Hi Girls
How are you both doing? Hope Rads went well, and your skin is bearing up. Take Care
Love
Jillx
Hi Jill,
I had my rads planning and ct scan last monday but havent started treatment yet i was told my appointments would be sent through to me by post but they havent arrived yet. I finished chemo 13th jan and was told at the planning that rads had to start between 4-6 weeks after finishing chemo so hopefully get the appointments through soon or il have to chase them up, i just want to get on with it now . I am starting Tomoxifin today and am hopeing any side effects wont be too bad each new treatment brings different anxieties doesnt it, hope your doing ok have you started your rads yet ? Please let me know how your doing and thanks for asking how im am.
Lots of Hugs
Love Lindiloo x
Hi Lindiloo,
Nice to hear from you. I thought you had started the Rads sorry. Glad your planning and ct went ok, guess its just a case of waiting for the appointments now. I have my planning day this Wednesday, its about and hour and a half each way to the hospital, I have opted for afternoon appointments, they provide transport so it is not too bad, how far do you have to travel?. My OH was going to take me, but its pointless us both going, anyway he can make my tea!! I start Tamoxifen in a week, cant say I am looking forward either to it, do let me know how you get on, best of luck.Some people seem to have no side effects so fingers crossed for both of us Lindiloo. It is so nice to have someone at the same stage to go through our treatment. Stay in touch and hope the appointments come soon.
Love and Hugs
Jillx
Hi Jill
My rads start tomorrow - have been plastering on the aqeuous cream so hoping skin will hold out fine - I have no idea if it makes any difference if you are naturally dark skinned and not prone to buring - guess I will soon find out.
Lindiloo - hope you get your appointments soon. I had my mast on 10th Decemember so am obviously 8 weeks before starting rads - but this is more of an insurance policy than anything else - but was told it was 8 weeks max??
I am lucky in that I only live 10 to 15 mins from the hospital so not too bad. Was also planning working Mon, Wed Fri 07 30 to 1415 then have rads at 14 50 but dont know if I will go back no as my mum just died a week ago (dont know if either of you saw my thread on that). So I am at least going to take a couple of weeks to take stalk of everything and try to get my strenght back up.
Good luck to you both - stay in touch and let me know how your both doing.
Take care
Fiona
xx
Hi Fiona,
Lovely to hear from you, I was a week ahead of myself as regards your start date and Lindiloo, think
chemo brain is still lurking around!
I am so sorry about your Mum Fiona, I had not seen the thread or I would have posted my condolences to you sooner, please accept them now i truly feel for youx
As I said to Lindiloo, it is good that we are in the Rads treatment together, we can support one another.
Good Luck tommorow Fiona I willl be thinking of you, and take things easy and slowly you need to regain your strength, you have been through an awful time.
Lots of Love Jillx
HI Fiona, Im so sorry to hear about your mum it must be such a difficult time for you right now , i lost my dad last yr so i know how you must be feeling i miss him so much but in some ways i feel hes still there helping me when times are hard. Be kind to yourself and take the time to build up your strenght . Good luck for your first rads tomorrow hopefully i wont be far behind you .My hospital is about 12 miles away so not to bad compared to some . Take good care of yourself and am sending you lots of hugs
Lots of Love
Lindiloo x
Jill and Lindiloo
Thank you so much - to know people who I dont even know cares helps so much. I have received so many lovely cards and words of support since mum died it is overwhelming. Mum and dad would have been married 45 years this year so I so feel for him. Mum has been in hospital since last July (just as my chemo started), so dad is used to her not being in the house - but - every afternoon he spent visiting her so he has that gap in his life right now. We are both taking comfort in the fact that she is at peace now because she had deteriorated so much and could do nothing for herself the last couple of weeks of her life;. We have always been close but this has brought us even closer. I feel I am too young not to have a mum, and walking round asda today the tannoy kept announcing mothers day and I just felt like shouting and swearing at the blasted tannoy.
Will let you know how rads goes tomorrow. I am sure this will be the easiest part of this journey - fingers crossed.
Lots of love
Fiona
xx
Hi Girls
Just to let you know rads was easy peasy - does not even feel like anything is happening - hopefully it will stay this way all the way through!!
Love and Hugs
Fiona
x
Hi Fiona,
Great stuff! Glad it went well for you, You have eased my worries, Get slapping the cream on!!
Good Luck for the rest.
Keep in touch, I will let you know how planning goes on Wednesday, How many are you having Fiona?
Love and a big Hug, Well Done
Jillx
Hi Jill
I am having 20 sessions - hows about you?
They were not sure whether they were going to recommend rads for me or not as I had mast, no vascular involement, no node involvement and they got good clear margins. But they decided because I was grade 3 invasive ductal, only 39, and they are pretty positive I am going to be a carrier of the gene, they reckoned chances of local recurrence were 20-25% without rads and 5-7% with - so no contest really. I am also her 2 neg and hormone neg so this is my insurance policy if you like. Only downside is I will now have to wait a year for recon - small price to pay for living a longer cancer free life eh?? - and at least I know if it did ever come back in that breast I threw everything at it I could.
Planning is easy Jill - I take it when you say planning this is your measuring?? - If it is - they told me it could take up to an hour - I was only in there 1/2 hour max.
