Yes, good luck truffle xx
Moijan???
Hello Marnster and Truffle
You are both pretty big stars on this website. Am thinking we should start a concrete square just to record BCC stars like they do in LA for film stars! Certainly if we had one, an imprint of your shining stars would be made TODAY. ! 
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Marnster, very good luck for your surgery- could you try and call the surgeon and chat before Thursday? Or maybe you are having more tests? Just thought that might give you a bit of time to understand and digest xx
however, if he has said he will operate, my guess is he thinks it’s a worthwhile endeavour as they don’t operate if they think there’s not much they can do Xx
Very very good wishes for both Thursday and esp Fridayxx
truffle - yes Cape is a good drug and very. Very best wishes for your treatment.xx
Would like to hear more about the special potion referred to, sounds promising xx
Babsy, I have long suspected Eribulin too
Crosses the blood brain barrier, so hoping that is encouraging for people.
Lots I’ve love to all - am hobbling around with a painful toe now as bumped it yesterday- am ok tho.
Moijan???
Hi Lovely ladies,
sorry ive been absent for so long, but genuinely never forgotten you all…just catching up on all of the ongoing challneges that each of are facing with such tenacity and courage, much love to you all. I amnot sure whether or not this may be useful or indeed applicable to any of you but wanted to share so you might see if its relevant for you. After neurosurgery, WBR my mum is now on the CIPHER trial, this is a phase 2 trial for brain mets that cannot be treated with surgery or stereotactic surgery. Its a chemotherapy which seems to have some efficacy crossing the BBB. The drug is called cabazataxol samefamily as docataxel. Mymum is tolerating it well , following a dose reduction after her first cycle when she ended up in hospital. As my mum also has mets to liver and lungs, there is also evidence that this drug also treats elsewhere. Always reassuring I think to have further possibilities. Much love to you all xx Mum is coming up for her 4th cycle and so far brain met is stable (although this could be WBR) xx
Marnster
Lovely blog …enjoyed reading it …sending special hugs across the water from UK and will be thinking of you Friday
Hugs xxxx
Hello babsy
That’s good news about tykerb …I must confess I had to Google it as haven’t heard of it before …it’s obviously a clinical trial in the UK?
Hello truffle shuffle
Sending hugs and hope you are feeling a bit better .
Hugs xxx
I AM CANCER FREE. I WENT TO THE HOSPITAL TODAY MY BLOODS ARE PERFECTLY NORMSL. MY EYES ARE HEALING AS I SPEAK CANT WAIT HA HA. TYKJERB WILL BE AVAILABLE FOR ALL MBC PATIENTS FROM NEXT FRIDAY.
THERE WILL BE FREE INTEGRATED CANCER CLINCS WORLDWIDE. THE TEAM IS SET UP SLREADY
WATCH THE NEWS ON THURSDAY 11 AUGUST YOU WILL UNDERSTAND
ALL MY POOR FAMILY THINKS THAT I HAVE TEMPORARY BRAIN DAMAGE MY HEART GOES OUT TO THEM LUCKILY I AM THE BEST ACTRESS IN THE UNIVERSE
LOVE PEACE AND HARMONY IS ALL YOU NEED, ITS ALL YOU NEED
Sorry folks the lovely Dexamethasone was making me hallucinate! Good while it lasted. They’ve cut my dose down ?My bloods were well within the normal range but I had a blood transfusion 7 weeks ago so apparantly
expected at those levels. When I go next next Wednesday to have another one they will see what is happening .
i am also having a bioposy done on one of my lymph nodes to check my HER status as I ha e read SO many times that it can change. The locum onc did suggest at the beginning and I have asked for it to be done on two other occasions. They are doing one. Unfortunately this has been my experience that I have to be forceful and I let this slip.
I will keep you posted
Great news Marnster!
So very glad to hear from you.
Just relax and recover a bit now xx
No climbing the Sydney Harbour Bridge
Moijanxx??
MARVELLOUS NEWS
live gonevfrom being given three months to live to NO EVIDENCE OF DISEASE ???
And I know how exactly why. My life’s mission is to ensure that everybody in the UK has integrative oncology service. They have to be done together. Won’t o
alwsys save lives but will extend e.g. Patrick Swazye
So happy for you
Hi
lovely Babsy!
xxx
Marnster
Loving your blog …you are one tough cookie to face all the brain zapping …hope u can keep travelling and enjoying life to the full.
Hugs xxx
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Wow you ladies are so brave and positive Big hugs and enormous respect xx
hello
Am new to the forum and so not veryfamiliar with it and dont understand all the abbreviations yet. Have secondary breast cancer of liver and recently diagnosed with brain mets and in pituitary. Starting radiotherapy on 11th sept. Any advice welcomed . There is so much information out there. Its daunting. As have 3 children under six yrs dont have a lot of time to go online
Hello Kathya,
Welcome to this forum. Sorry you find yourself here but feel free to open upif/as much as you like. Not sure if you’rev having WBR or stereotactic but good luck with treatment on 11th Sept. I had stereotactic (Cyberknife) in Nov 2015 on my brain mets and it’s been successful so far as no further progression since (am also on chemo so that may have helped). Have spoken to ladies who’ve had WBR too and they’re doing well. Please rest lots while on treatment and keep us posted.
Marnster, hope your double vision is sorted soon. Checked out your blog… a good read, really well out together. Have been keeping a journal over the last couple of years in the hope of starting my own. Have to teach myself how to create a website first.
Truffle, glad to hear your walking is better. All the best for physio.
Had a lovely spa weekend away which I seriously needed. Still feeling extremely fatigued and my balance will always be an issue but I definitely feel more relaxed after being pampered!
Wishing all you ladies well. Take care until…
Lissa ?? xxx
Hi TRuffle, Katya, Marnster and Lissa xx
so good to hear from You Truffle. i agree with Marnsters feeling that once the swelling goes down things might improve…and its really heartening to hear that you are still coming on to see the posts.
I think you ‘bunch’ of ladies are complete Stars. 
? The way you all plod on with your treatment and share with us on here. Lissa, nice to hear from you too…you have weathered a few storms along the way too.
Marnster…when Carolina started this thread…I scoured the web and BCC. To just find someone who had been through this scenario before to maybe help her…with very little result. Now we have your blog to refer people to and a nice friendly thread which gets visits from all sorts of people…not just Brain mets.
Truffle…am sure Carolyn will be popping in to see how well your chocs are doing…she is the expert on Chocotherapy xx
chat soon, love, Moijanxx
Hello ladies
Moijan has just texted me …it seems I’m an expert on chocotherapy ( love that term Moijan ) anyway I haven’t eaten any for quite some days …but today bought Cadbury flakes …what’s happened to them ? They don’t taste like they used to and they are soooo small …I had to eat all 4 !!
Ladies …just been reading your posts and I salute the way you are all coping …marnster love your blog too !!
Hugs all ???
I’m getting a bad reputation here for my chocolate habit arnt I?
I have been so good …just have my daily magnum at 3 pm! ! Ha ha …no more flakes for me …wasent worth the energy of opening the wrappers !!
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