Hello benno
As promised …just dipping in to see how things are for you.
I can see from your posts that you are tough and strong so give the c …some welly !!
Hugs xx
Hi my lovely ,well a few days of just sleeping and resting I had my sentinel node biopsy operation Wednesday and I go back next Wednesday for results and also to see oncologist to see about start date of chemo … I was told from breast nurse I will lose my hair ???twhich I broke down and cried , after a few minutes I wiped my tears away and put my determined head on and took on board everything they were telling me … I’m getting there I’ve 2 wedding to look forward to …so next Wednesday I’m hoping will be the news I want to hear and it’s not in my nodes ,scans as in mri and ct say not but they have to double check don’t they ,hope your keeping well Lv hugs ???
Fingers crossed all results are good for next Wednesday…they’re certainly being very through .
If u feel sad at the hair loss …may be try the cold cap ? Lots of ladies here have been very pleased with keeping a lot of their hair. But it will b winter time and its easier to wear a wig or knitted hat in the cold weather.
Hugs xxx
Thanks sue il look at this thread after next week if that’s ok …still little sore but climbing my ladder hope your keeping well /busy ???xx
Hi Joan. Sorry for jumping into the thread but I’m wondering how long ago your misbehaving cells went off for oncotype test? I had my initial WLE and SNB 4 weeks ago and further op 2 weeks ago to get a better margin, as lump much bigger than expected. My plan has gone from WLE, radiotherapy and tablets to eligibility for Oncotype test and possibly chemo. Here they won’t send off for the test until after meeting with an oncologist, which I’m not doing till 2 Sept. They’ve said it takes 2 weeks for results to come back? Sorry a bit of a ramble … X
Thanks so much Joan for getting back to me so quickly. I first heard of the Oncotype a couple of years ago, pre NHS funding. My best friend (same pathology) paid for the test. She’d already bought a wig and then had a score under 18, so no chemo - I’m hoping the same here. I do want the test and in my head I think it must be 3 rather than 2 weeks, as I assume all our local trusts must use the same lab in the States.
I’m like you and will be ok once I know what’s happening, I’m just rubbish at limbo. I hope your results are low too and do let me know. I think I know what I will decide if in the grey area score, but …
Well that was a bit of a shock! I honestly thought my oncotype results would be low to mid but have actually come back high at 78 which means that I will definitely be starting chemo. I am having a Portocath fitted tomorrow with the first of six rounds of FEC-T commencing next Wednesday. The goods news is that the herceptin results are definitely negative so I will not need herceptin treatment as well. Not the news that I expected but in a way now that I have a treatment plan in place I feel more reassured as I actually feel that I can now start to kick a**e to this BC.
Has anyone else had high readings on their oncotype tests?
Sue can you let me have the link to the September starters once you have set it up please as it will be good to share experiences with others going through treatment at the same time as me - thanks.
Thinking of all you ladies waiting to get your results as I know how difficult it is. Let’s all do this together xx
Joan that must have been a huge shock. Wishing you all the very best for when chemo starts and that you kick a*** big style. BC really is the gift that keeps on giving. Hugs xx
Morning ladies ,
Well yesterday came and went with news that perhaps I didn’t want to hear . biospy came back that there was traces of cells in my sentinol node and they would take this out when they operate ? all new words came flying at me sue about the operation that perhaps you can help me with . I’m aware of the chemo they are giving which is 3x fec-t chemo ,on third bout they will see if it’s doing as it should by shrinking the little devil once mri has been done on 3rd bout they’ll decide what next action is , as in operation , which they are looking at lumpectomy .
Im taking on board whats ahead for me , I’ve declined the Cold cap treatment and decided to shave my hair off after 2nd bout ??this upsets immensely but I’m a tough cookie as all us ladies are .
From day one I’ve told them that we have our annual trip to oz as my family live out there ,booked for 28th dec ,they have said yes no problem don’t cancel you should be ok by then ???no sadly that’s not the case the oncologist thinks it’s advisable to purspone my trip because with this as we all know tthings don’t always go the way you like it to and he said I want you 100% before you take a big trip like that . Little tear appeared again but he’s right I’m in his care and yes I can go any other time so I’m focusing on perhaps feb next year when my little blip or hindrance that’s in my way is sorted .
Im back to my second home this afternoon to meet my chemo team and collect loads more information that I try so hard to take in .
Little upset set today (is that allowed ) as reality about everythink what I’m dealing with, treatment and so on has kicked in .7 weeks since my diagnoses and here I am . Tomorrow il be my normal bonkers benno again smiling because that’s me ???
Thanks Sue for your reasurring words and yes I have found the forum thanks and I am sure that I will find it most helpful 
Good luck Janey with your test results and fingers crossed that you have a low score. We will def kick a**e and onwards and upwards to all us ladies xx
Hi Benno
Huge hug from me. It must be so challenging. I shall respond in more depth later today, when I am home again.
Just want you to know all will be ok - we are here for you.
Huge warm hug
Sue xx
Hello benno
Just dipping on again to wish you all the best today . You are so lucky to have Sue to give you such excellent advice which will helpful.
I’m as much help as a chocolate fire place as my primary treatment was twelve years ago and its all changed ( for the better)
I can send u some hugs though .
Xxxx
How are things going now Amanda?
huggy thoughtsxx
Moijanx
Hello Amanda, I’ve been thinking about you and hope that the side effects have not been too harsh. Keep smiling and keep climbing that ladder xx
Hi ladies well Friday came and the nasty Stough pumped into me knowing that it will get me better …felt OK for about 5 hours and then wham sick as dog continuously through the night to the point I jotted my times I was sick and my temp and rang rapid response … They were brilliant told me it was normal and to take the anti sickness pills they’d procribe me …nausea sucks it really does but I’m dealing with it …injections tomorrow for the next 5days this will build my white cells up hopefully il start feeling a little normal for a week and then back I go for second session …just want this get to my top of my ladder and yes il keep smiling as well because that’s me …hope your all well ??
Hello Amanda
Just dipping in again …Glad u got the first chemo under your belt …horrible with the sickness though. I got all the way through to number nine before I got sick …then it went on for 36 hours ! Back in 2004 there were not so many good anti sickness pills!!
Drink loads of water to flush it and to keep hydrated.
Will b here with you for your journey if you want me to.
Hugs xxx:relaxed:
Yes drinking loads Carolyn in with red colour out with the red ?? I get inspired even more that like yourself you’ve Beaton the bugger 12years down the line and thanks for your support these forums are a source of help and advice …as much of support I’ve here at home all you ladies are amazing and no one judges us when we rant and rave cry and laugh on here …il be with you all the way on this journey laughing and crying …today I’m icky so none of either but end of this week il be laughing ???
Yes Amanda …life has dealt us a duff card but you know it makes us better people …we learn to enjoy life more and stop and smell the roses.
Normally secondary ladies like myself don’t gatecrash here but sometimes it’s good to hear from us.
From 2004 when I finished op, chemo and rads …I went back to work full time , became a granny three times and enjoyed hols etc. Never actually visited my gp for eleven years until I got a bit of hip pain last year.
So you can do this and just think in about 6/8 months treatment should be finished.
Carolyn xx:relaxed:
That’s amazing Carolyn … Yes my nurse said Amanda this will be over before you blink a eye …it goes so fast 8 cycles 7to go not that I’m counting lol …xxxx
Drinking loads sue is eating loads of greans helping me …not planning much this cycle as I want to know what I’m dealing with I’m being sensible and not attending a wedding on Friday as that will be my day 7 and I believe if I’m thinking right will be lowest is that right sue ? Dar’nt risk being round poorly colds etc if you understand …xxx