May 2017 chemo starters

Hi Rosie
Sorry to hear about your family. I agree our diagnosis can bring out emotions and fear in other family members. My mum had bc 3 times and ovarian but she is only one ( so far) and doing a great job looking after me through this. In fact I got 2 goody bags. I am on different chemo to you guys. Clearly they were expecting me to feel s**t. Lol. Have a good day. We are trying to get the house ready for round 2 tomorrow. Shopping and cleaning. I liked jelly last time.

Forgot to say enjoying the “Wash n go” haircut, saves me 20 mins of hair drying after a shower., actually quicker than my husband. Sad that it is still falling out everywhere and will be gone soon, kind of got used to short hair. Decided when it comes back to kept it in a short style.

Oh rosie, must be difficult for your all. Definitely get out and have some fresh air. That’s my goal of the day. Still aching but feel like I need to get out just waiting on district nurse for another bloody injection! I feel silly that all I’ve been through, surgery, results, biopsy, chemo and it’s the bloody thing that is suppose to keep me going totally floors me! What’s that about lol!

Hope your feeling better today treehouse x

Glad your getting use to your hair Heather. I still stare at myself and can’t get use to it. Still got some on top and feel happy for now for that to stay.

Enjoy rest of bank holiday x

Got out for a play in the park with my son. Good to be 'normal ’ although being 4 he feels the need to tell other mums that ‘mummy had her hair cut short because it’s going to fall out then she’ll wear a wig’. ?

MJK oh bless him. Kids are great and it means he has accepted what’s going on. My 2 are away and I am guessing I will shave while they are away. I know my hair has been the biggest worry for my youngest. Katie I am ok. Just a dull ache toda. Went shopping this morning. Now snuggled on sofa watching game of thrones marathon with hubby x x

Bless him MJK very sweet !

Thanks for the tip Annie I will let it cool below 40 from now on. Can’t seem to take the heat myself anymore either ? . I know this suck ladies but we are getting the hang of this. Keep sharing. We are strong ? x x

Hi I am new to the forum,hopefully not too late to join you ladies on the May 2017 starters thread.

Had my first treatment last Monday 10am in the morning but had to wait  around for nearly two hours before they got my meds ready, so not a good start. I had Akynzeo an hour before the treatment to prevent nausea and vomiting, FEC went in without problems. Was told to take Prochlorperazine later that afternoon to prevent more nausea and sickness but reacted to it so badly so had that changed. 

Day 8, I am coping ok.

Sending you all best wishes and love.

 

Nicole xx

Hi Peonies (Nicole) welcome never to late I’m glad you found us. Snap I started the same day as you last Monday 9:30 am. Are you due 2nd on 12th?
I really feel for you with the sickness I hope the new meds worked better and it will be more controlled for the next one.

Hope everyone has had a lovely bank holiday and eveyone feeling alright this evening xxxxx

Hi Nicola. Welcome to the May club. I started on FEC last Wednesday and, like you are doing ok at the moment. Hopefully next time they’ll be ready for you. X

Hi Peonies, welcome to our group, we are all at different stages and on different chemo/meds but we all have the same side effects.

 

I have my 2nd FEC on Thursday, and have new anti sickness meds to try.

 

Heather

Hi ladies, 

Just catching up on reading some of your messages and hi to the new starters. I think you are all doing fab!. I had last chemo on Wednesday (Doxataxel)and have felt rubbish since. The aches appeared on sat and are still going strong. They have given me tramadol to take alongside paracetamol this time and it does seem to help for a while. The injections are horrid - my husband has been doing mine for me bless him. I couldn’t imagine doing it myself so well done those who are. I envy you all for getting out and doing a few bits and bobs. I became a bit of a hermit in the end. Everyone I was seeing was getting ill or had been around someone who was ill and it just panicked me. Was easier to keep myself to myself, except seeing my mum. Need a trip to GP tomorrow though - called triage about a slight swelling on my arm with a bit of redness and tenderness along the vein where I had the canular put in on wed. She wasn’t too worried as my temp is fine and I’m otherwise ok. Have had to draw a pen line around the red site now though to keep track if it spreads!! Very fetching!!

Keep strong everyone xx

 

Diagnosed end of March , ER+, HER2+, had a lumpectomy and SNB , one was positive so axillary nodes clearance, further 19 nodes all clear.

Treatment plan :3 FEC and 4 T, next one due 12th June.

Had a CT scan prior to my treatment, bone, lung , brain and kidney all clear but they picked up something on the liver, oncologist does not seem to worry but have ordered a MRI scan on 5th June . 

My children are older, daughter 18 in uni at the moment, son 17, just finished his year end exams so he will keep me company next week. I have no family members in this country, so really don’t have anybody to talk to about this whole breast cancer saga.

Hopefully with you ladies here, we can get through this together.

xx

 

Hi Nicola, sorry to hear that you have no family close by. We will all be here for you and support you in what ever way we can. There is always someone on here at some point both day and night if you need advice or a chat about anything.

 

Heather

Hi peonies welcome to our special group. I find our chats supportive, informative and at times hilarious. All needed with this treatment. I feel a bit naughty. My husband refused to go out with the lads for a drink as he did not want to leave me home alone. So I went too ?. Big day tomorrow, round 2. Lets see if we can do it in less than 8 hours this time. Think we might take travel battle ships?. Back on the steroids so not expecting much sleep.

Hi Sarah. Hope this settles down soon. Don’t need extra things to worry about. Injections are the worst. I do them and felt really proud of myself the first few timed but as I began to feel rough, the novelty soon wore off. Husband is amazing and would do anything for love but he wont do that. Needle phobic!!!

Hi Anniej. I am dreading the pains again. Neck shoulders and upper back. Even my pyjamas were uncomfortable I was that sensitive. I got some badger muscle rub in a chemo care pack from my brother. Will give that a try this time.

Hi Trisha. Boots sell biotene dry mouth spray. Don’t know if it works. Sorry you feel rubbish.

Hair seriously shedding now. Pillow covered and shower blocked. Finding it everywhere. Shave is imminent but got to get through today first ?

My hair is short now but it is malting everywhere, its like we have a cat! I wear a sleep hat at night and still all over the bed. My parting is getting wider…