Td …
hope all gos well thinking off you today …
bite the bullet hun you can do this
but let me know how you feel …
bye for now .
im off to the hospital today getting my scare checked been having district nurse out changing my dressing …its not infected hope it stays like that.
so i will see what my surgen says about it today ???
well ladies got to go hope every one is ok…#
and i thought it was laugh out load …or lots of love or lots of laughter take your pick lol…
salx
Hi All,
Am starting 6 x FEC a week today.
Am feeling a bit rubbish at the moment, but think that’s the Zoladex making me feel achy. Mentally on top of it all tho, have my chemo bag ready!!
Have been greatly helped by my Mum so far, she went through an unsucessful quadrantectomy and then a full mastectomy for DCIS 5 years ago so we were ok with the surgery. I’ve had to have my expander implant removed a week ago following a mastectomy (am 28 BTW).
The worst part for me is not being able to be the person I want to be right now, not having enough energy to see friends etc. And making the great leap into the unknown that is Chemo. But, have found all the tips etc very useful. Nice to know there are others going through the same things as me! And laughter is always the best medicine, so keep on smiling ladies!!
Has anyone else been offered the bone marrow boosting injections before the chemo starts? Called Pegfilgrastim?
Good luck to you all,
Liz xx
Hope all went well Td. My daughter used to write LOL on texts until a guy thought she was texting lots of love.
Babs
TD hope you are ok been thinking of you all day
SAL
Hi Ladies,
hope we are all well.
I hope everything went OK today Td you are in my thoughts, even if they are drunken ones oops.
Hi Liz welcome, sorry you are here but none the less feel free to let it all go.
Hiya bab.
Sal how’s you?
How is everyone else doing?
Loads of Love or LOL
Lisa
xoxo
Lisa,
I’m following you all over the threads and keep missing you.Is this a new game?
Tricia
Hello Everyone
I know some of you (hi Lisa, Mary Sal, Td!) from a “newly diagnosed” thread, and now I have my onc appointment (next Tuesday 24th) feel I can join this one! I think I will be starting chemo in a couple of weeks so will read with interest how some of you ladies that have already started are getting on. I haven’t ventured into the “tips for chemo” yet as I don’t know exactly what I will be having but am poised ready to go and buy some stuff and get prepared! I am feeling quite apprehensive about it and I think its the not knowing how it will affect you as an individual thats the hard bit. With surgery there are some quite common things to watch out for (cording etc) but with this although some of the side effects seems to be pretty common, not everyone seems to get everything! Oh well it all adds to the spice of life doesn’t it, wouldn’t it be terribly boring if we all knew exactly what we were in for? (no). Thats me trying to be positive, but failing miserably!
On a positive note (see I told you I was trying) I have got my proper prosthesis now, which is a million times better than the horrid softie thing so feel much better. With clothes on I actually look quite normal (well as normal as I am ever going to) although everyone said I did with the softie thing so I suppose its just me.
Anyway, good luck to those of you who are about to embark on the chemo thing, as I say I will follow you with interest and report back after next week.
Love to you all Helen xxx
By the way, forgot to say Lisa I read the article and thought it was great! And as everyone else has said, accept the “brave” accolade and be proud of what you are achieving. For you its probably normal but believe me there are lots of people who spend all their time thinking only of themselves even when well, so it is rather wonderful that you are still thinking of others even now. Well done you, and if I was a bit nearer I would come and take part!
It was also nice to see a picture, I spend a lot of time imagining what the people I speak to here look like so it was good to be able to put a face to a name.
Again well done, and don’t let the b*****ds grind you down!!
Helen xxx
Hi all
Hope everyone ok.
Debs - Hows things now? Is it getting any easier?
Lisa - I looked at your newspaper article. Go girl! Think I might be a bit behind you with the chemo as I think my appt will be deferred again as I had silver nitrate painted on my wound for the second time yesterday. I have a granulomatous chanel now which needs burning back. Its been burning like hell last night and I still feel tired even though I had lots of sleep. Im back to only being able to look at my wound with one eye open again. Its yacky!!
