Thanks for clearing that up Bythesea - shoild have realised. My daughter has found some tasteful easy recipes on Macmillan, we need to check out this site too!!
Lesley, I’ve had thrush before on FEC so think it’s a chemo se - either that or I’m damn unlucky.
Just had a bit of a pamper from my youngest daughter. Moisturiser’s and oil on hands and feet ??
???
??
Agree think the thrush is the chemo knocking out the immune system. ?My mouth went really quickly on T and think it was just really vulnerable to thrush taking hold. It looks pretty damn ugly so I won’t be offering out any snogging for a while lol ??
Do you have the fluconazole in your chemo party pack Otter? I also washed mouth with coconut oil several times today and it seems to have slowed down colonisation of the front of my tongue but back still looks pretty dodgy ?
Annakaranina, good luck for tomorrow. It will be fine x
Just relooked at the menus on this site and couldn’t find them. Maybe it was the Macmillan site that looked amazing. Mmmmmmm hungry now ha!x
steroids today seem to have been received ok - tonight will be the proof … then it’s chemo 4 at 1000!!
Think AnnaKarenina has to wait til the afternooon
love and hugs to all
xx
Ohh cider vinegar hadn’t thought of that - thanks so much Lizabeth will try that out tomorrow ?
All the best for tomorrow Lesley and annakarenina ???
Thank you for the positive thoughts everyone. And for all the port access advice and love in response to my worries about it. Not up until 4.30 this afternoon, so will try to keep busy. I went to The Haven yesterday for the first of my ten sessions and it could not have been better timed and more helpful. They are an amazing charity.
Thinking of you Lesley this morning and of everyone being so resilient in the face of aches, pains, thrush, fatigue and more. You are fab. Xx
Brilliant Lesley love it ???
Bug hugs to you and Annakarenina today ???
Off on the school run them nose into laptop again for me today.
I hope that aches, fatigue and mouth problems are starting to improve and that everyone had a good day today xxx
That’s great Lesley ?? good luck 
Annekarenina I have my first Haven appointments next week as I had to cancel this week’s because chemo was delayed. Are you going to the London one or elsewhere?
Otter am using difflam too but also anything else I can try ?
Temp 35.1 degrees when I woke up this morning but now 35.6 so phew no hospital call ?
???kick t ass Lesley’s back ???love it Lesley, hope your first t goes well, get the fluids down you like usual. Difflam and fluconzole for thrush mouth, I’ve had it every round, never had thrush in my life at either end before this. Annakarenina ???hitch those gold hotpants up lovely or go for full gold power ranger suit like Lesley ???
shi xx
Lesley, after having a crap night you really made me laugh ??
Good luck to you and Annakarenina for today’s ?? I shall imagine the pair of you in your golden outfits ?
Am still in bed with little energy, have had a touch if sickness most days, last night’s wiped me out. Sleep is all over the place. Temps are ok xx
Lesley ??well done on getting 1st t done darling, rest up and get the fluids going ???shi xx
Well done Lesley, hope you are okay too Annakarenina ???
Love it Lesley… What a hoot!!! Hope you and annakarenina do well tonight. Maybe little nausea on way back to car was just nerves settling as it was all good?
I’ve forgetten to take my steroids at lunch so better pop them now and hope I can sleep doh!
I had surgeon appointment today so looks like op will be 21st March then rads! By then some of you will be rad queens. Need to keep my informed xxx
Well done, lovely ladies you’re wonderful ??? and doing so well ???
I’m hanging there, at the back of ??? , my last fec next Tue (won’t accept anything different)
thrush, yes, a horrible thing ? knocked me down last time ? I have Difflam regularly, but fluconazole was given only last week, when onc looked in my mouth ? must try your home remedies with apple vinegar ? thanks for sharing xx
my eyebrows are going, I look really wierd … all my hair is gone ? everywhere ? one good thing ? enjoying while I can ??
good night to you all ?
Morning everyone, I cannot tell you how cheering it is to return to this thread post-chemo. Giggles and honesty about the nonsense that this treatment can cause. It is brilliant. And Lesley, I glimpsed your outfit photo just before I sat down in the chair yesterday afternoon and went from shaking with nerves to shaking with laughter - thank you!
As with much that I have anticipated along the way, the portacath access was much better than I feared. But boy were those fears visible by the time they had got all the kit out to begin. Fortunately, I had the most patient, understanding, skilled and kind staff looking after me. It took two goes (you can imagine how I responded when they broke it to me that it wasn’t flushing and would need to be removed and reinserted) and more nonsense on my part than any grown woman should indulge in, but it went in quickly the second time, with limited sensation and it ultimately made the process easier. It’s almost as if everything that everyone told me turned out to be accurate!
I am feeling pretty headachey, spaced-out and nauseous as usual this morning, but knowing a) I survived the port business, b) I have now completed cycle 4 and all my EC treatments, c) that means I am half-way through and d) the latest scan and examination/measurement show an increasingly positive response to treatment so far, make it possible to push through. I may need to return to these four facts when I hit the steroid crash days next week and nauseousness is hanging around.
Have a good day everyone. Do what you need to do to make it as okay as possible. Thinking of you all and especially Anadan who it was great to hear from - keeping everything crossed for no more disruptions and good news about scheduling the next session. xx
Glad you were treated well AnnaKarenina ?. Hope side effects are kind to you. Cycle 4 turned out pretty well for me.
Fear of the unknown is often worse than reality x
Morning ladies, I too slept well after my late steroid dose last night! Not looking forward to starting injections tonight tho :0(
My onc poo pooed the clarityn and just told me to double dunt on paracetamol and ibuprofen!
Heading away with my family next week and don’t want the super slow walking shuffle I had last time ha! Need to borrow that jump suit of yours Lesley x