Carolyn, I’m sure nothing bad will come out of Chocotherapy. I’m tempted!
???
Hi nicky
Cadbury were bought by a US company and a lot of the ingredients have been changed …a box of milk tray is now tasteless too …the only ones I find the same is twirls. .they seem yummy still.
What a lovely job as a chocolate taster but I would have to go gym everyday, run for 10 miles and do Zumba twice a day to keep the weight off !!
The magnum habit will be changed so something else soon now with winter coming.
???
Yes Nicky and Carolyn…I too was addicted to flakes,havent had one lately…oh dear what a shame if they are now tasteless!
Nicky, I love the Brainy Ladies reference…very affectionate and actually…they are all stars, every onexx
much love, Brainy Ladies…try Chocotherapy…better than sex apparently!
Mx
Marnster
Loving your blog …look forward to reading it and your adventures too .
Keep doing all your bucket list xxxxx
Hi Truffle.
Just checking to see how you’re doing? Sorry to hear about the clots. Hopefully the fragmin will sort them out. Thinking of you. ?
Marnster, lovely photograph. I continue to keep up with the blog.
I’m singing a little more… making the most of a short break from chemo because my BP is too high. Hope the new BP meds can help to reduce it so I can get back on treatment soon as possible.
Hope everybody is doing well.
Take care, Lissa ?? xxx
Well I’ve come to the end of the treatment road. Oncologist has said there is one last chemo but she feels that it would kill me so I’m going to take her advice and not do it. Just got to try and get my positivity back. Going to a conference in Birmingham at the weekend, I can do it, lots of Hayhouse authors, including Anita Moorjani, so I know I will come out on Sunday feeling much more positive. I bought two tickets but my husband says he’ll take me there everyday but won’t come in. If anyone wants spare ticket its available. Look up on internet.
Barbara xx
Hello Babsy.
I’m also saddened to hear this news from your oncologist. How are you feeling after the conference with Anita Moorjani & other speakers? Please let us know how you’re doing. Am keeping hope & thinking of you lots! ?
Nicky, thank you so much. Will be seeing the cardiologist soon. Looks like I’ll be on BP meds permanently from now on too. Small price to pay, I really have nothing to complain about.
Peace & much love to everyone. ???
Babsy -what a shock for you, I’m sorry to hear that. Perhaps some alternative medicine treatment might help? I know you do dip into that field - hopefully xx
Nicky -interesting about the bp - mine has been far too low at times since becoming a spongebob - can I ask you - have you ever had a Whole Body MRI ? It’s an extra supadupa MRI which uses ‘bells and whistles’ to produce 3D pictures - my fear is it will throw up a long shopping list of things to investigate!
Are you going on the Fulvestrant ? Anyway lovely to hear from u xx
M
Funnily enough my blood pressure has normalised. I have it taken once a week so I’ve come off my blood pressure medication, as it wasn’t serving any useful,purpose. Didn’t get to conference ?The hospice had changed my pain meds to morphine (druggy now) but the dose was completely wrong so I collapsed in agony on Friday and my hubby had to call emergency ambulance. Didn’t get taken into hospital, no point, but did have contact with a different palliative nurse at the hospice who advised me to go back onto co- codemal as they worked. At least last time when I had that kind of pain I produced a baby!!! Also I’m starting to get into a better routine as we are mainly living down the caravan. Taking a tiny bit of a certain magic ingredient that has had a brilliant effect on the pain, appetite and energy levels. Only three days in, so it’s true what they say. Thoroughly recommend.
With the conference I will get written transcripts and electronic versions though not quite the same as being there. I will share the best stuff when they come through.
Im not particularly bothered now about treatment stopping as you said Moijan I’ve done it once before so it’s possible again.
Sorry to hear all of the people struggling, sending you hugs and kisses xxx
Hello truffle shuffle
Lovely to hear from you …hope everything works out ok but please keep in touch …
Sending hugs xxxx
Hope everything went well truffle shuffles. I’m on holiday at the mo staying in Sovereign gatehouse in the grounds of Osborn House on Isle of Wight. Vicky invited me down for a long weekend. My dear hubby has realised that he’s only brought down one pair of trousers which are now in washing machine!!! Then when they are dry it’s shopping time. Always a silver lining.
Think they’ve got the pain killer solution under control. Waking up with no pain is a miracle and for joints to work properly so I can walk around is great. I still have NO strength in my arms. Any ideas?
Hello Everyone,
just want to share this news about some advice being given to patients with brain tumours at St Thomas’s Hospital It comes from the Cancer Active website and there are loads more articles to explore if you fancy looking.
i think below is well worth checking out. Actually sugar is really bad for ALL of us cancer patients, but this particular bit of news seems to help people with brain tumours etc…so check it out yourselves.Hugsxx,
Moijan ???
canceractive.com/cancer-active-page-link.aspx?n=3759
Oncologists at St. Thomas’ Hospital, London currently use ‘The Atkins Diet’ with patients who have brain tumours and are claiming much improved survival times. Oh, you remember the Atkins Diet, surely? It’s the one where you eat no carbs. Meanwhile, research has shown metformin improves the effectiveness of Temozolomide, the brain tumour drug (/cancer-active-page-link.aspx?n=3752); as does berberine in other research studies. The brain is particularly susceptible to glucose – See ‘Gliomas are driven by glycolysis – S. Oudard, E. Boilier et al; Anticancer Research 17; pg. 1903-1911’.
