Hi dilys
thanks for your post about holiday…yes i got home yesterday to dfing I had been paid a small amount as my ssp ran out on the 14th aug and no one told me…am i still entitled to holiday pay for this I am so angry after everthing I have been through…my gp has signrd me off til Nov…now i have to phaff around trying to claim incapacity ben
sorry hope you are ok
much love Lucy xxxxxxxxxxxxxxxxx
Hi Lucy
one damn thing after another isn’t it? They really should have warned you! You really don’t need all this on top of everything else.
I am ok - chemo number four next week - start of taxotere, so let’s see what delights that may bring!
Love as ever
Dilys
Hi Ladies
Hope you all had a good weekend, Just incase I dont get chance to wish you well for Thursday here’s doing it now Dilys…Pauline when do you get your Tax infusion???
I am going to London with my partner today going to stop off at the London Aquarium on the way back, mum is having a day off today ready for tomorrow and the Tube strike if it goes ahead…
I read that post about Kylie and answered it, well you know what I am like…I will wait for the fall out, as per usual…
enjoy your day lots of love
Lucy xxxxxxxxxxxxxxx
Dear Dilys,and Lucy
Sorry I have been off again for a few days. My work computer has decided it won’t connect to the internet so have been fiddling with that all the time with no luck unfortunately.
Lucy I hope everything was okay today and that the tube strike does not happen tomorrow. Did you enjoy the Aquarium? I am going Wednesday next12th, for my first taxotere. Not looking forward to that, but at least I am half way through now.
Don’t worry about your Kylie comments you have to say what you think, but please don’t let these people get to you too much.
Dilys how are my Westies?!! Good luck for Thursday, if you get a chance, try to let me know how it goes and if it has any different effects for you. I could pop up and look after the Westies for you!!!
love to all
Pauline
xxxx
Hi Pauline and Lucy
Yes that tube strike will be a real pain. I was going to have lunch with a friend but won’t go if the tubes are acting up. Pauline your Westies are just fine! We play mad games of ball in the park every day, and then go home for a cuddle. I am going to miss them when their mum comes back next Sunday. Wish you could come and meet them. I will certainly let you know how the taxotere goes - I am there (blood permitting) on Thursday. I have joined in a thread about it on here as well. Hope you manage to stay on line. It is dead frustrating when you can’t connect, isn’t it?
Hope your day goes well today Lucy
Much love
Dilys
xxx
Dear Dilys and Pauline
Yes we did have a good time at the aquarium it wasnt too brilliant, but it mad a change from just getting to the hospital then home again…
I hear the tube strike is on but hoping that it wont affect me on the Northern Line, sorry if it affects your day out Dilys…
I dont really care i have had my say Pauline on the Kylie thing, I am amazed that people always want to doom and gloom it, I bet the statistics for being knocked over by a car or bus or being shot or stabbed are far greater than dying of breast cancer within 5 years, that means there is no hope for us lot - they posted something about some people dont like the truth, honestly it has given me the giggles that people have nothing better to do…
I have sorted out my incapacity benefit claim today and I am also apparently entitled to income support!!!
where is Candy these day’s?? I bet Lollie is having a fab time
oh well lots of love
Lucy xxxxxxxxxx
Hi Lucy darling
Glad the aquarium was ok. Went there with my grand daughter a few years ok but suspect her joy made my day! Yes sure lunch is off tomorrow for me but glad it won’t affect you. And so pleased you have the money sorted! Well done you.
I am living for YEARS after this lot. I am fully determined to be a grumpy old lady after another 20 years at least. Takes more than b****y bc to beat you and me, Lucy!
Too right. Lollie is on hols, but where is Candy?
Sleep tight
Dilys
xx
Morning alll
Well I hear the tube strike has gone ahead so poor Lucy will have a trying three days ahead of her but I’m sure she’ll cope and maybe we’ll get an amusing story out of her when she’s next online.
Re: the Kylie stuff I really had to bite my tongue, in fact I drafted a large post and then decided it was too heavy/personal/preachy and folk don’t appreciate it. In any case by that time there were so many posts and responses we’re we well off the fertilitytopic. Mind you, aren’t we off topic with regards to Reconstruction?!
That stats business is just not able to be accurate unless they are very specific to stage, grade, type, treatment and all kinds of factors including family history. Having just finished “It’s Not Like That Actually” (Kate Carr) I am now picking up After Breat Cancer by Musa Meyer - this has been highly recommended and addresses some questions we may be shy of asking. I’ll report back when I’ve finished it.
