I was diagnosed with DCIS and Paget’s disease. I have to have a mastectomy and sentinel nodes removed. I am extremely nervous as the cancer cells are aggressive and the area is quite large 9cm by 8 cm by 7 cm. I understand that I will not know if it is invasive until after the pathology comes back after the mastectomy.
Just wanted to reply so you’re not alone. In most cases they give information after the initial biopsies but technically, until they have all the information after the mastectomy/lumpectomy you won’t have the full picture.
When are you due the op? What have you been told so far? It’s all sooo sooo hard but when you have the whole picture and have a treatment plan in place, you will feel better.
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Welcome to the forum @loriu
I’m so sorry that you find yourself here but also glad that you have reached out. How are you getting on?
We have some information on Paget’s disease on our website that you may find useful. Please know our breast care nurses are here to chat things through - here on the forum on the Ask our Nurses your questions or over the phone 0808 800 6000.
Sending our warmest,
Lucy
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