Hot hands and feet and flushes usually happened at night so I just rode them out. Often went into the bathroom as we have tiled floor and it was nice and cool on my feet. Keeping feet cool before going to be helped so don’t have a hot bath then get straight in bed. Let feet cool. It’s fine to wear socks but I avoided thick socks or slippers as they were too warm.
Happy Boxing Day
I am still ‘enjoying’ FEC - day 6 for me, so very fatigued and can’t be bothered to eat anything.I’m even struggling to drink my green tea which I normally love.
But I’m keeping my fluids up and resting up … as tomorrow is my Christmas Day. … really don’t want to feel like this!!
xx
Lesley??hang on lovely and look forward to your Christmas Day tomorrow ??do a bit of online shopping to give you a few extras to look forward to, for nd it helps when having a ? day. ??
shi xx
Merry Christmas Ladies xxx
It sounds like you have all had a great Christmas :0)
I’ve not been enjoying new cocktail. Sore and uncomfortable. Walking like a hundred year old :0( Thankfully Daddy has been a Christmas angel x. Don’t think the se are from the T. I’m blaming the injections which I’m now counting down! Only two more to go :0(
Lesley enjoy your Christmas Day!
Hope Santa has been good to you all xxx
Wishing you a happy Christmas day for today Lesley. Hope you’re feeling better ???
???
Happy Christmas for today Lesley, hope you have a lovely day.?
Hope everyone had a happy Christmas. Think I’ve just recovered from entertaining 19 on Christmas day. Timing was a little out but apart from that everything went really we’ll.?
Now relaxing before final FEC tomorrow DN just been and taken bloods so hopefully all okay
Bythesea I always take nurofen for the I injections onc says it’s fine just be aware of your temperature
Happy Wednesday everyone xx
Having an intetesting day at A&E due to sore mouth, sore tooth and not being able to eat properly. Oh the joy!! ???
Jc, hope they get your mouth sorted soon, have you had difflam during chemo, it’s a good mouthwash onc prescribes me. Lesley hope you are doing better today warrior ???shi xx
Hello ladies, hope you’ve had a nice christmas xxx
has any of our Nov ladies had heartburn? I have a terrible pain down my throat, as if a huge potato were stuck in there, I can’t even enjoy a cup of tea. There’s no reflux or acid brought up, though. Is it hearburn? Horrible feeling 
unfortunately, I didn’t enjoy the food at christmas. This round has been the worst so far :(
JC, I had a sore mouth too, but managed to sort it witth the mouthwash I’ve been given. It’s called benzydamine. Hope you’re back home anf feeling better.
Otter, my veins still hurt too, the nurse said it’s the red drug in fec that causes cording of the veins :(
have a lovely evening xxxx
You’ve got to love chemo, haven’t you? It just keeps on giving!!
We all seem to have nailed the sickness/nausea and then the mouth sores and heartburn rear it’s head!
And just as we get used to FEC … they go and change it to T!! 
Seeing my onc this morning and slightly dreading it… I know I have expectations of seeing a senior HCP, but I also know my bum probably wont hit the chair before she is ushering me out of the room… I have only met her once and she failed to inspire me with confidence then… actually dreading this morning… I have a list of questions I want answering and I know I will have to ‘make a fuss’ to get the time with her to get them answered. But make a fuss I will!
My son is coming to the hospital with me, but he has said he would prefer not to come in with me… I have protected him from this cancer diagnosis a little too well I think, he hasn’t seen any of the crap that goes with it… just me on good days. But I will respect his wishes and he did say that if I wanted him in there he would come… I think knowing he is just outside will help me.
I am still waiting genetic testing which will obviously impact on him as well if its positive and I know that it’s bothering him… but as he said , lets cross that bridge if and when we have to !
I’ll let you know how I go on … Bridget Jones knickers are coming out the closet!!
xx
Best wishes for today Lesley x
Good luck today Lesley! If anyone can get answers it’ll be you! I feel your pain, as I’ve mentioned before my onc is of a similar breed!
Hello fellow November crew, what a bumpy time we’ve all been having. It is so rotten. I disappeared into the chemo tunnel of doom on Christmas day and by Boxing day was suffering with the full range of SEs and as much as I have throughout the process so far. Just yuk.
I think I may be slowly emerging, but I do feel knocked about by this cycle. The combination of Christmas and trying to be okay for everyone plus chemo is a toxic one. I had some thoroughly unreasonable reactions and moments during the last few days to my poor family who have been trying hard to keep everything going. My house is apology central at the moment. Not unreasonably, I think they’d prefer I just stopped being a moody monster rather than keep apologising after the meltdowns.
