than EC so hopefully we will be fine.
Know what you mean bout the brave comments. I don’t feel brave, this isn’t something we have chosen to do. We are forced to deal with it.
I had a nice surprise from my friend when I got back today. She had really long hair and has had it cut into a bob to support me. She’s then donated her hair to a childrens charity. You really do find out who your friends are at your low times don’t you xx
Hi Katie. Its great to hear everyone is doing well at the moment. I have been out and about with my family and feel well. I know that helps them as much as it does me. Looking forward to a good week before round 2. I know what you mean about supportive friends. I too have been blown away by kindness . My advice is tell people, if they don’t know, they can’t help and support. ? Today is a good day.
Thanks ladies , glad we are all doing well. I think this forum is what we all need to keep positive and pick each other up when needed. No matter how good our friends and family are no one quite gets it like us xx
My hubby has just come in with the cod liver oil and a serving spoon. He didn’t want to spill it. ?
Good to hear we are all well, enjoying our good weeks, heading into round 2 together 
Heather
MJK that’s funny. What supplements are people taking? I asked chemo nurse and she was not keen. Just advised healthy eating. Anyone had any advice on this?
Was told ok for multivitamins by chemo nurse but haven’t taken any this time. I see Oncologist on Fri so will take the packet and show him before I take any.
My onc appointment is Friday too. We can compare notes after. So glad to share this journey with you. (sorry we had to)
As good as my friends are, they haven’t been on this journey themselves so its good to have virtual friends on here who know exactly how it is!
H
Morning. Has anyone noticed any changes to lumps? Mine has been different since biopsy and a marker clip fitted and I was too scared to keep checking. But it definitely feels different again today. That has to be good doesn’t it?
I’d say it sounds good treehouse. Does it feel as swollen? I’ve had my surgery so can’t really compare notes on that one! I’m off for my genetic testing today x
Thanks for reassurance Katie. Good luck with genetics councillor. Mine was great offered to test my mum and put a rush on my results as that will help decide my extent of surgery. ?
Thanks Mai. You make me laugh- Gollum!? If you feel ready brave the shave I know that is a tough decision. Still no hair change but scalp tingles. Happy to report face is calming down makeup doesn’t burn anymore so I look half decent for the school run.
Just waiting for my introduction to chemotherapy session. I think medics are wary of supplements interfering with the drugs. Noni juice is a non no but Japanese mushrooms (maittake, shiitake) are used widely in Asia and govt approved in Japanalongside chemotherapy l as they boost your immune system and can reduce chemo side effects. Fine with chemotherapy but can cause issues with tamoxifen.
Thanks MJK. Good luck today.
Well done Mai7. Sure your mum meant it. Shes just knows it’s different from your old style. I’m fed up with mine coming out now. I daren’t wash it I’m too afraid. It’s bad enough when i brush it!
Hope all went well MJK
Treehouse glad ur now feeling better. Genetic test went well although have to wait 6-8 for results.
X