Sorry for the typos in that last post ? think you get my drift though!
Oh Andi, the first two weeks are tough and unfortunately you just have to be patient . It does get easier, believe me, but it was a big op and the gradual progress can be frustrating at times.
I think because you can’t do very much, there’s too much thinking time. This was the time when I finally relaxed and thought about what I’d been through and I think the wobbles are completely normal. Going back for the results is always an anxious time, but at least you’ve had the mastectomy so whatever the results it’s all been removed.
Well Tatyana we can compare notes, I am going on to Capecitabine for 6-8 cycles as a preventative measure against recurrence.
It is now being offered to TN ladies who had residual cancer after chemo regardless of whether nodes were clear or not.
Oncologist said I should still be able to go back to work, but I will probably work more from home than I originally intended. Although I’m not exactly jumping with joy at the thought of more chemo, even in tablet form, it seems a better approach than there used to be for TN - cross your fingers and hope for the best ?
That’s interesting rosie has your onc told you you are going on these after you have finished rads? At my last onc app before chemo 6 he said to me no follow up? I wonder if I need to phone the unit and make appointment to see him while i’m Still under him they said I could ring for next 6 weeks? Sorry I don’t teally know what’s happening to be honest, it was a case of your under rads now feel like on the conveyor belt of the generation game, wok, cuddly toy, extra pills ???I don’t want to miss something that I should be getting as a preventative measure if that makes sense. Thanks ??
shi xx
What a rubbish day I’ve had! School bus didnt show up so took son, A1 was closed so did detour, he got to school on time I was a bit late. Office had row at work about holidays, I came home and decided I would apply for the work from home job, about to revamp my cv and check details of job on line and they closed it a week early and no longer taking applications…
Re vit D. I dont know if I am/was deficient but started taking high dose about a month ago. Keep seeing info on various websites about it. Onco, Gp etc didnt say I was low but taking it anyway.
H
Herbal remedies like St John’s Wort can create dangerous clashes with cancer drugs and statins, warn experts - The Telegraph
Shi - I think because you had surgery first, your chemo and rads are the “mop up” I had chemo first so when I had surgery they was some cancer left, I didn’t get a PCR (pathologically complete response) so I need a “mop up” now. I suppose that’s one advantage of neoadjuvant chemo, they can see the effect chemo has on the tumour. You should go back to your onc after rads and then have 6 monthly or annual check ups.
I’m not having rads because I had mx and my sentinel node was clear. Onc did consider it yesterday but decided rads would not be of any benefit to me but Cape would. For people who have rads, Cape can be given afterwards.
Oh Heather you must be really fed up. What a day! The work situation sounds awful, you really don’t need all this stress. Hopefully, another suitable job will come up and you can tell them to get stuffed ??
Holiday, or not being able to take holiday is pushing me over the edge this week at work. I am allowed Feb half term, nothing at Easter and now there is a qyestion over if I can have May half term, despite emailing my boss last Sept to request it. This is to do with office cover. I had a melt down and said why am I expected to work from Feb until 20July with no break? I am on phased return and need the hols for rest and spending time with my children. Tried to call their bluff today and said I am booking the next 9 Weds off as holiday. Weds is our busiest day for invoices and not usually allowed to take it unless part of a weeks holiday. Didnt go down well with them, I just put my coat on and left as it was my time to finish anyway…oh the joys of work!!
Thanks Rosie ?? H what a day again for you, I know it’s easy for me to say, but please step back and give yourself a moment the added stress won’t be doing you any good, it’s your employer who has a problem not you and at this rate they won’t have any staff within the next month. Get cv updated and load onto your phone get all your accounts set up on the online jobs boards so alerts come straight to your phone with daily postings so you can go to the loo and apply on your phone while in work so you don’t miss out again. Put yourself first and not the ? pile you are unfortunately working for. ??shi xx
Good evening ladies, it’s officially feet up time for me as I am absolutely exhausted!
I’ve had the best birthday ever - and everyone has been truly amazing! I’ve been well and truly spoilt and just so grateful to be alive and make the big 50!! x
Hi Rosie and welcome to the Cape club! There’s a fab thread in the Secondary BC area with lots of tips and encouragement about living with Cape, it’s forum.breastcancercare.org.uk/t5/Treatments-and-medical-issues/Xeloda-Capecitabine-Your-Top-Tips-please/m-p/645043/highlight/true#M4391.
Hubby and I are off to Greece tomorrow for two weeks break before I start the Cape. Really looking forward to it. Booked everything in a mad rush today after clearing it with chemo people yesterday. Packed in double-quick time, not like me at all!
People have been so supportive since my secondary diagnosis. My aging parents’ neighbours and several of our friends are on standby in case the old folks have a crisis while we’re away, everyone wants us to be able to relax and have a great time. GP is sorting out some counseling. Sister in-law has offered to drop everything and fly over from Canada to hold the fort if we need it. I’m overwhelmed by people’s kindness.
I’m feeling much more positive now I know abit more about Cape. It will be good to compare notes with you, Rosie dear.
Meanwhile good luck to everyone here, you are all moving forward so fast and strong. You rock!
Tatyana have the most amazing holiday and enjoy yourselves. So glad you have support of everyone and are feeling positive.
So much love ? x
Tatyana have a wonderful holiday, !eave the last year and any worries at home. Come back relaxed and refreshed.
H
Have a lovely holiday Tatanya enjoy every moment of it x
Tatyana, have an amazing holiday ? catch up with you when you get back xx
Mai - yes I’m really not looking forward to getting back on the chemo treadmill. Have just booked a holiday to Kefalonia at the end of May but onc says we can work round it. I think I can come off/ go back on it as it’s just a preventative measure. And I shouldn’t lose my hair - that was my main reason for agreeing to it?
Annoyingly, I had just been classed as super fit the day before! Health MOT put me in the top 30% of women my age in the UK and cardiovascular tests classed me as elite? After the year I’ve had I’ll take that!
Looks like that may change in the next six months as I may not be able to carry on swimming but at least my starting point is good.
Tatyana-Yammas darling ???enjoy every second. H hope you get your wednesdays booked, I’d still wait till the no holiday rules start then get signed off sick because if you have moved jobs you might not have accrued enough hols anyway to take what you want. I suspect you are like the rest of us on here, worked flat out for 30 odd years never do off sick etc while others have Year in and year out taken the pee pee and got away with it. Please don’t let them pull your chain, you are not their puppet ??shi xx
Rosie get you with the super fit MOT. Good to know the rest of you is fighting fit. I’m am jealous.
I was still awake at 3am wondering what else was wrong and hunting on the internet to self diagnose.
Bad idea I KNOW!
Shi you make me laugh ?
Treehouse ??we are all guilty of a bit of covert googling no matter how many times we are told not to, your fingers just go for it. I always try and seek out the positive results and stick those ones in my head otherwise I’d go even more ???you make me ???too, your ???and ???it when you put your foot down when anyone oversteps the mark with you now ???shi xx
Sorry I haven’t posted for a while. I’m following but lose track of stuff very easily.
Tatyana, have a great holiday with warm sunshine. You deserve it. X
Heather, how lousy is that. I can just about see the first week (up to 5th April) could be tricky but the second week should be fine and, as you say, you’re on a phased return. Id speak to HR or occupational health.
Not all local government is like this. My manager is very supportive as my phased return has been very haphazard due to nasty colds and now a flat tyre. ? I’m actually ready to get back in the flow of it but instead am waiting for the AA. ???
Mai, you’re doing well working so soon after radiotherapy. I’m not surprised you feel tired.
Jay, glad you had a great birthday. I think every birthday will be a big one from now on. ?