Hi all
Has anyone been told they had muscular pain only to find it was mets.
Still have a lot of pain in my front thigh which feels muscular but also another pain underneath if you know what i mean which feels different
I am off for an xray but not hopeful it will find anything.
Can anyone help?
Thanks
jackie
xx
Dear Jackie
Sorry but my post is not going to be reassuring - I was told for nine months I had muscular pains in my hips and spine and was recently diagnosed with bone mets - now having chemo and zometa for the bone pains. I hope your x ray doesn’t show anything but it is essential you keep grabbing the medics attention and making sure they give you the scans to find out what is going on.
Best Wishes
Alison
Thank you alison
Did you pain come and go in intensity, i always feel it now but to varying degrees.
Sorry to keep asking need to be prepared to ask for more tests.
thanks
jackie
x
HI Jackie
The pains in my hip kept coming and going but the ones in my spine seemed to ‘move around’ but were fairly constantly there. I think the fact they moved made both me and the docs think I kept ‘pulling’ something and so I was dealt with as having a possible spinal injury - it was the MRI that discovered the mets in my spine. It is amazing how, even when you have had BC, the defence mechanisms we have still stop us thinking what could be really happening! Pains are improving now I am having treatment so that’s one good thing.
good luck and let me know how you get on
Alison x
Hi
good news today , i went to an arranged appointment with the tact 2 trial team and just mentioned my concerns about my leg/hip etc. I said my doc had ordered an xray which is tommorrow and he there and then rang up for a bone scan and im going next weds.
Im relieved as i know that should show up anything to be concerned about.
Jackie
x
Hi Jackie, just wondering if you have to take painkillers? I have had similar symptoms off and on for the last 3 years, had bone scans and x-rays and it’s been put down to sciatica!
Good luck
Tina x
Hi Jackie - that’s great as always better to know than have to worry about it! Fingers crossed it is sciatica!
Alison x
Jackie
thats good, because an X ray only shows up really large problems, I think alot of my bone mets would not show on X ray - you need a scan to be sure and now you will be, god forbid it is anyhting but if it is- its better to get treatment and it probably is sciatica which i had and is really painful and nothing to do with bone mets!!!
Cathy
Hi Jackie
Before I was dx with bone mets I had lots of niggly pains in my back also to my rib had an Xray which didn’t show anything finally had bone scan few months later which then confirmed bone mets to spine pelvis and rib. I also am suffering with sciatica at the moment and its painful.
Hope all goes well with your scan.
Beli x
Thanks for all the replies
Probably find im better overnight now ive finally got something done about it
In answer to the question no i dont take painkillers as the preferred painkiller i find helps i cant take as i am on warfarin
Pain is more ooh than screaming out
bye for now
jackie
x
Good Luck Jackie.
I have just read this thread and your other one on the same subject.
I hope that things turn out OK. It took over 6 months for my back pain to be diagnosed as bone 2ndaries, and I was in so much pain.
This last week I have had a lot of new pain at the top of my thigh, and it has interfered with my sleep. The tramadol that I take has not touched it, so I am hoping that it is not a new tumour site. I am going to go for a gentle swim tomorrow , actually probably more of a float!
Will check back in a few days to see how you are doing.
Best wishes,
Penny
Hello ladies
I am just wondering whether those of you with bone mets had a bone scan which was clear at the original dx or at anytime before bone mets were diagnosed?
This disease is a real b… at times isn’t it
Good luck you all
xx
Hi Peacock
No, I didnt have a scan at the orginal dx, bone mets diagnosed after 2years. I was on Herceptin for a year, I started having problems with my knee a month after finishing Herceptin but it was 6 months later when I was diagnosed with bone mets (spine, top of leg and hip). I often wonder was it there from the start.
Best wishes
Sue
Hi Peacock, I had several “clear” bone scans before my bone mets were diagnosed following a dodgy scan.
Deirdre
Hi Peacock
Yes I had one clear scan at diagnosis and one two years later (when I had rib pains )and then bone mets diagnosed 18 months after that. A clear scan only gives you a shot of what they can see on that day - perfectly possible to have clear ones and then later mets…i still don’t have bone mets in ribs!
Cathy
My secondaries found at original dx nearly 2 years ago. Bone scan was clear but CT scan showed these “hotspots” on ribs, right hip and 3 spots on spine.
God that’s really scary that you can get clear scans but then go on to have mets. How about node involvement? Anyone with clear nodes, as well as clear bone scan?
I am just really asking because after a clear lung, liver and bone scan at time of dx and then just having had 6 chemos, a mx and full clearance which were all clear what are the odds that I can still go on to develop mets. It really is quite scary.
Just shows how awful this BC is and unpredictable too.
Yes, there are women with clear nodes who go on to develop mets - there was athread about this a while ago, I had clear nodes and have fallen on wrong sides of stats.there is always someone…there were other women who are currently posting on this site,
Really the whole thing is you only know the stats for a group of women- you dont know what your particular situation is until the years unfold…but you have to get on with life and enjoy things, one of the few consolations for me in this awful business is I made absolutely the most of the disease free time and had a great time with OH and son over last few years…
for peacock
All a scan does is tell you whether mets are present at that moment in time. A scan will usually only show mets bigger than about 1 cm I think. Being ‘clear’ today’ is not a guarantee for a months’ time, let alone several years ahead…that is why most hospitals don’t do routine scans as follow up, but scan only when people have symptoms.
Stastitical chances of recurrence depend upon a range of factors such as grade of cancer, er pr and her2 status, size of tumour, whether node involvement or not, whether vascular invasion or not. Some kinds of breast cancer are more likely to recur but sometimes people with poor prognosis are fine and people with good prognosis may get rceurrence. Yes breast cancer is scarely unpredictable.
Jane
hi
had xray results which came back as clear
bone scan on weds
should i be happy xray clear . Did anyone have clear xray but not bone scan
thanks
jackie
x