Hey ladies sorry to promo this again, check out my newspaper article, google the ballymena times and then click on news, the headline is awful, calls me brave which I am far from.
also check out ballymenarelayforlife in the uk for more details on our event.
I am proud of the piece I was sooo worried I’d come across wrong but I think Elinor has done a great job.
TTYL
Lisa
xoxo
HI All
Had my first FEC yesterday and apart from feeling sick I have been ok although I do have a banging headache which I can’t seem to shift. I was given 2 anit sickness drugs and had to take the second lot once but on the whole can’t complain. I am hoping I can hold out having a PICC line as my veins are not too good but hopefully will be ok. Early days yet I will see how I am in a couple of days. came home with anti sickness pills and another lot if they are not working, mouth wash, pill and gloop for constipation, steroids and stomach pills to counteract the steroids. Anyone else??? I felt like I owned a chemist when I came out of the hosi still blood test next week, then again on the 7th next FEC on the 8th… ONE DOWN 5 TO GO!!!
Good luck everyone and just hang on to the fact that everyone is different and you may not get all the side affects with a bit of luck,
Love Debs x
oooo this does not sound like fun to me.
I’m starting to dread it already and I dont see onc till next week
Bridie
Hi ladeis
glad that most of you are getting through chemo ok…
i’m counting the days down till i start my first tac… when i think about it i get a pannic on…
i met my chemo nurse on tuesday …they seemed very nice had a good chat with her …
and also had my bone scan results back today well my bcn phoned me and told me the good news …all clear thank god as that is a massive weight of my mind.
iv been to town today and done some shop theraphy …new clothes lol…
well ladies chat soon
take care lv sal
x
Hi Sal,
Glad the bone scan went well and that you are spending loads before the chemo starts.
I am now counting down the days too, 7 a ha ha ha ha ha ha (Sesame Street count style)
Love and hugs
Lisa
xoxo
Morning all,
Not been on for a few days - child care etc.
I’m having a few ‘first time nerves’ now - was up at 5am today as I was worried about missing the steroids… it’s just the not knowing how it’s going to be, and most people say its horrible. Still, only a phase in our lives…
Been reflecting on my life, wondering if I’ve made the most of it, if there’s anything I regret… there are times that have been really bad in my life, but i’ve thought that although it was crap at the time, it all adds to the person I am today, and today (even waking full of anxiety at 5am!) I am very very happy with my lot, and I wouldn’t be in this situation if some of the bigger sh*t hadn’t happened…
Sal - are you doing TAC too??? as in taxotere Adriamycin & Cyclophosphamide???
Mine starts tomorrow…
Watch this space!!
Cleared out a drawer yesterday for scarves. Why I do not know as I’m really not a scarves person…
I’m going to but a ‘fringe’ from headcovers - an all the way round one for under hats & scarves. It’s only 34 so much much cheaper than a wig… ell, should be I suppose as it’s half a wig!!
Go to get kids to school… Live chat tonight??
td xx
Hi Lisa
Have you had your surgery yet???
Td x
good to hear scan clear. good luck with your 1st session
Good luck Td all goeas well.
Thinking of you both
love and hugs
Bridie
Hi Debs
Hope you are feeling a bit better today and shifted that headache. Hows the sickness going now? Just cant imagine what its like. I had to cancel my appt to have chemo today as I am still having trouble with wound but it is slowly getting better. Have had appt for chemo moved to next Thurs so fingers crossed! I want like you to just get this over with now. Like you say thats one down 5 to go now.
Take care
Claire x
Td …
hope all go’s well keep me posted on how you feel and coping???
iv been ok think i will get nervus next week when i know iv only got a week to go …
my scar has opened a little bit and crap leaking out… not infected but still getting on my nerves…
lisa keep us posted on how you ge on only 6 days now wooooooooooooooooooow…
hope your ok tho …
sal x
Hi all you ladies on this thread - before I start - what the hell is LOL???
I am seeing the onc next week - got such a great result this morning - of the 18 nodes that were taken out NONE of them were infected - although the 2 sentinel ones taken at the lumpectomy were both positive - is anyone else in this same situation? If so - what about the chemo ??? After reading all of your notes - it’s good to know that we are not alone - doesn’t make it any better like - but it is reassuring to know that the feelings you have are the same as mine!
Am in the lucky position (or not) of not having any little ones to look after - I think that would be an extra burden - I do have 2 daughters but they are grown up with kids of their own now - so it was ‘easier’ (if you equate ‘easier’ with our condition) telling them what the score was.