Sal - How did you get on with your appt to have your scar checked yesterday? Hope things are ok.
Take care everyone.
Claire xx
I started my chemo 3 weeks ago and on first I had no sickness only thing i had prob with was mouth and constipation.
So second time round I sucked ice lollies while the gave me chemo and started lactose day before
Now on day 5 mouth is fantastic. No grumpy pains in stomach and apart from being tired a lot you wouldnt think I had anything so anyone on TACT2 arm! which is Epi x 4 and CMF X 4 Good luck its can be a breeze.
Oh and hair went on 21 days so not too bad
Joanne
Hi girls - doing ok!
bit lairy though - no-one warned me about that !
Think I’ve got hyperactivity from the steroids - just wish I was’t nagging my OH quite so much - it’s just that I’m sat around looking at all the piles of crap and thinking that if no-one else will do it then I’ll have to… so today I’ve done 2 loads of washing, pruned all the bushes, made the beds, cleared out 3 drawers, bossed OH around for getting all the kids out of the house. restructured the greenhouse, dead headed all the roses, knitted half the front of a cardi and watched 2hours of cookery programmes and read half a book.
yesterday after my chemo I went to work to catch up on some admin for an hour - at least I’ll get my extra payments for the last 4 months now!
Thinking I’ll be comatose by tomorrow though - but I do still have 2 more days of steroids, so we’ll see!!
Nice to hear Joanne that you’ve felt ok - my mate started that particular chemo yesterday and seems to be ok so far…
Glad your ok Helen! I’m sticking to my stick on bra prosthesis as it looks so good - I dont stick it on and it stays well and looks good too.
Welcome Liz - what is 28BTW ??? I am on bonemarrow boosting injections, which reminds me I need to have one right now - I’m doing it myself at home… anything to not delay this thing, and to keep well!
Oh - and didn’t need anything particulary in the unit except a good book that needed little concentration - so I started Swallowing Grandma which I’m really enjoying!
Big love to all!
Love and hope
Td xxxxx
Hi All
Blimey Td how the hell did you manage all that??? come round mine and sort it for me.
I must admit I have not been too bad at all just this bloody headache that comes and goes alhhough it is getting better I have now finished the anti-sickness and steriods etc. A bit picky over my food and can’t seem to stomach chocolate for some reason too sweet I think. But on the whole can’t complain. Had a bit of furry mouth a couple of times but just keep using the mouth wash and that seems to do the trick.
Can anyone tell me if their symptoms got better or worse with each FEC??
Poor Claire I do hope you get your wound sorted soon sounds horrible for you. Anyone waiting to start their chemo don’t worry it’s not as bad as we all think it is going to be. I only had to sit there for a hour and half and then went on my merry way. Have a feel of my ‘barnet’ every morning just to see if it is still attached still its early days yet but my head scalp does feel a little funny although I can’t really explain how but you all probably know anyway.
Feeling a bit muzzy in the head and seem to need a sleep around the 3pm mark, its all good tho
Best of luck everyone and have a lovely weekend
Debs x
Hey Joanne, Td and Debs, I am so glad everything is going ok with the chemo, 4 days to go woohoo.
Yes Td can you come to my house please, I have been “sorting” it for 2 weeks and still haven’t done a thing.
The boys go to Spain on Monday morning so will get stuck in then I think.
My appointment is at 11am on Wed and guess what.
I have an interview for my job (they are making it permanent) at 11:05. Will have to ring to see if it can be changed, but as the board of governors need to be there frig knows when I will get it changed to if at all.
Claire, I am so sorry hunny your wound isn’t healing just take it easy. Salt baths apparently helps but wouldn’t know, would prob sting like hell and I suppose you can’t get it wet anyway.
Helen - good luck for Tuesday I will be thinking of you hunny.
Td - BTW is by the way in cyber speak.
Sal and Liz - how you both doing?
