Big hail storm 
Treehouse, hail it’s getting us ready for the sleet and snow forecast for overnight brr. Yep right with you in the put your space suit on and have a dip in the antibacterial tank before entering the house as you all know after the casa nhs stay in round 1, I’ve not been out, only for hospital appointments on week 3. I’m going to wrap my scarfs round my face, wear gloves and keep antibacterial hand wash in my car and handbag too, it’s just going to give me a bit of comfort and i’ll Also be carrying me bottle of thieves oil and paper hankies so I can snif that up my nose too again for comfort ???
shi xx
Shi, you are right about protecting yourself for a while. I got a call from the research unit this morning. I have to have a repeat blood test next week as my neutrophils are currently not high enough for the trial. They have to be at least 1.5 and mine were only 1.1 and my last chemo was 25 Sept! Stupid ducking neutrophils! Xx
Oh Mai. This Chemo just seems to hang on.
Does that mean you can’t go on the trial?
Blooming heck mai, that’s a surprise to hear your neutraphils are that, I bet you were a bit ?too. Do you think it’s because you had that cold during rads too that’s knocked them? Sue on Oct thread is off to Dublin between chemo and rads too. ??? Neutraphils dance for you ???you’ll get them up ok for next weeks test ???shi xx
Oh my god. I just realised…
I booked a holiday to Disney after my mastectomy . I am now a cardio patient, I can’t go on rides!!!
???
Treehouse, you’ll be ok on the teacups ride and the gentle ones won’t you? ???if you end up as the jacket holder make sure you have some fabulous outfits to stand there styling it out ???shi xx
Tatyana lovely, sorry meant to say earlier, you are enjoying your beautiful ?? Greece and you will again, might be for shorter stays but keep looking forward to those shorter breaks too ??love you ??shi xx
Treehouse, I am a chicken on all rides that leave the ground, even the teacups made me want to vommit! The boys did over spin it I have to add. Will find the picture of us on Spash Mountain, I screamed so much my throat hurt!!
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Tatanya lovely to hear from you and your enjoying Greece i agree with Shi even if shorter stays its something lovely to look forward to ?
Wow Mai thats quite a shock about your neuts i know what you mean about the chemo on our bodies and immune systems i feel like an old lady at the moment currently nursing a very sore hip and back seeing oncs registrar on Mon to check me over might recommend a bone scan but ive a feeling its arthritis starting as i have it my foot and had a problem with psoriasis linked arthritis a couple of years ago i think my body is probably reacting to everything its been put through and so bloody tired still!!!
Mai im a scarf round the face lady too, i can’t get people to understand why though they probably think im a weirdo too!! I have my face to face meeting with pip on Tuesday and will probably cry all the way through it i feel about 20 years older now and everything totally takes so much energy now it is upsetting when you have to write it down x
Tatyana, lovely to hear from you and that you are trying hard to live in the moment and just enjoy today. It is really difficult to do that but I think it is something we will all have to practice now, and it will take practice to wake up and think well today’s good let’s just enjoy today.
Mai - what a pain about the neuts. I read somewhere that it takes longer than we think for blood counts to return to anything like pre chemo levels. I’m sure my platelets are still low as I have those red dots on my arms, torso etc that I started getting on chemo. Googled it,very bad idea that was!
I too am unable to a dance as have hurt my shoulder, my own fault as overdid it at the gym. But have everything crossed for .4 rise in neuts. Hope your hip is feeling better Jay
Went into work today, first time without wig; took a deep breath, fixed a jolly smile on my face and went for it. Relieved to get it out of the way and all set for Monday now working 10 - 2/3pm to avoid rush hour on train just for two days the first week and then increase throughout Feb
I completely understand you scarf ? wearers ?. I have only been into a handful of shops since my release. A bus ? is a step too far for me at the moment. ? ? ?
Happy February everyone. I hope your bulbs are sprouting. Getting closer to spring!! ???
Andi, my lovely, you found exactly the words that I needed. I’m now learning to think of this trip to Greece as a way to build up my strength and fuel my return, you expressed it so well!
One of the things I love about this forum is that no matter how low or scared or fragile I may be feeling, one of our lovely ladies will find the right thing to say to help me to look at things in a different way,to know that someone understands it all, or even just to smile and laugh through the tears. Where would I be without you all!
Talking of tears, yesterday was exactly two weeks since my secondary diagnosis. And it was the first day on which I didn’t cry at all, not even a little bit! Not that I’ve been going around weeping and wailing all the time, but every day something has set me off, usually some quite mundane thing like going to my favourite Greek supermarket and wondering whether I’ll ever go there again. A supermarket- really??!! ?? But yesterday I was fine all day, maybe a few moments of sadness but mostly joy. I feel so much better because I was beginning to think I’d never stop crying at everything. Now I’m hopeful that I’ve started to adjust to the new realities and can really enjoy life here and now!
Other good news: we’ve found a really lovely couple who will pop in to our Greek house now and again, make sure there hasn’t been an invasion of ants or a flood, do some basic cleaning before our next trip, and do little DIY jobs if required, all for surprisingly little money which we’ll easily have saved by not coming out here so often! And they are really nice people who we instantly trust and get on with. That’s a massive load off our minds and will make it much easier for us not to worry about the place when we’re not here, and not to worry about cleaning and laundry if we or friends and family want to spend time here. Suddenly we’ve stopped talking about whether we should sell up!
I seem to have written War and Peace again, sorry folks!?
Mai, sorry about the neutrophils, what a blow! I’m doing a special Greek neutrophil dance. Like the usual one but with ouzo.,???
Bravo to no-wig Rosie! I’m out and proud with what I like to think is a pixie style, except that I still haven’t enough hair to keep the cold out so I end up with a hat or scarf anyway! And all you scarf-round-nose ladies, I’m with you all the way, but what’ll happen when the warm weather comes??
Hi ladies. I hope you are all ok. Just popped over from the Oct thread to seek a bit of advice. I am due to go in for single mastectomy next week. No recon. Should I take a bra for after? I am only a B cup so happy to not bothered with one but I didn’t know if they would want me to wear one? Any other advice on anything I might need would be very much appreciated
Cassie x
Andi ???mai don’t wet yourself on the way home from work when you see that ???tatyana as the wonderful Greeks say oooopppppaaahhhh ???shi xx