Hi everyone,?
how is everybody? Lissa, no hear for a while,… how are you Truffle? Babsy, any change?
hope everyone is doing ok…love and best wishes,
Moijanxx
Hello ladies.
Moijan, thanks for checking on me. How are you doing?
Babsy, love that you’ve booked your cruise, sounds wonderful. Me super jealous too! Sorry about the dehydration. Can the GP suggest anything for you? Must be something they can do without you having to continuously fill your guts with water. Frustrating.
Truffle, glad to hear your vision is improving - even if it’s at the omission of a glass of wine. Also so encouraged that there’s been shrinkage. Wonderful news!
Hope everyone is doing well as can be. Has anybody heard from Marnster? Wishing her well.
You ladies always manage to give me hope.
Lissa ?? xxx
Lissa again,
Apologies, I’ve been absent for a while. Struggling with my BP which has finally come down after trying myriad meds. Was looking back to getting on chemo as have been off it for so long. Then my shoulder and arm pain increased a lot and began making me breathless. GP thought it was a problem with a tendon and was sending me for an ultrasound.
Unfortunately, my last PET/CT revealed I have another met on my brain! ? Had an MRI to get complete picture of exactly what my brain’s doing. Am still NED from the neck down but the cancer seems to like my brain, grrrrrrr! Disappointment, shock & many, many tears followed. Almost feel angry that I dared to think I was doing so well. Oncologist assures me there are many options so it’s not the worst news. Whatever happens, I’ll be having either more stereotactic or whole brain radiotherapy. Definitely no chemo until after the brain’s been treated. Wasn’t expecting to have further update from onco team until later this week but got a call Friday saying I’ve an appointment with the neurosurgeon TODAY!!! Am to take an overnight bag in case they want me to stay in. Apparently, all will be made clear when I go in. Am glad for their speed of action but apprehensive too.
Anyway, sorry to put a downer on the thread but your stories have been a great source of encouragement. Honestly, I’d much prefer give you ladies uplifting news.
Off to hospital I go. What I’ll find out, nobody knows…
Much love ???
Me again,
Apologies, I’ve been absent for a while. Struggling with my BP which has finally come down after trying myriad meds. Was looking back to getting on chemo as have been off it for so long. Then my shoulder and arm pain increased a lot and began making me breathless. GP thought it was a problem with a tendon and was sending me for an ultrasound.
Unfortunately, my last PET/CT revealed I have another met on my brain! ? Had an MRI to get complete picture of exactly what my brain’s doing. Am still NED from the neck down but the cancer seems to like my brain, grrrrrrr! Disappointment, shock & many, many tears followed. Almost feel angry that I dared to think I was doing so well. Oncologist assures me there are many options so it’s not the worst news. Whatever happens, I’ll be having either more stereotactic or whole brain radiotherapy. Definitely no chemo until after the brain’s been treated. Wasn’t expecting to have further update from onco team until later this week but got a call Friday saying I’ve an appointment with the neurosurgeon TODAY!!! Am to take an overnight bag in case they want me to stay in. Apparently, all will be made clear when I go in. Am glad for their speed of action but apprehensive too.
Anyway, sorry to put a downer on the thread but your stories have been a great source of encouragement. Honestly, I’d much prefer give you ladies uplifting news.
Off to hospital I go. What I’ll find out, nobody knows…
Much love ???
Have tried to post this about 4 times without success. Don’t know why. Oh well…
Great you got in touch…we have been looking…sorry about your news…have pm.d youxxx
Thanks Babsy,
And thank you for the link. Very kind of you. ? Will take a look. Am doing my best to stay focused and I’m feeling optimistic (still terrified though). Thank goodness, the MRI found only that one tumour - approx 3cm behind the left ear but close to the surface which means they can operate. The steroids are thumping my digestive system right now and I can‘t speak properly but that’s a small price to pay in these circumstances. Op scheduled for Friday so trying to rest. Will concentrate on my jazz and songwriting while I recover… see what nonsense I can put together, haha! ?
Will update you when I’m able.
Stay well as can be everyone and keep being lovely as you are. You’re all always in my thoughts.
Much love ?? xxx
Thank you bonariesis (please forgive my spelling) & everybody. Out of surgery, eating, went well & will rest soon. Still having trouble sleeping at a decent hour through the night, haha! ?
Some head pain but they’re managing it. Feel fortunately. Your support has been boundless… clearly I need to trust more. ALWAYS HOPE! Making no expectations but will take it one day at a time.
Thank you, thank you, thank you… you ladies are truly powerful! ?
Boundless love ?? xxx
Sending gentle hugs and thoughts to you .
Xxxx???