thanks for checking in…… sorry my reply is so late, again haven’t been on here as much like I was at the beginning.
I’m doing well thanks, had my 4th cycle last Friday, so a week now (half way through) and it was my last Docetaxol!! All went well and I’ve felt pretty much normal again, apart from weird mouth this week like always, but that will ease away. I’m still walking an hour everyday, and popping out here and there with a mask on, makes days go a bit quicker and stops me from being so bored. Days are flying by though, can’t be believe we are already middle of Jan! It’s crazy!!
How’s everyone else doing?! I’m not looking forward to starting EC, just because it’s a different drug and scared for reactions but il just deal with it when it comes…… oncologist said I shouldn’t feel too differently on it compared to Docetaxol?! :-/ but trying not to think ahead as two weeks yet.
Hi all. Hoping everyone is doing well and managing to cope with the side effect. Had my last chemo session on friday so seems im the 1st one here to get to ring the . Emotional day and 2 of 3 ( surgery & chemo) ticked off. Just waiting to see oncologist for start date for radiotherapy. Hope that you are all feeling better in the hopes the end is nigh . Wishing you all the best of luck x
oh well done!! I know it’s not all over and you still have the radiation part BUT that’s a big part over and you’ve done it!! go you!! How are you feeling?? how many rounds did you have overall?? hope you’re feeling ok since your last one. Sending all the love and positive vibes!!
I’m doing well, I do have the first week where my mouth is bit weird and I’m only slightly fatigued but not enough to go to sleep in the day, I just sleep well every night. But that’s all lifted now since yesterday, so here’s hoping I have two weeks of feeling normal before the 5th cycle!! I’m starting EC for the next 4 rounds, slightly apprehensive as been on Docetaxol so not sure what the EC will bring as I’ve been surprisingly well on the Docetaxol!?
@stevie86 ive had 12 weekly rounds of paclitaxel + 3 weekly herceptin. To be fair i think ive got of quite lightly compared to some of you. Sleep or lack of it has been the main reason ive felt rubbish ive the obvious taxol rash on my face… thank god for make up. Not lost my hair but it had thinned dramatically. Feel like a ugly duckling most of the time. I had the picc line so haven’t had to suffer being cannulated each week which has been a godsend . Also ive had the bone infusion which i believe i have every 6 months for 3 years and will be starting letrozole soon for 10years …worrying about side effects of that .
Fingers crossed for the EC for you…hopefully youll be lucky cos what ive read most people find doclitaxol hardest .
Have you had or having surgery?
Day 7 after first Docetaxol and Phesgo. Any tips on preventing (for next time) this awful discomfort in my mouth?!
It’s like my mouth is dry and burning and so sore and everything - including water - tastes disgusting! I find mouth stuff gets me down the most. I can cope with the awful flu like aches and pains of day 4-6, but the mouth stuff makes everything miserable.
On EC I had oral thrush but was able to treat that preventatively on subsequent treatments. This is very different to oral thrush. Wondering is there is anything preventative for next time and what I can do right now to bring some relief.
Hi everyone, i dont really post on here but i do read alot of the threads on here. I was diagnosed with early stage of invasive breast cancer her2+ in july 2024. Had a lumpectomy to remove my 13mm lump and sentinel node biopsy that came back all clear. Ive nearly finished my chemo treatment only 2 sessions left. Had 3 of ec which wasnt as to bad feeling slightly sick and just a bit tired. Had my first of docetaxel and herceptin injection 2nd jan. My oncologist said this is the hardest bit and she wasnt wrong ive never felt so ill and i feel i can handle pain but this one knocked me right of my feet. I ended up in hospital due to a throat infection and my neutrophils were so low. Ive got my next round on Thursday and have to say im dreading it. Ive lost all my hair now and my skin is so dry and ive got lumps on my tongue ive tried the mouth wash they gave me but that doesn’t seem to work. Is there anything else i could try and what would people recommend for my dry skin. Xx
@hlc
You may want to join the thread set up over a year ago for HER2 and need some buddies as our treatment lasts longer than chemo alone. It’s a supportive thread with some like me who have finished active treatment now on Letrozole and Zoledronic acid, some having chemo, others on Herceptin/Phesgo/Kadcyla.