Take care
Fiona
xx
Hi Jill and Fiona,
So glad your first rads went well fiona ,as Jill says keep slapping that cream on.My planning session only took about 1/2 hour too. I will be haveing 23 sessions. Im also grade 3 had clear margins and no node involvement and er positive had WLE and SNB last july ,started Tomoxifin yesterday, ok so far but its early days yet so keeping fingers crossed re any side effects. Good luck with the rest of your rads Fiona and good luck to you Jill also for weds as fiona says the planning is easy worst bit was the keeping still ha. Onwards and upwards for all of us.
Take care both of you and well done.
Love Lindiloo xx
Hi Fiona and Lindiloo,
Lindiloo Glad no side effects so far with the Tamoxifen, long may it continue! I had grade 2 with lymph node spread so also had WLE and node clearance, I am having Herceptin after rads for a year once every three weeks, throw everything at it! Hope you continue to have no side effects. Thinking of youxx
Fiona I do not know yet how many rads I will be having, was worrying a bit about the planning day, but you and Lindiloo have put my mind at rest now, Thanks. I will let you know how I get on. Having an early night tonight been shopping today so quite knackered. Take Care and good luck tomorow, will also be thinking of you too. xxx
Goodnight Girls
Love Jillxxxx
Hi Fiona and Lindiloo,
Hope you are both ok. Im all ready for the planning day, hospital transport picking me up at twelve, there are 4 of us going all from the chemo ward so at least we know one another and they are all a good bunch. But I think I may have a problem which I am hoping wont mess things up. Last night my scar on my breast was very itchy and today its really red and getting stabbing pains around the area and feels hot, could just be a skin irritation, but cant believe it! Its never bothered me at all really and trust it to start now.Oh well at least they can look at it tomorow and tell me what it is. Anyway girls I will let you know how I get on. Hope your treatments are going well . Thinking of you both
Love
Jillx.
Hi Jill ,
Good luck for tomorrow ill be thinking of you, its good to be going with people you know from chemo, its nice to have some company when going for treatments and things. Sorry to hear your haveing a bit of a problem with your breast, i get stabbing pains sometimes also , it could be just a skin irritation like you say especially if its itchy, at least they will be able to take a look at it for you tomorrow, have you started useing any cream yet? if so it could possibly be a reaction to that .
all the best for tomorrow and pleases let me know how it gos.
Lots of Love
Lindiloo x
Hi Lindiloo,
Thanks for wishing me Luck, I have not used anything yet as regards cream. Probably something and nothing. at least I am going tomorow so see what they say, I am not worried about it just irritating that it has started now and hope it wont delay the marking. Will let you know how it goes Lindiloo. Hope you are feeling OK and the little white pill is being kind to you.
Lots of Love
Jill
Hi Girls
Good luck for today Jill - sure you will be ok - I started using aqueous cream weeks ago as soon as I knew I would be getting rads, before that was using bio oil. Also sometimes get a stabbing kind of pain - its possibly the nerves coming back??
Had my 2nd session yesterday - too early to say if theres gonna be any probs but so far so good. Away to gym then into town shopping before rads then dad coming round for tea.
Let us know how you’ve got on Jill
Love and hugs to you both
Fiona
xx
Hi Fiona,
Thanks for the good luck wishes, The redness has calmed a bit this morning, and the itching not as bad. Enjoy your shopping. Hope your Dad is coping as best he can without your Mum, its a huge wrench when they have been together so long, and you will be hurting because he is. I lost my Dad a few years back and I felt lost as how to help my Mum. Love to you and your Dad Fiona and hope you have a lovely tea together. Let you know later how I got on and fingers crossed for you no side effects.
Lots Of Love
Jillxx
Hi Jill
Thanks for the love for me and dad - much appreciated. We had a fine tea and hes now away home to go over to his local for a pint - he stays the other side of town from me - about a 20 min drive so he didnt stay late.
Bought jeans and a t shirt but have to gonna take jeans back as they are just a tad too short - will get regular length and hope they are not too long!!
Dad and I are now planning going bowling a week on Saturday with my daughter and niece so that’ll be good. He is doing quite well considering (at least I think he is!!)
Take care - how did it go?
Fiona
xx
hi Jill,
Hope your ok ,how did it go today? Glad to hear the redness and itching has subsided a bit hope all is well.Did you get your start dates for rads yet ,im still waiting urghhhhhhhh will ring them friday if i still havent heard.
Hi fiona,
Im glad you had a nice tea with your dad and that you are ok .How are the rads going? hope all is well .
Take care both of you
Love Lindiloo xx
Hi Fiona and Lindiloo,
Well I am marked up, all went well. I have a infection in my breast, oncologist said it was unusual so long after op but said it can sometimes happen when chemo finishes, so hammering it with strong antibiotics and taken a blood test. I am having 20 rads starting on 27th February, I am 50 on 25th so glad it is after then, least I can celebrate.
Fiona Glad you had a good time with your Dad, bad luck about jeans. I used to be same, always too long was my problem until my freind introduced me to a thing called HEM IT, dirt cheap in any haberdash store, and so easy it just irons on and stays put, so would be worth a try if they are too long when you get them. Nice to give tips on something other than chemo!!
Lindiloo.How you doing? Hope you are OK I have my prescription now for Tamoxifen, will start taking it next week, if all goes ok with the infection. Like you told me the hardest thing about today was keeping still, why do you always get an itch when you cant move!!! Got through it anyway, tattoo in a rather prominent place but what the heck!
Take Care girls and speak tomorow.
Love and hugs to you both
Jillx