Am hoping to go on hol before the chemo starts - we booked 2 weeks for 16th July back in the ‘good old days’ before all of this lot started - I imagine the onc will suggest that we bring the dates forward - which is what we would like to do - have a bit of R&R before we start on the next leg of the ‘journey’
Take care all
Pam
xxxxxxxxxxx
Go Pam !! No nodes!!
LOL is lots of laughs. I had to ask my teenagers !!!
The thing with 3 year olds is that they no longer nap in the day…
Sal - check with bc nurse re leakage; if you have an infection or wound not healed they won’t start your chemo… so ring her!!
Lovely day here, Knackered, but have to make fairy cakes now…
Td xxx
I always thought LOL stood for ‘laughing out loud’ - some comment or thing to actually make you laugh out loud!
but - whatever brings that out in us is a good thing!
Hi ladies,
How aare you all? I was sick for 5 days after chemo,but feel great now. Having a glass of lovely South African red wine as I type.
Lisa- (Brave Lisa!) I read your article.Well done you!
Claire and Sally,I hope your wounds are healing.After my second op I thought my wounds would never feel better,but like the chemo sickness,I just woke up one day and felt ten times better than the day before.Hang on in there girls.I can even move my arm without any problems at all now,
Debs-How’s the headaches.I hopw they don’t last too long as that could be very wearing.
Pam-A holiday is the perfect pick-me-up.I went to Cyprus for a week before my first op and it was great for mind and body.I felt relaxed before I had to deal with all the crap.I went into hospital with a lovely tan which still hasn’t faded.Looking well makes me feel a little bit better as the BC isn’t obvious to folk I don’t want to know.
Counting down to No 2 chemo now!
which chemo are you having Trica
On Epi at the moment
I have been told I may be on that. Will find out wednesday.
Good luck chuck with the sickness
Bridie
Hey ladies,
So how’s it all going?
Tricia - glad you are feeling better hunny, I am having FEC on Wed, can’t believe it will be actually starting well fingers crossed as my MiL and uncle have summer colds, I will kill them if I get it and the chemo has to be delayed. That headline is so pants, I am no braver than anyone else I know. There are a lot far braver than me. But I thank you for the compliment I was pleased with the article but I have had absolutely no response from it or the radio show 
Pam - welcome, although not great that you are here under such pants circumstances. I have 3/10 nodes involved so I am sort of in the same boat as you. I start next week as I have already said but sure I’m just getting used to the chemo brain thing now LOL. LOL to me means laugh out loud. Or it could mean Lots of Love.
Funny story about that, in my last job I had to take samples of the stuff factories etc discharged to rivers. (I took polluters to court)
Anyway this one day I was sampling a quarry, the pipe was in a field. There were lots of sheep in the field, it was a huge field up the side of a hill.
When I walked into the field you could hear the thunder of their hooves as they all ran down the hill towards me, about 200 hundred of the things.
Anyway I had managed to fill the sample bottle before they arrived. But this big doll came round behind me and put her head down, I thought no bloody way is she going to butt my arse.
So I placed the bottom of my bucket on her head and kept her at arms length until I sidled out of the field.
I sent a male colleague a text telling him what had just happened, and he sent back LOL. I thought it meant lots of love and was horrified that he could love me. (defo no my type)
Anyway I asked another colleague and he said it meant Laugh out loud, talk about relief.
Rambling again.
Bridie are you nervous about Wed? I will be thinking about you when I am getting polluted with drugs.
Claire I hope they get that wound of yours sorted hunny, if it is next Thursday then we will only be a day apart.
How strange is it that we get so excited when ppl are doing the same things as us around the same time? I know it’s the support thing but others may think we are very mean.
Td - good luck for tomorrow, it is tomorrow isn’t it, otherwise I think I made a fubarr on another thread.
Sally - my wound under my arm opened 6 days after op, due to onc saying I could have a bath because he had just told me I needed chemo etc. I went to A&E and a surgeon put more steri strips on it. The next day I went to the pharmacist and got some of my own so my mum changed them for me when I needed them done.
Debs - how are you feeling today?
Hello to anyone else I have missed.
Take care
Lisa
xoxo
Morning all - leaving the house in about 15 mins so just to say feeling ok and drinking loads and fully equiped!!
bring it on!
td xxx
Go girl, thinking of you
Lisa
xoxo