@sawabev might be a thread you might want to join/follow as well.
I’m having surgery after chemo (obviously I’m absolutely petrified) never had any type of surgery before but trying hard to not think about it until it happens…….
glad to hear you’ve been feeling not too bad, that’s a real bonus!! I haven’t even had a picc line, they did mention it but haven’t since and so far my veins have been good so maybe no point now??!
omg, I have had the exact same on Docetaxol…… I get it for the first week (I’m on day 10 now and it’s got a lot better!! I am trying to describe it to people and it’s exactly that, a burnt fuzzy feeling, like I’ve eaten something way too hot!! Yes and also dry…… my taste buds haven’t really changed but with this mouth nothing satisfies me, I’m craving things but nothing is appealing!! I’ve eaten/sucked on so many skittles, lol because I just wanted something to make my mouth feel better!! they have worked actually but now I feel I don’t even want to look at one…… I’m craving chewy sweets now (I know it’s not the best sugar wise and for teeth) but that’s all that’s helping me through this. I have the dry mouth wash too, have you got that?? That’s good, using it thought out the day. Apart from that, nothing has helped :((
So did you have EC first im guessing?? did you not get a mouth like this at all on EC? were the symptoms totally different so far?? I’m sorry to hear the mouth is getting you down, it isn’t fun at all……. even drinking anything feel weird :(( and I love having a million drinks on the go but everything just feels strange on my tongue.
a lot of us back on 2017 threads found udderly smooth with extra urea from Amazon worked like a dream on parched skin, just though I’d mention it if your strutting find a cream that works, I remember few of us struggled the someone found that worked and shared it so we all tried it and worked for us too Shi xx
Yes I had 4 rounds of EC before starting Docetaxol with Phesgo. I had oral thrush on EC which was also miserable but in a different way. But after cycle one they gave me preventative tablets for it so it was never as bad as the first time again. They have prescribed me some gelclair which I’m about to collect. I’m really hoping they can give me something to prevent for next time. Or even maybe reduce my Docetaxol dose as they reduced my EC dose after first one be 20%. Am thoroughly fed up. Feels like the final straw!
Hi, I’ve just had third EC and going into three Dox next. I was hoping they would be easier but they sound like misery
I’m in a complete panic as I have discomfort in my side and I’m so scared there is spread to the ribs area. CT on Friday and I’m terrified. I’m hoping the discomfort is something simple that is just being amplified due to chemo but I’m so scared x
I’m day 8 and am so miserable with this much pain in my mouth! Desperate for it to pass. The inside of my lips and the sides and top of my tongue are red raw and my mouth is so dry and painful but nothing eases it and everything tastes awful. Also painful to swallow. They’ve given me gelclair mouthwash now but it’s not the miracle I’d hoped for. Honestly I can cope with the aches and the pains and the constipation and the piles and now the trots, but for some reason the mouth stuff tips me over the edge! I just look forward to bedtime so I can tick off another day! But I did discover out of pure desperation that a carton of ribena is really rather nice! Haven’t had a carton like that since I was young! So annoying that sweet is the only thing my palette can tolerate!
@stevie86. I do hope the surgery goes well for you. Like you i haven’t had any previous surgery so it was quite scary. Although i was happy to get the damn thing out asap. My surgery was already booked but got a call week before and i found out i was her+ so i had to make the decision as to what ordered to do it. As i was looking at waiting 6 weeks to see oncologist i decided my best option was to go ahead as planned and remove tumour and then mop up with chemo… trouble is now how do i know if chemo as done the mopping up . Not sure if ill be scanned or not before radiotherapy
Evening everyone - It’s been a bit of a week with mum in hospital and my fatigue just a bit too much , I was also in the midst of a period which seemed to last about 12 days and I was wiped out … I’m feeling a bit brighter now but I haven’t left the house for a week or even put my wig on … I will aim to get out for a walk tomorrow …
the good news is the new drugs finally sorted mum’s tachycardia out and she went home on Friday and is feeling fine .
