JemPD,
I already have my wig and I like it, maybe too hot to wear it recently though. I also don’t want my wig to look like a wig if that makes sense.
It is distressing, feeling a bit down emotionally now that I feel more energised.
I have been for a walk today which has helped.
I have got some scarves etc but not sure I have the confidence to wear them yet.
Each stage needs time and encouragement.
Had 3rd chemo yesterday.felt sick so took an as and when tablet which helped.thinking about fish finger sandwich for lunch.not sure how many more to go though as is 8 currently in total on rosco trial but if i come off it i will just have 1 of 2 drugs on trial begining with a d but at a higher dose than on trial but it would be discussed at the meeting.also would avoid another biopsy on trial after cycle 8 so i think its a no brainer.op is now after all chemo not 4 cycles.
Thank you Shi, love your analogy, really put a smile on my face this afternoon ???
Tracey mac ??I know what you mean about the wig not looking like a wig, best to get a few in so you can swap your lovely k to suit your mood, I had a real hair one but then ended up happier in a 14.99 one from luvyababes another 18.00 from amazon and a 10.00 from the Mcmillan shop at the hospital, oh and some tinsel wigs and some coloured wigs from amazon ???well why not, and your answer to everything ladies is the steroids made me do it ???especially any shopping frenzies you end up having. For scarves there are some fantastic online tutorials showing you how to wrap them, so give it a try, get a bit of lippy on and see the strong beautiful woman you are, I hope you get in better than I did with the scared, I ended up looking like a extra from carry on up the kyber ??? hence all the wigs ??I’m up in the cockpit with the pilot keeping him focused on getting you all safely to Greek islands soon ???
Shi xx
Shi -thank you for your encouragements. Now enjoying the view of France??from the air- cycle 2 started on Tuesday. As many have described - what I imagine was like a very bad hangover with swimmy head yeasterday. Today feeling so much better. Nausea from cycle 1 not made a reoccurrence- is the that due to your piloting Shi or the meds being taken??? Hopeful each day will enjoy the view from a window seat- looking forward to the Alps in week 3.
Hope everyone is doing well.
Take care and enjoy weekend xx
Hi all,
Sorry for being so quiet. It was a busy week with a port fitted, LGFB and chemo. Now on day 2 of cycle 2. For those going to LGFB I really enjoyed it…2 hours of fun and mainly light hearted chat for a change at hospital with a free goodie bag of the lotions and cosmetics donated. It definitely helped me as pretty rubbish with make up…hope anyone going has a good time. Friday was chemo day…took three attempts to get the needle in to the new port as bruised and swollen still so not entirely great. Ended up panicking in the evening as for some reason I couldn’t swallow well and my heart rate was up so went to A&E at 11 till 2am…I was perfectly ok so felt like a fraud. Now going to concentrate on mindfulness and breathing techniques as sure it is all anxiety.
Today tired from the late night so relaxed,cooked and feel pretty good considering.
im doing cold cap but my hair is curly, thick and a big frizzy so has been clumping and coming out lots of the last week…decision time by next chemo really. As it is just a bit thin on top I’ve been wearing a bandana as a sort of wide headband…looks ok but we’ll see how much stays.
Hope you’re all having a good weekend and feeling ok.
Tropc_al xx
Sorry for radio silence. Like many here cycle 2 has been a lot worse with the tiredness, fog, headaches. Then on Thursday evening I took my temp before I went to sleep and it was 37.8. With some hesitation I called the emergency line and told to go to a&e. Bloods came back indicating infection/inflammation therefore admitted for 48 hours intravenous antibiotics/obs. Still here they’ve just taken bloods to see if I can go home today. Pretty crap, particularly as I have cycle 3 on Thursday! I had mastectomy with implant reconstruction before chemo and at the end of week 2 in 1st and now 2nd cycle it has become swollen and red (2nd worse than first) and they think that’s probably what spiked my temp. I suspect this is going to happen with each cycle now - i’ll just get home from this then I’m back in on Thursday for cycle 3! Staying positive when I can - have met some lovely old ladies in hospitals with amazing lives and stories to tell!!
Hope you feel better soon hets!!! Xx
Leanne17 thanks chemo twin! I have to say the last few days have shown me how important makeup is to rock the shaved look - no makeup, and my face as pale as my head, and I look like I’m on death’s door - I scare myself looking in the mirror! ???