I am really sorry that everyone has had their own horribly testing time. I keep telling myself we will look back on this Christmas and remember how determined and brilliant we were just for getting through it!
Lesley, how was your appointment? I am thinking of you and hoping you get the consultation you deserve. Let us know. And wishing you all a more comfortable, happier and peaceful time as we emerge blinking from the chemo tunnel. xx
Hi ladies
Just wanted to say Bon Jovi ???
Off to drink loads and chill and try out my new sickness meds xx
Back from the appt
1040 onc appt 1100 picc flush - arrived 1030, left the dept 1240! But it could have been worse
Got most of my questions answered regarding T
extra steroids, no sleep? Yep, invest in a box set and deal with it… she doesn’t like to prescribe sleeping tabs unless really extreme. But she did warn about panic attacks and told me to go to my gp for something for future rounds if I experience it.
Diarrhoea? - you get with FEC (I can confirm that!) but shouldnt with T, if anything gastric and mouth issues should improve… but everyone is different
Fatigue? Will be a lot worse, write off at least 10 days and if I improve before it’s a brucie bonus
She confirmed that I will need 4 weeks of rads not the 3 I was expecting, and I might have to travel out of area because of waiting lists!
We talked about ongoing monitoring because of my TN diagnosis and she was reassuring if not a little dismissive.
She is sending me info on an ‘Add Asprin’ trial during Radiology - anyone else heard of that?
My son came in with me - without me asking, I was very proud of him.
I then had a hang around for over an hour for them to flush my line - a bit annoying but they were very busy and no one had actually booked in me properly.
I had come back to the unit the day chemo because the picc had been bleeding and the area around felt very sensitive. They were relunctant to take the dressing off just in case it started bleeding again.
But when they took the dressing off today it became obvious why it was sensitive, a quite large patch of my skin had reacted to the dressing and was now red raw.
because of where it is there is nothing they can do about it but cover it up again but try and protect it from the sticky. it’s going to be a mess in anothe 9 weeks.
Back home now with a Costa hot chocolate and a very large piece of homemade chocolate fudge cake and cream :)
Can’t believe this time last week I was having treatment - my head is mashed with the days!
hope everyone is ok xx
We’ll done getting all the info Lesley.
Interested in the asprin trial as TN too
Enjoy the cake ??
Hello darlings no ladies. Just wanted to let you know I had a reaction to my 2nd t today. I’m on 80% dose and about 15-20 mins into today’s chemo I suddenly felt my face go hot, then my chest tightened and as I turned my head to tell nurses at the desk there was flashing lights in from by of my eyes ( all this happened within 5-10 seconds) so they stopped the t, pumped me with another drop for 30 morning na then restarted the t on a slower drip. I wanted you to know so those going onto t will be aware if any of those happen to you when they give it you, you let them know straight away it was just st so quick that it took hold when I went into reaction with it. Let be you all and just want you to be safe darling ???shi xx
Elorac woo hoo!!! youtu.be/lDK9QqIzhwk
Lesley good job on info! I can defo second the fatigue! I was blaming the injections! Day 1,2 and 3 were ok but days after that sore and tired. Today at day 8 starting to feel a bit better. Been outside every day but can’t last a whole day without a lie down. Temp all over the place and mouth and tongue odd! I slept no probs on the steroids tho, only up for toilet as per.
Annakarenina it’s Christmas tell them your Moz the monster from john Lewis advert! Everyone loves you xxx
Hopefully snow tonight. I’m trying to feel better to squeeze in a day skiing before next treatment. Gotta look forward to something!!!xxx
Thanks Lesley, my nurses have said it’s quire common on the t, so please have someone go with you while you are on t especially if there is not going to be a nurse in the room with you at all times. You should be fine, but it was the speed in which it hit me when it happened that was ???I thought I was going to pass out and if they had not reacted as immediately as they did I don’t even want to think about it, the 3 nurses were on it straight away and one of the onc doctors was at my side within a minute too. I just want to make sure you and all nov girls get looked after properly by your trusts as well as the team at my trust did today. ??shi xx
Morning - just getting ready for a center Parcs break.
Shi I am so sorry to hear what happened on your T. Otter I’m with you on this, I haven’t had a great 3rd FEC and am dreading starting T next week. I don’t feel as if I’ve had my good week to build me up for what’s to come. I’m going to reading back through this thread for any info regarding T so I can go armed for when I see my oncologist next Wednesday.
Shi hope you’re feeling better now, take care
??? to you all
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