@sam3 I do understand the fear of spread , every twinge or ache can be really frightening , before cancer you’d dismiss it but now it feels so sinister … the only thing I’ll say is … hopefully the ct scan will be innocuous and out your mind at rest . I had a single mastectomy and SNB in September and I’m
Still very sore in general in my rib area x
@stevie86 So pleased to hear you are still feeling not too bad and that you are getting out and about x I was terrified of having surgery too , quite literally said my goodbyes to my family on the morning and rewrote my will It was actually fine , I went to sleep and woke up and it as over and I wasn’t in pain either x
@hlc yay on finishing chemo ! If you’ve joined the her2 thread lovely salbert and @naughty_boob will tell you to “slap a bench” I’m also her2 and I had surgery first , they thought I just had multi focal DCIS with a teeny invasive but when the boob came off it had five sneaky invasive hiding in it …So my chemo is a belt and braces “mop up “ too … no radiotherapy as the boob has gone and just hoping that the chemo indeed mops up , plus the never ending jabs . Have they scanned you to see if you’ve had a full pathological response ?
Ps I get the horrific taxel rash too . I look like I have measles for about a week
@sawabev I’m so sorry that doxetaxel has knocked you for six … it might be worth discussing a dose reduction if you’ve already been in hospital with an infection x my first cycle of nab paclitaxel was pretty rough and I had to have a delay of a week and a dose reduction .
@rfg ring the triage line about your mouth , you shouldn’t be suffering like this , you may need treatment for oral thrush x
That’s good news about your mum. Hopefully being at home and on the new meds will lend itself well to a speedy recovery.
Sorry to hear you are feeling wiped out. Tbh on this round I have been feeling really tired and had a cold which totally bowled me over. Just prepping for round 5 tmw now and managing normal anxiety about the chemo day itself!
@stevie86 im nervous about surgery too which I think will be in March for me. And I have even fast forwarded to waiting for the pathology results and how I will be so anxious waiting for those. Honestly I need to distract myself from thinking too ahead!
Hi @arty1 thank you. I hope your mum is feeling much better. It’s hard to juggle everything when feeling wiped out yourself isn’t it?! I hate getting up in the morning at min as things just feel like a hard slog. My pain is on the opposite side of my original cancer site. I’m absolutely terrified and praying it can be explained away with something else.
Sending big love
Hello pls can I join ?
I began chemo on 5 November .
I have abraxane, carboplatin and phesgo. Each cycle I’ve had diarrhoea but this one has been the opposite and due to haemorrhoids and constipation now feels like I’m
Passing glass when I open my bowels
. Emotional day and 2 of 3 ( surgery & chemo) ticked off. Just waiting to see oncologist for start date for radiotherapy. Hope that you are all feeling better in the hopes the end is nigh . Wishing you all the best of luck x
a lot of us back on 2017 threads found udderly smooth with extra urea from Amazon worked like a dream on parched skin, just though I’d mention it if your strutting find a cream that works, I remember few of us struggled the someone found that worked and shared it so we all tried it and worked for us too 
It was actually fine , I went to sleep and woke up and it as over and I wasn’t in pain either x
I’m also her2 and I had surgery first , they thought I just had multi focal DCIS with a teeny invasive but when the boob came off it had five sneaky invasive hiding in it …So my chemo is a belt and braces “mop up “ too … no radiotherapy as the boob has gone and just hoping that the chemo indeed mops up , plus the never ending jabs . Have they scanned you to see if you’ve had a full pathological response ?