Mai7 very relieved but ending chemo has brought my surgery closer so now really wobbling!! Will be nice to have a few weeks rest beforehand though. It’s a scary prospect getting back out there in the real world. I’ve been told mixed things about when it’s ‘safe’ to stop worrying About immunity. I was initially told 21-28 days from when immunity starts to rise from the 3rd week following chemo and another told me from week 4 should be safe. Has anyone else had any discussions about when immunity is back up?
just wanted to check that with all the sun we are having that everyone is aware of how the sun can affect you during chemo? I was told I’d be more sensitive to the sun but man alive wasn’t expecting to be that sensitive!!. Despite using cream I still came out in a dreadful rash on my face that lasted over a week. I wasn’t wearing a hat except for my chemo cap. Use the highest factor possible and wear a large brimmed hat. Haven’t had any problems since. If you do come out in a rash I was told to use piriton. Worked a treat.
Hi Sarah. I had surgery first, while it’s not fun it’s ok and I wasn’t in much pain. I guess with the immune system recovery varies from person to person but probably best to be cautious. Eating lots of broccoli and berries would boost it. Just seen a bit of Victoria Derbyshire back out in the real world. I got caught by the sun too which added to the steroids made me look like a lobster.
All the best for today treehouse. X
I tan easily as have olive skin, quite oily and soft, my grandad was Italian. My feet are looking very brown like I have been on the beach holiday. I use factor 30 cream and wearing a large brimmed hat when I remember my thinning hair. I have a rash on my neck below both my ears, like raised spots, assumed in was insect repellant as use that daily too. Will try different hay fever antihistamines to see if it goes.
Good luck Treehouse xx
Mai7
Bringing it to me like prey ?
I’m laughing and laughing that’s cracked me up
??? that will keep me going all day xx
Random thought here. When my son gets itchy I rub olive oil or sunflower oil in. It’s natural and soothes it better than anything else. Might be worth a try…
Hi Ladies
I am also new to the forum and hope it is ok to join in, your posts are all very helpful and comforting to read when heading into all the different treatment plans.
I was diagnosed 6th March with invasive lobular, mastectomy and 21 lymph nodes (all affected)removed 6th April, having 3 x FEC 3T first treatment last Wed 24th. Went in ok but was sick when I came home and the next day the domperidone actually made me sick…advised to just take the steroids and see how I was although still nauseous have managed ok and have eaten a bit better for last 2 days, tired and a bit of sore mouth today. I had my hair cut very short on day before treatment so what I have is still in place but it is early days…Best wishes to all you brave ladies x
Hi curlyh welcome. My cancer and treatment is very similar to yours. Diagnosed with invasive lobular in early March. Mastectomy with 26/27 infected lymph nodes mid April and started 3x FEC + 3 T last Wednesday. I hope the mouth isn’t too sore. I was given Benzydamine for sore mouth so definitely worth asking! Luckily haven’t had ato use it yet. Big hugs. X
Welcome new ladies, never too late to join .
Good luck today treehouse. Is there anyone else on treatment this week? I can’t keep track! Chemo brain is setting in!
Just been cinema and lunch with my boys whilst they are off for school and am suppose to be going to watch Buddy Holly 2nite with hubby. Almost sound like I have a social life again . Take care ladies x
Hi curlyh welcome to our group. Make sure you ask for Emend next time. I was sick/nauseous first time round but fine with Emend plus all the other anti-sickness meds were doubled up. Felt more spaced out but was worth it not too be sick and be able to eat!
Katie - glad to hear you’re having a good day with your boys. We really do have to make the most of the days when we’re feeling well. Enjoy Buddy Holly
Welcome curlyh. Great to have you on board. Well treatment 2 was a drama. First line was working but hit a nerve so agony. Second try over shot and my arm ballooned with saline so that came out too. Changed arm and nurse. (poor Clemmy’s average has dropped). Herceptin was pushed through 30 min faster. Then perjeta almost finished then I went dizzy and had chest pains. They pressed pause and took me to a side room to do ECG. All clear but decided to slow it all back down again. My goody bag has grown again…i know you are all jealous I will give you the full inventory when I get home. At my mums for roast chicken being spoilt rotten.
Treehouse - blimey what a day sounds horrendous - enjoy the chicken, chat later xxxxxxxxx
Thanks Wolfee and Mai.i am ok. Not ready to take the plasters off and look at my arms yet. Hair wold not be an issue if it wasn’t all over me, the sofa etc . 3 weeks before I go back so hopefully I will forget like child birth. ? x x x
You’ve earned that roast! It may be worth asking about getting a PICC line fitted before the next round to spare your nerves and veins. ?
Maybe but having a line in full time freaks me out a bit. ?
Fair enough, it took a bit of getting my head around it. My oncologist did it automatically because of the docetaxol. I’m aware it’s there and I don’t wear tops above the elbow but I haven’t had any issues with it. I get a weekly visit from the community nurses to check it (and me). X
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Misyangel
WARNING SENSATIVE CONTENT ?
You mention cream for down below in your goody bag, I’m glad I’ve seen this. Today I have had a kind of irritated feeling not sure if it’s an itch or sting? Is this another joyful side affect or unrelated? I wasn’t sure it’s not a major problem yet (hope it won’t be) but it hasn’t eased off throughout the day. It’s no worse but isn’t any better. I hadn’t seen this on my list of possible side affects.