I’m off to a get together tomorrow with some folks who attended the Managing Stress courses at the hospital where I was irradiated. Lots of tea, coffee and chatter plus a relaxation session.
It’s a lovely day here so far, clear blue sky, sun and a slight chill so I’m off on my bike for10m and if it stays nice then another 10 later.
Hello Lollie (hols?) and Candy
Good Luck Lucy on the travel front.
Good Luck Dilys for Thursday.
Good Luck with your PC Pauline and read back for my detailed notes on Taxotere; I had few problems with it.
Love
D
Hallo everyone
Real struggle to get on line this morning and it keeps going off. I have refused to read the Kylie stuff! Where exactly are all your posts about taxotere Dahlia? Further back on here? I’d like to have a look. And have a lovely bike ride. No trip to town for me today - hope all this doesn’t mess you up Lucy?
Long wander in the park this morning with the Westies - it is a beautiful day out there.
Much love
Dilys
Hi Dahlia & Dilys & Pauline
I hope that you are all ok today…I got to London in Record time this morning…for all my moaning about the tube strike it was an actual benefit…shame it cant be like that everyday, it was like having your own personal tube service, it was practically empty…
Hi Dilys I wouldnt bother getting into the Kylie thing if I was you & I know what you mean Dahlia about the Kylie thing…I can see why a lot of people leave the site, as If you say anything that people dont want to hear, they have a go at you, you end up feeling like you are being lynched…I thought that the whole point was to get different views…oh well each to their own…
I read a very heartening thread from Jan about remembering I think it was called, it gives hope and is not doom and gloom even after all she has been through…
I am still trying to work out how to use the private messaging it is still eluding me any ideas???
oh well 11 rads to go seeing the doctor tomorrow going to ask about the itching it is driving me loopy
Love to you all n n
Lucy
XXXX
Dear All
Lucy glad the tube strike make your journey easier, hope it’s the same today. Let us know what the doctor says about itching.
I have tried the pm service a couple of times, sent one to Lucy and one to Dilys but neither replied so I guess it didn’t work!! Can’t see
the point of all the changes myself.
Can’t believe you have just 11 rads to go Lucy, that time will fly past for you.
Dilys all the best for tomorrow, must admit I am feeeling more anxious about the Tax than I did the FEC, but onwards and upwards.
Hugs to the Westies.
lots of love
Pauline
xxx
Dilys
Just to wish you luck for tomorrow and your first Taxotere - it’s now 50 weeks since the end of my chemo, can’t believe how the time has flown by.
Don’t forget what I told you about it - it is NOT that bad, but then I would say that wouldn’t I?
Wishing you luck (which you won’t need) and courage, which you already have in spades. When all this is done I will take the National Express up to “the smoke” and hopefully a few of us can meet for coffee and put faces to names - t’would be nice I think.
All the best
D
X
Dear All
I Hope that you are ok, yes best wishes for tomorrow Dilys…I’m sure you will be fine…
yes I cant wait to see everyone like Dahlia says, hopefully I will have a full head of hair then, it seems to be growing quite rapidly now…so have faith once your chemo is over it doesnt take long to regrow…
My rads itching I think you asked me about it Pauline…it was doctors day today, so I asked about it and apparently it is normal for that to happen and it will get worse before better so it has put my mind at rest, that was until I saw the news where that poor lady was caught on fire by the radiotherapy machine…
Thanks Dahlia I think I see it as whisperback…
Love
Lucy
XXXXXXX
Hi Lucy, Dahlia and Pauline
Long day at the hospital today and some veins shot, but yes, I am on for taxotere and herceptin tomorrow. Bring it on! Pauline - I got up early and had comfort from the Westies. Felt mean as sometimes they have a tendency to run off and paly, so marched them very fast on their leads! Most humiliating for them! Will have time tomorrow to give them a good run. Will let youknow how taxotere goes. I did ask about side effects but they just gave me the same bacup sheet, which basically says the same as it does for FEC. But my bloods were fine. Hold my hand and Dahlia’s and Lucy’s and we will be fine. By the way, never heard anything through the pm service or would have answered! Love Dahlia’s idea of meeting up! With or without hair? Dahlia - is your hair back now?
