Wide awake 5am on the day I could have had a lie in until 7am as going into work late. Will get this sleeping for 8 hrs one day …
I had help fron the Citizens Advice Bureau thru the local charity at Hospital. You have to fill the form with the mindset of how you feel at your worst.
Hard when you want to wait til u feel better to fill the damn form in. When do we get to feel better… I am 3 weeks and 2 days post Rads and am still absolutely shattered. Get bursts of energy then flop. Meant to see a Bereavement Councillor this morn and am gonna have to cancel again. No longer have a car and no o w to ask for a lifr and the thoight of walking there and back makes me feel sick. S3nding love you all. xxxxx
xx
My mum died 2 mobths ago and had BC in 2000 then diagnosed with Bowel Cancer 4 years ago. My brother 3 years ago. He is fine and my bowel was checked. Have no family.history on my mums side as she was adopted. I asked my Oncologist about genetic test for my 3 daughters and he said it wasn’t hereditary. mmmm funny how have had same BC as my mum HER + and have a Genetics appt on 5th Feb…???
Andi, wonderful news, I’m so pleased for you!
Hi Trisha lovely to hear from you. Hoping you are ok, well done for finnishing rads, its good to be done isn’t it. Hope you can reschedule your meeting soon. Take care.
H
Rosie, sorry to hear about your niece, it’s miserable for her. But we must be glad that at least she has the best possible chance of preventing the disease from ever developing.
I wish they would find a way to fix this gene, and soon!
Mai, thinking of you I’m scanxiety hell. Good luck with the results and with the trial. I hope you get the real drug and not the placebo, but at least you’ll be closely monitored. And you’ll be doing something good for future patients, and that is something to be proud of.
Correction: I’m scanxiety hell should be IN scanxiety hell. The dreaded predictive text strikes again!
Thanks H. Sorry been awol just so damn tired xx
Mai. - yes I’ll keep popping the pills! ?
Good luck with your trial I think it’s great that you’ve put yourself forward. Hope life back at work has you feeling normal ?
Tatyana - thank you lovey ? How’s things with you? x
Trisha69 , Well done on completing rads. I’m sorry your suffering so much with tiredness. You’ve had a lot going on with your mum and trying to get genetic testing done for the rest of the family, maybe you are a little low emotionally from it all and that that is also contributing to your tiredness?! Maybe see if you can remake a bereavement councillor appointment and let it all out!!! ? x
Misyangel - Thanks lovey ? It is the best news ever but oddly enough not jumping for joy or ready to celebrate just yet. That may sound weird but I’m still processing it all. We’ll go out with our best friends including the kids for a lovely meal but not just yet ? x
Andi, hi my dear. I’m ok, in the middle of a 2week holiday before starting on my new chemo, capecitabine. We’re at our second home in Greece. Having a lot of emotional ups and downs. We’ve been so lucky over the past 15 years to have this place, which we bought after my first cancer diagnosis. In recent years we’ve spent 3-4 months of every year here, working and playing. Now we’re trying to get used to seeing it as a holiday home where, if things go well, we can spend the odd few days or a week, rather than a big part of our lives. I know we’re very fortunate to have it at all, but at the moment the sense of loss is quite painful. We’re trying hard to enjoy this beautiful place right now because we’re here right now, and stop those never-again thoughts! The sun is shining and there are flamingos on the lagoon. How do I dare not be happy!?
Thanks Andi and will rearrange it xx
Tatanya enjoy Greece. xxx
Morning all. Wow you have been busy this morning so much to catch up on since I went to bed!!!
Trish my lovely so good to hear from you. The tiredness is tough. I didn’t have rads but I am still completely useless so I appreciate how you feel. Doing the dishwasher is a major event for me. Be patient with yourself. You have been through a lot. I think the councillor is a good idea and appointments are difficult to get.
Andi I remember that feeling totally overwhelmed but suddenly no energy. It’s gone - tell everyone- rest. I really wanted to celebrate but not yet. And then … well I never got the chance.
Mai and Wolfee and all those back at work I think you are awesome ?. I don’t have the energy or brain ? to cope with that yet.
We have been talking about me going back in 3 weeks. I can’t see it at this rate of recovery. Work sound happy for me to stay off till next sept ( what with herceptin and ovaries) but I am on half pay and that stops in May. Better hurry up with the pip form.
I also think I need to start processing in order to start living again. I think I am in a bubble to protect myself from feeling anything. Not sure if I’m ready yet to rejoin the world. I have refused most visitors since my second op only seeing close family who I can’t say no to. ( mostly to avoid germs)
Tatyana you have so much to think about. But it sounds like you have a wonderful husband in an beautiful setting.
Talk. Cry. Hug. Eat.
Still not sure what I am supposed to have learned from all this but I adore my family and appreciate all the people in my life.
Big love to you brave lady x x
Haha ? I felt like that coming back to a house with 4 kids after 6 weeks in hospital. My last 4 days I had been isolated!