Get well soon hets x plenty of rest when you get home . I have my 3rd cycle next week, and touch wood have been pretty good up to now except for a really sore mouth this time . I drink the yakult drinks every morning don’t know if it’s all in my mind but they make me feel better. Hope your all doing ok ladies 
Hets ??sorry to hear you are in casa nhs, very glad you rang and kept yourself safe. Time for a neutraphils ???In the aisle of the plane ladies to get hets back indoors from her wing walking she’s doing. Hope you have good menu where you are, I was lucky my 6 day stint during my 1st round of chemo was combat Ned with great food at my trust, keep eating and drinking and I went on the Life Mel honey too after that. ??Shi xx
Day 5 of 3rd cycle.still feeling sick and cold. Had some parkin ginger biscuits and anti sickness tablet. Just watching educating the east end as very addictive. Have still got a heat rash. Anyone got a suggestion to get rid of it? Stiĺl not hungry and taking constipation tablets although they havnt worked yet today. Hows anyone else doing on cycle 3? X
Linda, have you had that rash checked out by your team? I’m sorry to be such a mother hen, but please don’t just take things lightly while in chemo, it’s always better to just get things checked out and ring the number to keep yourself safe. ??Shi xx
Yes the doctor and oncologist have seen it.its just a heat rash under my boobs mostly. The oncologist said to keep it try. What can i put on it though? Aloe vera maybe? Been using germoline but not going.ta.
Dry not try.
Linda aloe Vera is really good. My mother grows it. Just break a leaf and squeeze the sap out and it’s good for loads of different ailments. A bit sticky but sinks in and works wonders. If u can get hold of some try it. Xx
Linda, try the dr organica aloe Vera gel and keep it in the fridge, it might help calm it down ???Shi xx
Thank you ladies!!! @linda Corrine def keep an eye on it. I’m going home today ???. Things are improving and I’m now on oral antibiotics. Cellulitis and non neutropenic sepsis (which I think means not about to kill me sepsis). But it is a bit of a lesson I guess. I didn’t feel particularly ill on Thursday night but I just took my temperature before I went to sleep which I always do. It was 37.2, so I waited 10 mins and it was 37.5. Over the next 30 mins it was 37.9 one minute and then popped back down to 37.2. I spoke to the chemo nurse and even she was a bit like ‘you probably should go in and get checked’ but it all felt a bit ‘will I, won’t i’. In the end I went in because I decided I wouldn’t sleep anyway!! So I know they say this but do always go and get checked and err on the side of caution. It’s a pain being in hospital but it is much better than the alternative! On the positive side I have met the most amazing array of women with incredible stories of their own. I’m not convinced I will be doing my 3rd cycle on Thursday, it feels as if my body needs a week’s rest, but I’m speaking to the oncologist on Tuesday.
Oh Hets what a nightmare for you . Its that shall i phone or not scenario that when your head is not clear and you don’t want to bother but good job you did . Sending big hugs to all others as well , tropic hope you feeling less anxious xx its day 6 of second cycle and like others felt worse this time . Went to bed on thursday and have been feeling nausea since then . If i take the metoclopramide then i feel drowsy and spaced out …Thankfully the the diarrhoea which was constant for last few weeks have stopped due to magic pill and they dialled back on The Docetaxel which i was intially scared about but they assured me was fine as my body needs to cope with the chemo . Hair … well the wig is there making the dog bark but too hot to wear . I have short very thin … grey hair left … why did my expensive highlights fall out ? ? so covering with bandana which is not looking cool ?. Hopefully get some tips on my lgfb course next week . We had quite an emotional day yesterday where my husband bless him felt teenagers could be doing more to help and he felt alone which broke my heart . There is no manual for going through this is there ? And teens like kids deal with things in their own way and will still be teenagers . Bit of an emotional roller coaster but we will get there . Keep going all … i am dressed today … progress indeed! ?xx
I think my highlights caused probs as the hair was weaker than my natural hair.they recommend getting hair cut short but glad i didnt as at least i have short natural hair a number 8 although not alot at the top.not sure if it looks ok or not and keep thinking about wearing a bandana too. Got lgfb course in july so not for abit. Went to the toilet today after 2 days thank goodness as didnt want to end up in pain again for 2 weeks like cycle 2. Been taking 1 to 3 laxatives a day which has helped. My neuts went up to higher than before i started chemo so not sure if thats the manuka honey. Got 3 more injections but feel like i am getting back to normal now on day 6 cycle 3 as dont feel sick today. Hope everyones doing ok. Am using aloe vera on heat rash but had it 2 weeks now although it nearly went last night.x