Lucy - so pleased that the tube strike made life easier. Must be a first! I heard today that I have iv herceptin for 18 3 week cycles. Such bliss! Got no sense when I tried tosquare that with 6 weeks rads every day. I have to contain my soul in peace until chemo has finished. But I want to plan!
Anyway off to tke the steroids!
Love you all so much
Dilys
xxx
Hi ladies
My post on 20th August (this thread) pretty much gave a list of Tax side effects although I did leave one out cos it’s very rare - although I ended up with it!!!
One other thing (as Columbo would say!) is that they keep a very close eye on you first time because it can cause a reaction which I cannot pronounce or spell but basically seems that a tiny percentage of people can have an allergy type reaction which they can treat right away.
Well we’re going up to “the smoke” later to see The Confessions of a Cardinal" at The Haymarket with David Suchet (Poirot) so that’s a nice treat. Next thing I’ll plan is going to the British Museum in the winter to see the Terracotta Warriors, that’s a “must do”.
Hope it’s gone ok today for you Dilys, please post if you can and I’ll check back again in the morning.
Love to all
D
Hi All
Thanks for the good wishes for tomorrow and also your reassurance Dahlia, I am sure it will be fine, just the unknown again.
It would be lovely to all meet up sometime.
Hope your rads were okay today Lucy and the journey not too bad.
Dilys I hope all went well and look forward to hearing from you. I don’t know if it will be the same for you but my herceptin follows the radiotheraphy
which starts a few weeks after the chemo. I would have thought yours will be the same. The only thing I was told was a year on Herceptin at 3 week intervals.
Seems a long old time to me but there you go.
lots of love
Pauline
xxxx
Hi All
Still a bit awake on the steroids! But am here and kicking
Today. Well all was fine, apart from several goes at the needles yet again. Turned out it was the damn machine that was malfunctioning, not me! But that apart!
For Pauline who is next:
It takes longer as you have one hour odd on herceptin on iv, and then the taxotere for about an hour on iv as well. No more red stuff through the syringes
Not sure if you have the eighteen cycles of herceptin but because this is the first they want to hang on to you for 6 hours to make sure you have no reaction! May be what Dahlia was talking about. But I didn’t, so no worries there.
Taxotere. They said it is much better at not making you sick than FEC. I wasn’t sick on FEC so woopee!
They said after two days you may well get the flu like pains… Take nurofen!
If you aren’t bald yet you will be! Bye bye eyebrows and lashes I think! And they rest of the hairs still sticking to my arms
Apparently harder on the blood count. Aargh!
I already have stripey nails but those will apparently turn dark - need very dark nail varnish
They told me the total cost of just today’s herceptin and tax was £2500. Do we love the NHS or what? I for one am SO grateful
But all that apart we are still here and fighting
Love to all and more tomorrow after the Westies have been to the park. Priorities are always there!
Much love
Dilys
xxx
Dearest Dilys
Thanks for letting us know so quickly how you got on. It seems much the same as they told me, but I am still very confused about whether I get the herceptin
at the same time as tax. Will have to ask a few questions next week.
Glad you are feeling okay so far and hope it continues that way.
As you say, don’t you just love the NHS. I dread to think what the total cost of our treatments will be.
Hope the Westies enjoyed their run this morning. Keep in touch to let us know how you are.
Bought some plants at B & Q yesterday so will be doing a bit of planting this weekend.
Hope everyone has a chance to enjoy the sunshine at the weekend
lots of love
Pauline
xxx
HI Pauline and everyone
Lovely walk with the Westies in the sun this morning though it had clouded over now. Their mum comes back Sunday evening so I am going to be bereft. I am still fine so fingers firmly crossed it stays that way.
Lots of love as ever
Dilys
Dear Pauline, Dilys, Dahlia
glad you are all ok and looking forward to the weekend I know I am , I feel exhausted today, travelling and rads taking there toll…feel a little sickie this evening…
I forgot to tell you and this will make you laugh, when mum and I went to the hospital the other day mum sat chatting to this lady and her daughter…I thought this conversation seems to be going in a funny direction then one of them said “how much more treatment do you have to have” to my mum…mum looked bewildered and said “its not me having the treatment its my daughter”…“oh the lady said your daughter looks so well”…I thought oh my God my mum will be thinking what the hell does she look like then a cancer patient…
we couldnt stop laughing
Just goes to show you shouldnt judge the book by the cover
oh well enjoy the weekend
Lots of Love
Lucy
XXXXXXXX