Sorry if I have forgotten anyone
Lisa
xoxo
PS Tricia catch me if you can 
Hi td , lisa, claire.deb’s helen liz hope you are all well …
im not to bad just wish the swelling under my arm pit would go down… my scare is ok just leaking a little not as much as it was…doc seem’s happy with it tho…
do’s any one feel tight after the opp…??? feel as tho you cant stretch as good ??
went away for the weekend pop to see friends …that was nice to get away…
just counting down the days now …hope i get through it as good as some of you are.
well going to do a bit round the house …
see you all soon
sal x
Hi Ladies,
Sal, I’m counting down the days too - 4 to go! It feels weird to be looking forward to something like this, but I guess looking forward to an event in the future makes you feel that way! I definately couldn’t strech as well when my implant was in, but feel much looser now it is gone. Still get tighness across the scar sight tho and swelling when I do too much!
Hi Td I meant I’m 28 years old By The Way!! Glad to hear someone else is on the injections, are they ok? I keep being told they will be as painful as teh Zoladex, b ut I found that ok!!
Thanks for the thoughts Lisa -am doing ok, but definately need some sleeping pills!!
Look forward to hearing how you all get on!!
Liz xx
Hey all,
Managed to get my interview changed.
My interview is at 9:30 am and then chemo at 11:00am, on Wed only tomorrow to go woohoo.
Love and hugs to all
Lisa
xoxo
PS was on the radio again on Sunday, will be a weekly thing so if you do want to hear my awful tones google seven fm and you can listen live.
Between 2 and 6 on a Sunday, usually around 3-4
Oooh Lisa - we get to hear you now too!! Lovely!!
The injection was fine Liz - I had just one, the day after my chemo - think it depends on what your neutrophil count is to begin with as to when and how many. i gave it myself at home so read the leaflet and scared myself to death - nothing really happened though except a bit of achy leg type pain - and that could’ve been aything…
Good luck all!!
I’m still ok - except not slept much last night - steroids reduced yesterday and stopped today. thank goodness WImbledon is on!!!
Td xxxxx
lisa…
good luck for tomorrow hope it all go’s ok …
TD glad you are copping ok think you are very brave to give your self a stab in the leg…
liz … you hav’nt got many days left …hope you are ok .
im getting a funny belly just thinking of next tue… keep thinking hope i dont feel to sick …
seems hard to know that you are sitting there well they put all that nasty stuff into your body …to make you feel so sick…
but there you go hey…
chat soon hope everyone is ok
sal x
Lisa - hope all goes well tomorrow, both for the interview and the first chemo - good luck for both I will be sending you positive vibes all morning!
Had my onc appointment today, and start 6 cycles of FEC on 11th July so I’m not too much behind you ladies. Then 5 years of hormones starting with Tamoxifen and one year of herceptin. My oncologist is hilarious he explained everything in loads of detail whilst writing it all down upside down and back to front so that I could read it as he was writing! Its obviously a skill he has acquired over many years, he also drew a picture of “me” to show where my tumour was and tried to make it look at much like me as possible, right down to the hairstyle! He also said that I might bankrupt the NHS Trust by having everything (except rads although he might change his mind!) but said he didn’t care. I also said I didn’t care and just give me whatever gets rid of the b****r, sod the expense!! Just what you need in a situation like this, someone with a bit of humanity and humour it was great! So… bring it on, the sooner we get started the sooner we can finish, and I will follow all of your experiences with interest and pick up any tips on the way. Is anyone else just on FEC? It seems most people seem to be on this and another set of drugs, but I’ve give up second guessing why we all have such different treatments, as we’ve said before I’m sure its just down to individual circumstances etc. so whatever.
Love to all
Helen xxx
Hi helen
glad you now know what you are having …seems to put you more into the picture,don’t you think.
i would enjoy yourself up and till you start…make the most of feeling ok …
iv got one more week as i start tac next tue…
been down town most days even if i just had a look around it was nice just to get out and about…if you know what i mean.
well hope you are ok hope to see you on hear again letting us know how you are getting on
sal x